2 Parkies in a Pod: a Parkinson's Podcast

What happens when you’re told you have Parkinson’s — and years later, you’re told you don’t?

Mike Bells talks about the first signs, how the diagnosis affected both him and those around him, and the impact the Parkinson’s medication had. Then came the shock.. Mike was de-diagnosed almost a decade later.

Mike opens up about what it felt like to discover the news and what life looks like now.

Plus, Dave hits 60… and Kuhan gets back behind the wheel!

Mike Bell Maps

https://mikebellmaps.com/

Par-Con 2026

https://www.parkinsons.org.uk/community/par-con

Parkinson’s UK Nurse Appeal

https://www.parkinsons.org.uk/donate/parkinsons-uk-nurse-appeal/our-bbc-radio-4-appeal

Parkinson’s UK Walk Battersea Park 5th Sept 2026

https://events.parkinsons.org.uk/event/walk-parkinsons

Cure Parkinson’s Walk Battersea Park 

https://cureparkinsons.org.uk/events/walk-to-cure-parkinsons-the-london-walk/

Please subscribe, rate & review

2parkiesinapod.com

Guest: Dr Ashwini Oswal

For many people living with Parkinson’s, Deep Brain Stimulation (DBS) is one of the biggest treatment decisions they’ll ever face. But when is the right time to start thinking about it? Should DBS be viewed as a last resort, or could earlier intervention offer greater benefits?

In this episode of 2 Parkies in a Pod, we’re joined by Dr Ashwini Oswal, Honorary Consultant Neurologist at the John Radcliffe Hospital in Oxford. His clinical work and research focus on Parkinson’s disease, Deep Brain Stimulation and the next generation of adaptive DBS technology.

Together, we unpack the evidence behind DBS, explain how it works, discuss who is most likely to benefit, and explore whether the 5-2-1 rule is a useful guide for referral. We also talk about the role of medications such as Entacapone, Opicapone & Amandatine, ask whether DBS could one day prove to be neuroprotective, and look ahead to the exciting future of adaptive DBS.

https://www.parkinsons.org.uk/information/treatments/deep-brain-stimulation

How to get involved in table Tennis

https://tabletennisengland.co.uk/news/2025/table-tennis-england-and-parkinsons-uk-announce-partnership/

The advert that made Dave Cry

https://www.youtube.com/watch?v=-GEpT3e7Dfg

Please rate, review and subscribe

2parkiesinapod.com

Guest: David Dexter, Director of Research, Parkinson’s UK

There’s a real sense of optimism in Parkinson’s research right now! In this episode we’re asking whether we’re closer than ever to treatments that can slow, stop, or even reverse the disease.

David Dexter joins us to discuss exciting developments including breakthrough stem cell research, the promising results from a drug called Syntara, why reducing brain inflammation could be a game changer, and how Parkinson’s UK decides which research to back.

We also chat to Yorkshireman Andy Cassy who’s had millions of Stem Cells “planted” in his brain.  Two years on from his 12 hour operation, is it working?

We also explore whether stress affects Parkinson’s, if an apple a day really can help keep the neurologist away, the science behind fatigue and NAD+ a cheap energy boosting supplement

We finish with a fun quick-fire round to discover the person behind the scientist.

Plus- how Dave managed to skip into Wimbledon for semifinals day.

Parkinson’s UK Research

https://www.parkinsons.org.uk/research

Par-Con 2026

https://www.parkinsons.org.uk/community/par-con

Symprove

https://shop.parkinsons.org.uk/pages/partner-symprove

NAD+

https://amzn.eu/d/0aA8NY3s

Why am I so tired?

https://www.2parkiesinapod.com/podcast/episode/223d81c7/why-am-i-so-tired

Ask the professor

https://www.2parkiesinapod.com/podcast/episode/2da15954/ask-the-professor

2parkiesinapod.com

hello@2parkiesinapod.com

Please subscribe, rate & review 

This episode celebrates some of the incredible people making a difference in the Parkinson’s community through creativity, courage, sport, music and innovation.

Meet wildlife photographer, filmmaker and now gardener David Plummer, one of the talented people who helped Arit Anderson create the stunning Parkinson’s UK Garden at the Chelsea Flower Show:

https://www.instagram.com/davidplummerimages

Kuhan reflects on his DBS 1 year on with DBS specialist nurse John:

https://youtu.be/gCkyRdcNgbg

Ciaran and Lucy share their remarkable story of cycling around the world to raise money and awareness for Parkinson’s:

https://www.instagram.com/ciarandoesthings_

FA Cup Final Ian Moorehouse:

https://www.youtube.com/watch?v=zwus8-XDxMY

Rock Choir - over 400+ local choirs across the UK and Ireland:

https://rockchoir.com/

BURT - The Movie:

https://www.joeburke.net/burt

Ever fancied appearing in a film? A former Coronation Street actor explains how you could become a star of the silver screen:

https://www.instagram.com/108a_films

Sam reveals how he’s using artificial intelligence to help compose, create and produce new music:

https://www.instagram.com/samuelsmithmusic

And two Emmas tell us all about a festival designed especially for Parkies:

https://bigskyhideaway.com/parky-in-the-park

Twelve amazing people with inspiring stories. One uplifting episode celebrating the people who are making a real difference in the Parkinson’s community.

Plus Dave tries out a expiratory muscle strength  trainer:

https://www.cuh.nhs.uk/patient-information/expiratory-muscle-strength-training-emst/

https://www.amazon.co.uk/EMST150-Expiratory-Muscle-Strength-Trainer/dp/B0094ME5BA

Please rate, review and subscribe!

In this special episode, Dave and Kuhan head to the world-famous RHS Chelsea Flower Show to explore one of the most moving and meaningful gardens of the year: Parkinson’s UK’s Garden for Every Parkinson’s Journey.

We’re joined by acclaimed garden designer and broadcaster Arit Anderson, who shares the deeply personal story behind the garden she created. Arit opens up about her family’s connection to Parkinson’s, how that experience- and the experiences of the Parkinson’s community - shaped the design, and why gardens can become spaces for reflection, resilience and hope.

Plus we meet Raymond the Chelsea Pensioner with Parkinson's

This week 2 Parkies in a Pod chat to former BBC technology correspondent Rory Cellan-Jones - a man who’s interviewed the likes of Steve Jobs and Elon Musk. He’s a Mover and Shaker launching an award-winning podcast, and is now one of the most important voices on tech and Parkinson’s.
He talks about his career at the BBC, his Parkinson’s diagnosis and the pros & cons of Tech.
Plus - The latest on Sophie the Romanian rescue dog, Dave gets hacked and Kuhan experiments with voice cloning

Links

https://rorycellanjones.substack.com/

https://www.moversandshakerspodcast.com/

https://www.ejsactpd.com/

Wispr Flow voice to text special offer

https://wispr.ai/pwp

What type of Parkinson’s do I have?

Featuring Prof Alastair Noyce

You’ve heard it a hundred times: “everyone’s Parkinson’s is different.” But what does that actually mean?In this episode, we unpack the main subtypes of Parkinson’s and what sets them apart clinically. Are you tremor-dominant or more rigid and stiff? Have you lost your sense of smell? How does young-onset progress? And in this clip we discuss if having a genetic type means your children will inherit Parkinson’s ? To help make sense of it all, we’re joined by one of the leading minds in the field: Professor Alistair Noyce, clinician, researcher, and a driving force at the cutting edge of Parkinson’s science.

Elsewhere, Kuhan boards a plane to Spain for the first time since his brain surgery, while Dave heads to the Yorkshire coast in search of puffins.     And we spotlight a powerful awareness campaign - the “rose without a smell”- highlighting one of Parkinson’s lesser-known symptoms.Listen and follow at 2parkiesinapod.com or on Spotify / Apple Podcasts

Parkinson's Resilience Rose

https://www.roses.co.uk/product/780299/rose-parkinsons-resilience-4l-pot-ngw

PD Frontline (Genetic Testing)

https://mantal.pdfrontline.com/en

EJS ACT-PD Trial

https://www.ejsactpd.com/

Parkinson's UK Get Involved in Research

https://www.parkinsons.org.uk/research/get-involved/take-part-hub

We take a look at the use of pump technology (Produodopa) in battling the symptoms of Parkinson’s..

A small pump delivers a continuous dose of medication under the skin through a small needle.

How will it improve 'off' periods ?

How difficult is it to manage the pump and change the infusion site?

Can you lead a normal life with it?

Parkinson’s patients Anna Jewell and Helga McFarlane together with 'Professor AI' tell us the pros and cons of pumping it up!

Plus- Find out what happened when Kuhan turned off his DBS to play tennis…

Dave starts his brain surgery journey…

And Billy Connolly gets a new job as a museum tour guide…

More information

https://www.parkinsons.org.uk/information/drugs/produodopa

We’re hitting a milestone-Episode 60- and marking it in style. 

In this special instalment of 2 Parkies in a Pod, Dave and Kuhan swap the studio for the pitch as they attend a truly unique football match. On one side: the England Men’s Parkinson’s Walking Football team. On the other: a team of MPs from the All-Party Parliamentary Group.

But this isn’t just about goals and glory.

This match shines a spotlight on something bigger- the powerful role exercise can play in living well with Parkinson’s. It’s about movement, resilience, and proving that diagnosis doesn’t mean standing still.

And where better to make that statement than right at the heart of power?

Adding to the occasion, the team also received a letter from Prime Minister Keir Starmer, praising the day and recognising the importance of raising awareness and championing the Parkinson’s community.

With boots on the ground and voices raised, this episode captures a moment where the Parkinson’s community takes its message straight to the highest table in the land-loud, proud, and impossible to ignore.

Plus we take a trip down memory lane, talk about gut health and Dave's unexpected visitor for breakfast !

⚽ Movement is medicine.

Please do subscribe, rate and review the podcast.

Symprove Gut Health

https://shop.parkinsons.org.uk/pages/partner-symprove

Padel for Parkinson's

https://www.instagram.com/Padel4Parkinsons

Billy Connolly Art

https://www.castlefineart.com/products/a-chat-at-the-gym

Alex Echo Art

https://www.castlefineart.com/search?q=alex+echo

Sex, Shopping & Gambling - Out of Control

This week on 2 Parkies in a Pod, we uncover the darker side of dopamine agonists — a group of Parkinson’s drugs that, for some people, have triggered devastating impulsive behaviours.

Sudden, overwhelming sexual urges, out-of-control gambling and compulsive shopping that’s cost families tens of thousands of pounds.

We speak to BBC Investigative Reporter Noel Titheradge, who spent a year investigating the link between these medications and impulse control disorders. His documentary 'Impulsive’ for the BBC’s Radio 4 Shadow World series exposed stories that are hard to ignore.

You’l also hear from:

How common are these side effects?

Are patients warned clearly enough?

And should drug companies be doing more?

If you or someone you love has been affected, help is available.

📞 Parkinson’s UK free confidential helpline: 0808 800 0303

📧 hello@parkinsons.org.uk

Parkinson’s UK Impulsive Control Disorders

https://www.parkinsons.org.uk/about-us/our-views/impulsive-compulsive-behaviour

BBC Impulsive Series

https://www.bbc.co.uk/programmes/m001zlz0

Contact Noel: noel.titheradge@bbc.co.uk

Yellow Card Reporting Side Effects

https://yellowcard.mhra.gov.uk/

Ellie’s Blog 

https://pdmamablog.wordpress.com/

‘Why am I so tired?’ features occupational therapist Emma Bracher

Research shows, fatigue is the most burdensome symptoms for people with Parkinson’s, yet it’s still one of the least talked about and least understood.

So what is Parkinson’s fatigue? What causes it? And is there anything we can do to live with it — or even prevent it?

This week on 2 Parkies, we’re joined by Emma Bracher, Specialist Occupational Therapist and founder of Bigger & Better, a fitness and wellbeing programme designed specifically for people with Parkinson’s.

Emma shares her expert insight into:

We also get to know Emma’s personal journey — having a dad who has Parkinson’s, to how a six-year adventure in Australia inspired her to become a healthcare professional. And because it wouldn’t be 2 Parkies without a bit of fun, we also discover how Emma’s husband has turned their garage into an unexpected shrine to darts 🎯
An honest, informative, and uplifting conversation about one of Parkinson’s toughest symptoms — with plenty of practical takeaways along the way.

Links:

How can Occupational Therapy help me

https://www.parkinsons.org.uk/magazine/spotlight/how-can-occupational-therapy-help-me-if-i-have-parkinsons

Bigger and better 

https://www.biggerandbetterforparkinsons.co.uk/

2 Parkies Bobble hats - use the code WarmFeb (up to 28/2) at checkout to receive 10% off any clothing

https://shop.parkinsons.org.uk/collections/parkinsons-uk-merchandise-1/2-parkies-in-a-pod

The Tremor-Loes Choir

https://m.youtube.com/playlist?list=OLAK5uy_n6FHxcvIQZTpv7mA4AObHQlpXg2Si5Exc

Larry 100 Marathons

https://secure2.convio.net/dpf/site/Donation2?mfc_pref=T&2720.donation=form1&df_id=2720

Skateboarding Parkie Phillip Brown 

https://www.youtube.com/channel/UCulUIOyLhCDo8YnwRqSL77Q

The Shaking It Up Parkinson’s Podcast

https://shakingitupwithparkinsonspodcast.com/launch-trailer/

Parkinson’s Medication Explained with Professor Jane Alty from the University of Tasmania.

Parkinson’s meds can feel overwhelming. If you don’t know your Entacapone from your elbow, this is the Podcast for you.

The professor cuts through the confusion — busting myths and jargon explaining what each medication actually does, and why treatment should always be personal. From first prescription to advanced therapies, this is a must-listen for anyone navigating Parkinson’s.

Key Topics:

Parkinson’s UK Medication

https://www.parkinsons.org.uk/information/drugs

Parkinson’s MOOC (massive open online course)

https://mooc.utas.edu.au/course/20392

Parkinson’s Weekly Prof Bas Bloem (talking about Amandatine)

https://oruen.com/category/podcasts/parkinson-weekly

Megan’s Yogathon for Parkinson’s UK

https://www.justgiving.com/page/megan-jones-1764255759495?utm_medium=FR&utm_source=CL

Anders M. Leines ‘This is Parkinson’s’

https://www.detteerparkinson.no/en/media

Emma Lawton ‘The Bendy Pencil’

https://www.crowdfunder.co.uk/p/thebendypencil

Miracle grandfather battling Parkinson's, 74, survives 60m mountain fall

https://www.express.co.uk/news/uk/2161180/grandfather-battling-parkinsons-survives-60/amp

Season's Greetings from 2 Parkies in a Pod ! 
Dave and Kuhan get in the festive spirit as they open the postbag and share some truly inspiring stories from the community ..including the challenges of running a nuclear power plant with Parkinson's, more remarkable DNA stories and we hear from friends.. old and new. 

Plus 2 Parkies in a Pod receives its own community award !
As always - honest conversations, real lives, and a bit of festive cheer along the way…
We hope you have a wonderful Christmas and a Happy New Year!

Please rate, review and subscribe!

2parkiesinapod.com

hello@2parkiesinapod.com

Many people living with Parkinson’s struggle to talk about their diagnosis. Fear, stigma, and uncertainty can keep people silent for years. Even Michael J. Fox kept his Parkinson’s diagnosis private for almost a decade.

This week on 2 Parkies in a Pod, we meet Scott and Paul, who share powerful, deeply personal coming out stories — not just about Parkinson’s, but about identity, isolation, and finding the courage to be seen.

Paul reflects on how closely his Parkinson’s journey mirrored his experience of coming out as gay:

“I guess I dealt with Parkinson’s in the same way I dealt with realising I was gay… by not talking to anyone about it for many years"

Scott speaks honestly about living with Parkinson’s while single, gay, and without family support:

“Being single, gay, with no family support, I did feel very isolated — and there weren’t many people I could see in the community that I had anything in common with.”

In one of the episode’s most raw moments, Scott also opens up about experiencing suicidal thoughts and explains how the helplessness he felt during tests for deep brain stimulation treatment resurfaced memories of past sexual abuse. His honesty shines a light on the complex mental health challenges faced by many people with Parkinson’s — challenges that often remain unspoken.

This is a story about vulnerability, survival, and connection. A story of adversity, community and ultimately ...gratitude.

Parkinson’s and The Invisible Man (Scott’s YouTube channel)

https://www.youtube.com/@Parkinsonsandtheinvisibleman

Parkinson’s UK Mental Health 

https://www.parkinsons.org.uk/information/symptoms/behavioural/mental-health

Podcast Club

https://localsupport.parkinsons.org.uk/activity/young-onset-parkinsons-online-group

LGBTQIA+ Network

https://localsupport.parkinsons.org.uk/activity/lgbtqia-network-meeting-online

DBS Network

https://forms.gle/ApDHqGaDF38n6wYa7

Join our yoga group

https://dawnwilliamsyoga.co.uk

1 in 3 living alone research insights

https://denpruexeter.nihr.ac.uk/wp-content/uploads/2025/05/DeNPRU-Exeter_living-alone-with-a-progressive-neurological-condition_policy-brief.pdf

Par-Con 2025 mental health video

https://www.youtube.com/watch?v=r-PwOYRSe4Q&list=PL1ixQpbHed3Y9_jS-WuZePcFa7N_O7aNi&index=7&pp=iAQB0gcJCSkKAYcqIYzv

Hear Me charity

https://www.parkinsons.me/hearme

Nutrition PD

http://prksn.uk/47RAlmu

Please rate, review and subscribe to the podcast 

Contact us at:

hello@2parkiesinapod.com

In this episode, we meet Lucy (not her real name), who shares her extraordinary Parkinson’s journey.

Lucy discovered she has a genetic form of Parkinson’s known as LRRK2. What started as a simple Ancestry DNA test to explore her family roots soon led to life-changing revelations — uncovering far more than she ever expected.

Before releasing this episode, we sought advice from Lucy’s counsellor, and we’ve taken every step to protect the privacy of everyone involved in this remarkable story.

If you’ve been affected by the topics discussed, or want to learn more about genetic Parkinson’s, you can contact the Parkinson’s UK Helpline for confidential advice and support:

📞 0808 800 0303

📧 hello@parkinsons.org.uk

Donor Conceived Support

https://donorconceiveduk.org.uk (peer led support)

https://www.uhliverpool.nhs.uk/services/service-finder/donor-conceived-register (national register)

EJS ACT PD Get Involved 

https://www.ejsactpd.com/

Watch 2 Parkies at Par-Con

https://youtu.be/H7IFQfcp2os

Neuro Heroes

https://www.neuroheroes.co.uk/

Parkinson’s Europe Work Survey

https://parkinsonseurope.org/parkinsonslife/careers-cut-short-financial-loss-and-fear-of-stigma-new-survey-working-with-parkinsons/

Parkinson’s UK Nurse appeal

https://www.parkinsons.org.uk/donate/donate-great-care

Neuralink

https://www.ucl.ac.uk/news/2025/oct/first-uk-patient-uses-thought-control-computer-hours-after-neuralink-implant

hello@2parkiesinapod.com

10 Tips for a Better Day

You can watch this episode at:

https://youtu.be/H7IFQfcp2os

In this special live episode from Parkinson’s UK’s Par-Con event in Birmingham, Kuhan and Dave are joined by a buzzing audience of more than 1000 people in person and online and the incredible Laura Douglas, neuro physiotherapist and founder of Neuro Heroes.Laura shares her expert advice from getting out of bed, stretches for dystonia and tips for getting dressed.Packed with practical tips, uplifting moments, and plenty of fun, this episode will help you start and end each day feeling stronger, steadier, and more confident — no matter what.

Neuro Heroes Tips

Plus a couple of special announcements.

Subscribe to 2 Parkies in a Pod

A new study published today reveals a worrying trend: there are now 166,000 people in the UK living with Parkinson’s but a further 21,000 are estimated to be undiagnosed.. and unsupported.

The Parkinson's UK study, the largest of it's kind, also reveals more than a third (36%) were of working age when diagnosed.

Separately the number of people with a more complex form of Parkinsonism (e.g. Lewy Body Dementia, MSA, PSP) has increased to 28,000.

The study also finds stark differences in rates based on ethnicity.

Even more concerning, in some parts of the country people are waiting up to five years to see a neurologist. The charity has called it a “Parkinson’s diagnosis crisis.”

With someone in the UK diagnosed every 20 minutes, we ask: why are the numbers rising, what’s driving the crisis, and what needs to change?

Join us as we dig into the data, with 3 experts from Parkinson’s UK and explore what this means for the Parkinson’s community — now and for the future.

For more information:

Parkinson's UK News Article:

https://www.parkinsons.org.uk/news/thousands-are-living-parkinsons-undiagnosed-and-unsupported-our-new-research-finds

Read the Parkinson's UK Research Blog:

https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-what-do-we-know

Parkinson's UK Statistics:

https://www.parkinsons.org.uk/about-us/parkinsons-statistics

Research Paper:

https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mdc3.70368

www.parkinsons.org.uk

UK Helpline 0808 800 0303

Join the Research Support Network:

https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-research-support-network

https://www.parkinsons.org.uk/research/race-equality-research

Join the Black, Asian, Arab and Mixed Heritage Support Group:

https://localsupport.parkinsons.org.uk/activity/black-asian-arab-and-mixed-heritage-support-group-meeting

Listen to Will I Die from Parkinson's:

https://www.2parkiesinapod.com/podcast/episode/1e8a6b26/will-i-die-from-parkinsons

https://ourfuturehealth.org.uk/

In this episode, we’re joined by specialist Parkinson’s nurse Becky Heslop, who recently starred in a film highlighting the vital role nurses play in supporting people living with Parkinson’s.

Becky talks us through what a Parkinson’s nurse actually does, from being a key part of your care package, to offering advice, reassurance, and hands-on treatments. We hear about some of the more practical – and sometimes challenging – aspects of her work, including giving Botox injections and helping people manage the Produodopa pump.

Please consider donating to the Nurse appeal at:

https://www.parkinsons.org.uk/donate/donate-great-care

We’ve hit a huge milestone – 50 episodes, and 2 Parkies in a Pod is celebrating in style!

In this special edition, we take you back through some of our most memorable moments:

✨ The inspiring Matt Eagles, who’s been living with Parkinson’s for more than 50 years, shares how he stays positive.

✨ Professor Tom Foltynie answers your questions at Queen Square and explains how to prepare for your consultation.

✨ From Episode 20, Canadian broadcaster Harry Forestell tells us what it was like to meet Michael J Fox.

✨ Dementia expert Rimona Weil on why she fell in love with neuroscience.

✨ The Top 10 symptoms

✨ Plus - The moments when things didn’t go quite to plan – including that fit of the giggles!

This week on 2 Parkies in a Pod, we’re joined by television producer and editor Rob Burley. Rob has worked with some of the biggest names in political journalism – from Jeremy Paxman to Andrew Marr, Laura Kuenssberg to Emily Maitlis.

Diagnosed with Parkinson’s in 2021, Rob talks openly about his journey and the challenges of balancing a demanding career with the condition. We also discuss his fascinating book, Why Is This Lying Bastard Lying to Me?, which explores the history of political interviewing and shines a light on how the toughest questions shape public life.

Send us your voice notes at hello@2parkiesinapod.com

Rob's Blog:

https://unherd.com/2025/07/you-cant-hide-parkinsons-forever/

Rob's Book:

https://open.spotify.com/show/7KLaSpzKqS5x9fKKgLFMQj?si=ef8c8e47cf804fa7&nd=1&dlsi=80ebdbbb704d4d14

https://www.amazon.co.uk/Why-This-Lying-Bastard-Searching/dp/0008542481

Balls to Parkinson's Bike Ride:

https://ballstoparkinsons.co.uk/

Parkinson's UK Brain Bank:

https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank

Parkinson's UK Walk for Parkinson's 7th Sept :

https://events.parkinsons.org.uk/event/walk-parkinsons-battersea-park/home

Walk to Cure Parkinson's 28th Sept:

https://cureparkinsons.org.uk/get-involved/walk-to-cure/

Par-Con 2025 Parkinson's UK Community Convention 24/25 Oct:

https://www.parkinsons.org.uk/get-involved/par-con

Please rate, review & subscribe if you enjoy the show.

Dave and Kuhan take you behind the scenes of the Parkinson’s UK Brain Bank at Imperial College London. They witness an incredible brain dissection led by a world-class neuropathologist — an unforgettable experience.

Have you ever wondered how you can make a real difference to Parkinson’s research? Find out how you can donate your brain to science and help unlock the mysteries of this condition.  

https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank

http://imperial.ac.uk/brain-bank

brainbank@imperial.ac.uk

Find out if Kuhan’s DBS surgery has improved his tennis as the boys play their first post-surgery match….

Par-Con 2025 the Parkinson’s UK community convention, is our free, 2-day event for the Parkinson's community. Join us in-person or online for talks, activities and to connect with others. 

https://www.parkinsons.org.uk/get-involved/par-con

AMAZING THINGS 

Adam Roberts the author of The Amateur Gourmet has gone public about his Parkinson’s … 

Every Silver Lining Has a Cloud - by Adam Roberts

https://amateurgourmet.substack.com/p/every-silver-lining-has-a-cloud

Jimmy Choi American Ninja

https://www.facebook.com/share/v/1ALSbWFLiW/?mibextid=wwXIfr

And we take a moment to pay tribute to fellow Parkie and rock legend Ozzy Osbourne, whose honesty and grit continue to inspire.

hello@2parkiesinapod.com

In this powerful episode, Kuhan takes us on an intimate journey through his life-changing deep brain stimulation (DBS) operation. From the moment he arrived at the hospital, through the intense experience of surgery, to the emotional moment the device was switched on. He opens up about the challenges, the breakthroughs, and how life has transformed since the procedure. It’s an honest, moving story of resilience, hope, and the impact of modern medicine.

Watch Kuhan's moment of DBS switch on

DBS Quiet Miracle Article

⁠Parkinson's UK DBS information⁠

⁠Stay Cool USB Fan

This episode is a big one for us. Kuhan is preparing to undergo Deep Brain Stimulation, or DBS — a life-changing surgery that could help manage his Parkinson’s symptoms. Joining us is a very special guest: a member of the surgical team who’ll be operating on his brain.

Harith Akram is a Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery at Queen Square, London.

He tells us how he escaped from Saddam Hussein's regime in Iraq, started medical school at 16 and invented the equipment that’s going to drill a hole in Kuhan‘s head!!

He also tells us what to expect when you’re having deep brain stimulation.

It’s personal, it’s powerful… it’s 2 Parkies In A Pod

Links:

Parkinson'a UK DBS information

Stay Cool USB Fan

Kuhan Hope Message

We can be Weirdos Podcast with Harith

Balance in Parkinson’s is a complicated thing but the good news is, help is on hand. We talk to expert neuro physiotherapist Laura Douglas, co-founder of Neuro Heroes and an expert in gait and balance. An informative chat, packed full of great advice to make your Parkie life a little easier.  

hello@neuroheroes.co.uk

www.neuroheroes.co.uk

Neuro Heroes live classes over Zoom are for people based in the UK. People outside of the UK can follow along to these pre-recorded videos made with Parkinson's UK:

Low intensity workout with Neuro Heroes

Moderate intensity workout with Neuro Heroes

High intensity workout with Neuro Heroes

2 Parkies in a Pod Spotify playlist:

https://spotify.link/J7GX0gC40Tb 

Walk with Me by The Wells:

https://thewellsparkinsons.bandcamp.com/track/walk-with-me

An Interesting Detail by Kimberly Campanello:

https://guardianbookshop.com/an-interesting-detail-9781526680594/

Mime Over Mind by Barbara Salsberg Mathews:

https://mimeovermind.com/videos/

The boys are back after a short break. Kuhan shares his sleep secrets, Dave takes a tumble, Ryan Reynolds speaks out about his dad‘s Parkinson’s and Steph has a positive take on sleeping in separate bedrooms, plus the pain of a PIP review.

AbbVie sleep video

https://youtu.be/1S6GauUXVec?

PD nurses attend St James palace event

https://www.bbc.com/news/articles/c2lzzjgvvw1o

Cure Parkinson’s ‘Question of Time’

https://youtu.be/bSyVviLug7c

Parkinson’s UK PIP Information

https://www.parkinsons.org.uk/information-and-support/personal-independence-payment-and-adult-disability-payment

Parkinson’s UK PIP Campaign

https://www.parkinsons.org.uk/news/what-latest-disability-support-reforms-mean-people-parkinsons

Pavilion Dance South West

https://www.pdsw.org.uk/

Lee Silverman Voice Treatment

https://www.parkinsons.org.uk/information-and-support/speech-and-language-therapy

Tom Finch Fundraising

https://www.justgiving.com/page/tom-hulme-1734256927282?utm_medium=FR&utm_source=CL&utm_campaign=015

Sports Parkinson's

https://www.sportparkinsons.com/

Ryan Reynolds Hallucinations video

https://www.moretoparkinsons.com/

Parkinson’s UK Helpline 0808 800 0303

hello@2parkiesinapod.com

Sleep problems can be a major issue when you have Parkinson’s. This week we talk to Jane Alty a professor of neurology at The University of Tasmania, Australia. She’s an expert in Parkinson’s sleep disorders. Her goal is to transform the brain health of adults globally - through research to detect the critical earliest stages of degenerative brain disorders.

She also reveals whether she thinks AI will solve the Parkinson’s conundrum.

Also this week.. The boys are full of the joys of spring, Kuhan nearly gets run over, Dave does a rap

And Hamming it up…. How a piece of Donald Trump ended up in a sandwich!

Sleep & Parkinson's

In this episode we head to Scotland and the Centre for Regenerative Medicine, University of Edinburgh. We chat with Professor Tilo Kunath one of the world’s leading experts in stem cell research. The hope is that one day, implanted cells can reverse Parkinson’s. Just how close are we to that elusive cure? What’s happened to the people who’ve been given stem cells? How freezing cockroaches in his mum’s fridge kicked off his scientific career…

Getting Involved in Research

https://www.parkinsons.org.uk/research/get-involved-research

Deep Brain Stimulation

https://www.parkinsons.org.uk/information-and-support/deep-brain-stimulation

Dave’s new shoes 

https://www.nike.com/gb/easyon

Amazing Things

Ozzie Osbourne / Black Sabbath mega gig

Ukulele playing Peter

Aloha to Island living Lisa on Insta

In this episode, Dave and Kuhan explore the differences between men and women when it comes to Parkinson’s.

We hear from Clare Bale (associate director of research at Parkinson’s UK), Dr Clare Lehman (a General Practitioner who was diagnosed aged 37) and Jo Tosh (a retired nurse and star of the award winning DBS and Me series).

Together we discuss the unique challenges that women face with Parkinson's including getting diagnosed, the impact of hormonal changes and medication-related dyskinesia.

We also have a special announcement about our new partnership with Parkinson's UK.

People do amazing things:

The Parkinson’s raver

https://www.bbc.co.uk/news/articles/cp3j988jkwno

Judo for  Parkinson's

https://www.bbc.co.uk/news/articles/czepkeexw4xo

Walk for Parkinson's 2025 is now open for sign ups!

https://events.parkinsons.org.uk/event/walk-parkinsons/home

A letter to my newly diagnosed Parkinson’s self

https://www.parkinsons.org.uk/information-and-support/your-magazine/stories/letter-my-newly-diagnosed-parkinsons-self

www.2parkiesinapod.com

We’ve reached a milestone on the podcast, our 40th episode, so we thought we’d celebrate with you the listeners.  We dip into the mail bag and share some of your Parkinson’s stories.  

Plus Dave walks into a tree, Kuhan reveals who inspired him to stay out until one in the morning dancing and drinking tequila and hear about a real life STAR of the community -  a young woman who travelled half way around the world to share her experiences of the condition.

Brisk walking tunes 120 Beats Per minute

Propranolol for Parkinson's

Dave Clark Independent article

AMAZING THINGS

Springsteen raises $ for Parkinson’s

Why 2 parkies in a pod loves Leah Forster

The press upping pig farmer with Parkinson’s

The pitch perfect Parkie (Parkinson's UK)

We take a trip to Parkinson’s UK’s new office, learn about their recent brand refresh and talk to the boss Caroline Rassell. She gives us the low down on all things Parkinson’s UK, shares her plans for the year ahead and reveals how Parkinson’s has got more personal for her recently. 

Parkinson UK helpline on 0808 800 0303

https://www.parkinsons.org.uk/

https://www.parkinsons.org.uk/get-involved

https://techguide.parkinsons.org.uk/

People With Do Amazing Things

Michael J Fox award

https://www.bbc.co.uk/news/videos/c2dx6gd0k66o

Kayaking scientist  Guillaume Brachet …

https://parkinsonseurope.org/2024/12/13/person-with-parkinsons-is-developing-new-drug-

 The Parky Blinders - Boxercise classes  

https://www.bbc.co.uk/news/articles/cn9gy4vqvrvo

In this festive episode we talk to illustrator, mime artist and educator Barbara Salsberg Mathews @SalsbergMathews She’s the perfect person to put you in a great mood for 2025. Barbara has created and illustrated an amazing book about  What Parkinson’s Feels Like' with contributions from the Parkinson’s community around the globe.

What Parkinson's Feels Like (free ebook)

What Parkinson's Feels Like (Amazon)

Parkinson's Europe

Parkinson's Canada

PD Avengers

Mime Over Mind

Paradoxical Kinesia

⁠If art were a drug ⁠

Walk to reduce anxiety

Doing Amazing things ..

The story of one man and his dog

Michael J. Fox CNN Heroes Legacy Award

Larry Gifford honored with King Charles III Coronation Medal — PD Avengers

Meet the amazing Joy Milne who has the nose to diagnose Parkinson’s.

She first noticed the smell of Parkinson's on her husband Les. Years later a chance encounter made her realise that she could smell Parkinson’s on other people too.

Find out how her superpowers have changed the face of diagnosis, how scientists are using this amazing discovery and what Parkinson’s smells like.

Plus joy tells us  the famous t shirt story about how the nose really did diagnose…

The Woman who can smell Parkinson’s BBC Documentary

Audrey’s 2025 Calendar: Dawn Diaries from Orford Quay

Ellie PD Mama Youtube

John Stapleton Good Morning Britain

www,2parkiesinapod.com

In this special live video episode Dave and Kuhan chat to one of the world’s leading Parkinson’s experts, Bas Bloem, about living well with the condition. 

We talk about everything from exercise to cannabis, dystonia to diet and how some people get “chemical creative”  when using Parkinson’s medication. Plus the audience tell us what activities make them feel like they don’t have Parkinson’s.

This podcast was recorded live in front of a large audience at Parkinson UK’s Parcon conference at the Royal Armouries Museum in Leeds.

We hope you enjoy!

For the second year running Dave and Kuhan join a Walk for Parkinson's at London's Battersea Park, hosted by Parkinson's UK.

Along the way they hear from Geoff, Ruth, Matt and his lovely family about diagnosis, the importance of exercise and tips for living well with Parkinson's. They also bump into volunteer steward Tara who tells them about her promising work in gene therapy.

Dave has his annual neurologist appointment, tells us about his new Parkinson's pants (!) and rummaging around TK Maxx.

Kuhan shares his secret for managing dystonia pain, explains his chemical rollercoaster and comes up with a new jingle for the podcast!

Show links

www.2parkiesinapod.com

hello@2parkiesinapod.com

@DaveClarkTV

@morethanatremor (Kuhan)

Walk for Parkinson’s (UK)

Cure Parkinson’s October Walking Challenge

BBC Miracle Cure Documentary

Chefs Pants

Beech band

Spotlight

Bradford Neuro Rehab

Sign up for Parcon 2024

The boys are back after a summer break. Find out what happened when Kuhan went  “Med free” for the first time in 11 years as he contemplates major brain surgery.

Dave talks about the challenges of a long haul flight to Vietnam, getting caught in a typhoon and whether you should celebrate your birthday!

This week the 2 Parkie’s are joined by Nicola Wydenbach, a classically trained and experienced vocal coach. In 2014, she started working with people living with Parkinson's using singing as tool to help address some of the symptoms. Clinical studies have shown that regular singing can improve vocal volume/quality and breathing issues.

Singing Links

http://www.nicolawydenbach.com  

http://www.medising.co.uk

Online Sessions(Friday 12.30 twice a month)

Singing app

Kings College London session (Tuesday 11.30 twice a month)

Trinity Laban session (Friday 10.30 twice a month)

People With Parkinson’s Do Amazing Things

Poets with Parkinson’s

Parkinson's comic book

Charlie’s at the Cairns Cup (golf)

Gary’s challenges

Peckham to Penzance for Parkinson’s

Register for Parcon 2024

Organised by Parkinson's UK, Par-Con is the free 2-day in-person and online event for the Parkinson's community to hear from expert speakers, connect with others and learn more about living well with Parkinson's

https://www.parkinsons.org.uk/research/par-con-2024

This week we speak to retired PE teacher, Christine Stanley. Christine has always loved being active and despite being diagnosed with cancer and then Parkinson's she hasn't lost her passion for life. She's recently become a Nordic walking instructor and credits it with giving her a sense of hope. Christine shares her tips on positivity and battling against the odds.

Hosts

@DaveClarkTV

@morethanatremor (Kuhan)

Guests

@Stanner96187706 (Christine)

Links

Man uses sculpting as therapy for Parkinson’s

Jagdeep's Annapurna Trek fundraising

British Nordic Walking

Parkinson's Rugby article

DBS couple

Decathlon Nordic walking poles

This week the boys enter the world of dance! Not the opulent, spray tanned, sequin clad Strictly, but the life changing benefits of the dance for Parkie’s.

We chat  to Helen Gould who’s just been awarded an MBE for "charitable services to people with Parkinson’s"! 

Helen is the co-founder of LPM Dance, which has developed the transformational Neuro-Moves programme to help people with Parkinson’s.

We also chat about how lessons from Bruce Springsteen can improve your Parkinson’s.

Kuhan says goodbye to his Parkinson’s nurse and we talk about the mental impact of getting a blue badge..

Show Links

https://lpmdance.com/

Neuro-Moves Rossendale- Mondays 2pm-3.15pm

Neuro-Moves Preston- Wednesday 2pm-3.15pm

Neuro-Moves online- Thursday 12.15-13.15pm

Booking link: https://lpmdance.com/classes
Contact Helen at lpmdanceforhealth@gmail.com for more information

Colin Wells - Walking for Parkinson’s

Alex Echo - One Wave At A Time

Ellie Finch - @PdMama

Eirwen - Sparky Samba

Are you struggling to get yourself heard because your voice is quiet, mumbled or you just cant get the words out?

Are your meds getting stuck in your throat?

Do you dribble or have a dry mouth?

We may be able to help!

This week the boys catch up with Tim Grover, consultant speech therapist in the movement disorders department at University College London.

He tells us why people with Parkinson’s suffer speech problems, offer some tips on swallowing and explains the right time to seek specialist help.

More information can be found on the Parkinson's UK website:

Speech & Communication problems in Parkinson's

Eating, Swallowing & Saliva control in Parkinson's

We also reflect on the impact of our last episode about life expectancy with Parkinson’s.

And doing AMAZING things this week .. A Parkie swimming the channel, the Premier League referee going public about his diagnosis, and a Parkie taking part in the 2024 Olympics.

We hope you enjoy it…

This week we talk about the “The Elephant in the room“ - mortality rates amongst people with Parkinson’s. Our special guest is Professor Bas Bloem, one of the world’s leading Parkinson’s experts. Bas has written a paper on the subject of life expectancy with the condition.

In recognition of his outstanding work in the field of Parkinson’s, the professor has recently been knighted in his native Netherlands. He’s one of the most engaging and eloquent speakers in the Parkie world.

https://www.parkinsonnet.com/about-parkinsonnet/our-team/

Please don’t be scared to listen to this episode, we also talk about how to stay strong for long with the condition using exercise, diet and a positive mindset.

Also in 'People with Parkinson's Do Amazing Things' we feature Sean Stillman's BBC radio documentary 'Parkinson's and Me' where he reflects on his condition and his life since his diagnosis.

And Dave reflects on his day out at the Cure Parkinson's Cup

https://www.instagram.com/babbelbloem/

@basbloem (Bas Bloem)

@morethanatremor (Kuhan)

@DaveClarkTV

Joining Dave & Kuhan for a game of Fact or Fiction are Claire & Simon from Parkinson’s UK who help dispel some of the common myths about Parkinson’s.

Show links

Go to 2parkiesinapod.com or reach out to us on social media 

email us at hello@2parkiesinapod.com

Parkinson’s UK Helpline 0808 800 0303

Parkinson’s UK Research Network

Parkinson’s UK Become a Member

Parkinson’s UK Information Resources Catalogue

Parkinson’s UK World Parkinson’s Day

Economist Article

Association of British Neurologists Workforce Survey

Parkinson’s Diagnosis stats

Dept of Work & Pensions Benefits Data Portal

NHS Workforce Statistics

Free Gym Membership: 

https://www.everyoneactive.com/promotion/parkinsons/

purehelp@puregym.com

Where to send your Parky smells: https://www.medicaldetectiondogs.org.uk/neurological-diseases/

In this episode Kuhan gets his tremor wired for sound, taking part in a ground breaking research study at University College London. The team created 5 unique songs from the tremors of 5 unique people with Parkinson’s. The album ‘Tremors vs Tremors’ is available to listen to on Spotify, Apple Music & Amazon… there’s even a limited edition vinyl record. All royalities are being donated to Parkinson’s UK. We’re joined by the man behind the project Dr Christian Lambert and two of the other study participants, Clare and Stephanie.

Tremors vs Tremors

https://tremorsvstremors.com/

Listen on Spotify https://open.spotify.com/album/5Q514xQ7lfQPT2s6GpT5jm?si=z-OMxr9IRYaSzWoIVrdQHA

Listen on Apple https://music.apple.com/us/album/tremors-vs-tremors-ep/1733686264

Listen on Amazon https://music.amazon.de/albums/B0CWS4RWBV?marketplaceId=A1PA6795UKMFR9&musicTerritory=DE&ref=dm_sh_RoHkhmu4xjztd3igINdcA2XcY

UCL movement disorder https://www.ucl.ac.uk/ion/research/research-centres/movement-disorders-centre/research

Parkinsons UK Research https://www.parkinsons.org.uk/research/get-involved-research

Del Amitri Parkinson’s documentary https://www.bbc.co.uk/programmes/m001x49y

Kuhan’ Blog they made a song from my tremor https://medium.com/@kuhan4/they-made-a-song-from-my-tremor-fefe7011d863

In this episode, we explore grooming and self-care.

There’s an old saying..

No matter how you feel

Get up

Dress up

Show up

Never give up

Shafaq @Dr_SF_Hussain⁠ a dentist with Parkinson’s shares her tips on mouth and tooth care

Anne Marie Booth@annieconmonkey talks ditching killer heels, Dr Martyn’s, hair and nail care.

Joe Gregory @JoeGregory100 tells us about slip on brogues and picking up a fashion bargain.

Plus doing amazing this week…

Richard Dunning, The shakey photographer @Richardpud1977

The cardigan wearing guitar playing Andrew Wright from Nottingham… @apwright

@Peacefultaino  56 year old Puerto Rican man with Parkinson’s pulling off some killer dance moves..

Stylish reading glasses at reasonable prices …

https://www.izipizi.com/ww_en

Comfortable, stylish gym, leisure clothing (pricey, but lovely)

https://vuoriclothing.co.uk

Parkinson's UK Mouth and Dental issues

This week the boys talk to Parkinson’s activist and fellow Podcaster Larry Gifford. His podcast ‘When Iife gives you Parkinson’s’ is an open and honest insight into the condition - no subject is out of bounds. Larry is also the founder of PD Avengers, a global alliance of people effected by the condition. In a wide ranging discussion we also talk about our D-Day (diagnosis) experiences, Larry's DBS journey and the impact Parkinson's has on relationships.

People with Parkinson’s doing amazing things this week includes @Markxhogben - a man living off grid in the Canadian wilderness.

In this episode the boys discuss how tech can make life a little easier for people with Parkinson’s.

From voice assistants, to messaging tips and how Siri can help you listen to your favourite podcast.

We also discuss Parkinson’s ON, a new app which aims to track symptoms, help with medication timing and generally improve your Parky life..

Plus more people with Parkinson’s doing amazing things. The man who’s rediscovered his love for playing Led Zep in the spare bedroom and a woman who’s fixed her 10 year old dishwasher…

Thanks to

Charlie Appleyard @CA_Annapurna

Helga MacFarlane @HMellMac

Kate

The Parkinson Magazine (Kuhan's article)

GMB Interview with Dave Clark

Download the Parkinson's ON app for free on your iPhone or Android

If you're enjoying the podcast please rate, review and subscribe

In this episode we speak to Professor Rimona Weil from University College London. Rimona is one of the world’s leading experts in Parkinson’s dementia.

It’s not as depressing as you might think!

She talks about ground breaking research which has discovered a link between vision and dementia, tells us who’s most at risk and whether it’s possible to prevent it! Plus how using pictures of cats and dogs can help to understand how cognition is affected in Parkinson’s.

We also talk about people’s reluctance to talk about Parkinson’s dementia…

If you want to get involved with the professor’s latest research project, which will involve at least 5 visits to London, brain scans and blood tests, you can email her: r.weil@ucl.ac.uk

https://www.parkinsons.org.uk/information-and-support/thinking-and-memory-changes

https://www.parkinsons.org.uk/research/research-blog/ask-expert/its-time-talk-about-parkinsons-dementia

Parkinsons .. Top 10 worst symptoms

In this episode @DaveClarkTV and @morethanatremor (Kuhan) discuss the most troublesome Parkinson’s symptoms. Parkinson's Europe surveyed nearly a thousand Parkie’s with fascinating results.

So what’s the number one worst symptom ? Shaking? Speech problems? Low mood?

Have a listen and find out what tops the chart….

A huge THANKYOU to @kimrobsonuk for the chart. voice over and contributors Michèle and Katy..

In this special bonus edition Kuhan and Dave join 300 people Walking For Parkinson’s at London's Battersea Park.

Parkinson’s UK host a series of fundraising walks around the UK.

Everyone walking has their own Parkie story to tell, the boys find out about a few of them…

Walk for Parkinson's

https://www.facebook.com/2parkiesinapod

https://www.instagram.com/2parkiesinpod

In this episode Dave and Kuhan talk to NHS doctor, artist and Parkinson’s campaigner Dr Jonny Acheson. Jonny was diagnosed with Parkinson's in 2016 when he was just 41.

Hear about how Bollywood dancing led to his diagnosis and what its like to work in an emergency dept with the condition.

Jonny also talks about the Jekyll & Hyde feeling when his medication is wearing off, and his campaign to let people keep their own medication during a stay in hospital.

⁠

⁠⁠@jonny_acheson

@ParkinsonsEN (Parkinson's Excellence Network)

https://jonnyachesonart.com/

@DavidAPlummer

https://shakinghandsfilm.com/film

@PhilJerky

@FreddieRoach

Canadian broadcaster Harry Forestell tells Dave and Kuhan his incredible Parkinson’s story. How he interviewed Michael J. Fox, his reaction to being outed by his daughter and how he was wide-awake whilst having brain surgery.

From secrecy to advocacy, acts of kindness and singing to extend his TV career, it's a fascinating insight into the career of a much loved and respected journalist.

Links:

@DaveClarkTV

@morethanatremor (Kuhan)

@HarryForestell

Harry's Interview with MJF

The Essay

In this episode Dave & Kuhan answer questions from listeners. They cover a host of topics from how to stay upbeat with Parkinson’s to constipation and podcasts. It’s an open and honest discussion with a few giggles along the way.

@2parkiesinapod

@daveclarkTV

@morethanatremor

This weeks People with Parkinson's do Amazing Things:

Paul Sinha

Samuel Smith

Jon Goodwin

The boys talk to Parkinson’s Yoga expert Dawn Williams. There’s growing evidence that Yoga can help with a range of Parkinson's symptoms by improving slowness, stiffness, balance, flexibility and core strength

Many people with Parkinson's also report improvements in their mood and sleep, plus benefit from the social interaction of group classes with other Parkies. Dawn explains the power of yoga and finishes with a relaxation exercise….

@DaveClarkTV

@More Than a Tremor (Kuhan)

Guests:

@Annie

https://dawnwilliamsyoga.co.uk/

People with Parkinson's do Amazing things:

Neil Russell

Roddy Forsyth

Ian O'Brien

We talk to model and presenter Linda E about her experiences with her dad, Stanley. Switching from daughter to carer.. The precious moments they spent together and the difficulties of having a parent with Parkinson’s.

We also meet film director Grant Taylor and his father Bob. Grant has released a film based on his dads battle with the condition. 'Ecstasy’ – is a short film about the experiences of a man living with Parkinson’s and his son, the film features their quest to get an ecstasy pill.. so that the father can dance with his wife at her birthday party.

Hosts:

Dave Clark @daveclarkTV

Kuhan @morethanatremor

Guests:

Linda E

Grant Taylor

And doing amazing things this week ..

Joe Wicks @thebodycoach

Milly Khan @Milly_Physio

Gary Shaughnessy @gshaug7741

Anne-Marie Booth @annieconmonkey

Gary's Sky interview

Workout for Parkinson's

Ecstasy - Parkinson's short film

Parkinson's Ecstasy article

BBC Horizon documentary

Warning - the use of Ecstasy to treat Parkinson's is not recommend

This week we talk to the wonderful Claire Bale, Head of Research, Communication and Engagement at Parkinson’s UK, to discuss their recently launched 'Research Needs You' campaign. In a wide ranging chat, we discuss:

What is research?

How can I get involved ?

Are we close to a cure?

Why are people reluctant to get involved in research?

What's sexy in research right now?

Balancing Hope

Plus - Find out how Kuhan’s shakes could be turned into a hit record!

Presenters:

Dave @DaveClarkTV

Kuhan ⁠@morethanatremor

Massive thanks to guest:

Claire Bale @ladybale

Doing amazing things this week …

John O’Groats to lands end cyclists

Neil Russell 65-year-old person with Parkinson’s. Running 1000 miles from London to #wpc2023 in Barcelona…

instagram: @neil.o.Russell

Charlotte Edwards Catwalk To A Cure

Parkinson's UK 'Research Needs You'

Massage gun (we have no affiliation with Therabody, please consult your healthcare professional where required) 

North of Scotland Parkinson’s Research Interest Group podcast

2 Parkies in a Pod ‘Research needs you’ episode

This week the boys meet David Little, a former fireman, who had a dream to run the London Marathon. David has had Parkinson’s for nearly 20 years,  but he’s determined “Mr P” won’t defeat him.

David surrounded himself with a team of experts to try and get him across the finish line. 

Could he fulfil his dream, or would the 26.2 mile course defeat him?

Show Links

Dave @DaveClarkTV

Kuhan ⁠@morethanatremor

David Little (marathon man) @helshubby

Maria Lewis www.reachyourpeakonline.com

Katherine Baker @KBakerPhysio

Karen Weir @RunwithKaren

David's Fundraising

Exercise Videos

This week we’re joined by the inspirational and entertaining Matt Eagles who was diagnosed with Parkinson’s in 1975 at the age of 7!

Matt talks about his incredible life going through major milestones with Parkinson’s, from passing his driving test, starting work and getting married.

If you’re struggling to get your head around a Parkinson’s diagnosis, Matt’s wisdom and optimistic energy will help you.

Links

@DaveClarkTV Dave Clark

@morethanatremor Kuhan

@MattEagles Matt Eagles

@SalsburgMatthews Barbara Salsburg Matthews

@JohnRoc92928019 John Roche

@Gaynorzone Gaynor Edwards

Matt's wing walk video

2 Parkies in a Pod are joined by physiotherapist & Parkinsons specialist, Julie Jones. Topics range from exercise prescriptions, balance & self care. Plus hear Dave’s new song …with the Beatles!

Hosts:

Dave Clark

Kuhan

Guests

Julie Jones

Helga Macfarlane

Matt Eagles

Gavin Mogan

Nathan Smith

Links

Julie's Podcast

North of Scotland Parkinson's Research Interest Group

Parkinson's UK Exercise Hub

Nathan's Three Peaks Challenge

The thought of travelling with Parkinson’s fills many people with dread and fear. This week, Dave, Kuhan and three guests, share their tips and hacks for stress free travel. They talk about driving, managing medication on the go, how to get through airports hassle free and going to the toilet on long flights. Plus more 'people with Parkinson’s do amazing things', including the TV presenter who turned off his DBS live on air, a dancing Parkie inspiring others and one man who used a particular type of exercise to turn the tables on the disease.

Presenters:

Kuhan @morethanatremor

Dave @DaveClarkTV

Guests:

Charlie @CA_Annapurna

Annie @annieconmonkey

People With Parkinson's Do Amazing Things:

@HarryForestell https://www.cbc.ca/news/canada/new-brunswick/first-person-harry-forestell-parkinsons-dbs-1.6752210

Barbara the Dancing Queen @SalsbergMathews

Scott Hanley https://www.bbc.co.uk/news/uk-northern-ireland-64401274

Useful Links:

QEF (driving) https://www.qef.org.uk/service/mobility/

Freedom Pass https://www.londoncouncils.gov.uk/services/freedom-pass/disabled-persons-freedom-pass

Motability https://www.motability.co.uk/

Sunflower Lanyard https://hiddendisabilitiesstore.com/

Bamboo socks https://www.sockshop.co.uk/featured/bamboo

There’s so much more to Parkinson’s than just the motor symptoms. From coping with the initial diagnosis to the ongoing challenges with mood and motivation. This week Dave and Kuhan discuss their own mental health challenges with a leading psychologist.

Dr Jennifer Foley is a Senior clinical neuropsychologist at The National Hospital for Neurology and Neurosurgery. She guides us through how to live a positive life with Parkinson’s and how talking therapies can help navigate feelings of anxiety, depression, fatigue and apathy.

Plus there’s the latest on the lads on going tennis battle, and more people with Parkinson’s doing amazing things.

Kuhan @morethanatremor

Dave @DaveClarkTV

Dr Jennifer Foley

Parkinson's UK Mental Health

British Association for Counselling and Psychotherapy 

People With Parkinson's Do Amazing Things:

Rory Cellan-Jones @Rusksin147

Larry Gifford @Giffordtweet

When Life Gives You Parkinson's @parkinsonspod

@PDAvengers

Phil Stutz - TheToolsBook

Netflix- Stutz

How do you tell people you have Parkinson’s? When's the right time to tell friends, family and work? In this episode Dave and Kuhan talk about their decisions to “come out” and the reactions they received… 

They’re joined by Ellie who struggled to even say the word Parkinson’s, Joe tells us about how tough if it was to tell his son..David Sangster talks about coping with work and family life after being diagnosed age, 29 and Martin discusses why he went public about his diagnosis straight away.

We round of the year with a special tribute to all those that have taken part in our 10 episodes in 2022. More to come in 2023! 

CONTRIBUTERS

@DaveClarkTV

@MoreThanaTremor (Kuhan)

@MartingTurner

@elliejfinch PDMama Blog

@JoeGregory100

BOOKS

Michael J Fox, Lucky Man

Henry Fraser -Little big things - The Inspirational Memoir of the Year

Victor Frankel - Man's Search For Meaning: The classic tribute to hope from the Holocaust 

Dave’s coming out article

Kuhan's parkinson's grieving blog

WEBSITE

www.2parkiesinapod.com

In this special episode, the boys take the podcast on the road and visit the world renowned National Hospital for Neurology & Neurosurgery in London. They pose your questions to one of the leading lights in the Parkinson’s world, Professor Tom Foltynie.

In a revealing hour long chat, they go behind the scenes and discuss the challenges of breaking the news of diagnosis, share tips on how to prepare for appointments, and discuss the ‘white coat’ syndrome. We also hear about emerging treatments and look to the future of Parkinson’s health care.

'People with Parkinson’s Do Amazing Things’ honours Michael J Fox for receiving an honorary Oscar, a festive Parkinson’s Panto and a poet who's put together a heartwarming book of Christmas poems

Plus Dave introduces Kuhan to the pee key !

Show Links

@DaveClarkTV

@morethanatremor (Kuhan)

@TomFoltynie (The professor)

Asking the questions

@cwells25br(Colin Wells)

@justmemelanie_k (Melanie Kroon)

@djclairemj (Claire James)

@Garen_1927 (Garen Williams)

People with Parkinson's do Amazing Things

@RobSummerfield1 Poet - A Parkinson‘s Christmas

Northern Lights Parkinson's Panto

Other

Pee Key access to 9000 disabled toilets

We all want a cure for Parkinson’s, but only 4% of people with the condition take part in research today..  

In this episode we look at some of the barriers and benefits of taking part in research. We dispel some of the myths, share our own experiences of taking part in research, offer tips on how to get involved, and hear from some of the people on the front line of Parkinson’s research.  

We also ask ..How close are we to finding that elusive cure? 

And in our ‘People with Parkinson’s do Amazing Things’ segment, we meet the man driving the length of Africa in a very unreliable VW van and hear about a remarkable feat by a team of Parkinson’s swimmers.  

Show links 

@morethanatremor (Kuhan)
@DaveClarkTV
@HelenMatthewsQ

www.2parkiesinapod.com

Hidden disability lanyard

Get involved in Research
Cure Parkinson’s

PD Frontline

Accelerating clinical trials
Parkinsons UK Research

Parkinson's Hope List

People with Parkinson’s do Amazing Things
Guy Deacon - Freetown to Capetown podcast

Swim for Parkinson’s

The cost of Parkinson’s to the global economy is estimated to be in the 100s of billions of US$ every year.

In this episode Kuhan and Dave discuss the financial implications of a Parkinson’s diagnosis, from giving up work, the health care costs, and shaking off the stigma of claiming state benefits. John MacPhee tells us how, with the right planning, he was able to retire in his 40s, and Laurel Miller talks about the mental health anguish she went through claiming personal independence payments (PIP).

Plus - Doing a spring clean of your personal finances, hear about the astronaut with Parkinson’s who defied to odds to go on a space mission, and how ping-pong enabled one man to get his guitar skills back.

Show links

@morethanatremor (Kuhan)

@DaveClarkTV

@J0HN_MacPhee (John)

@NenadBach I love ping pong

https://dawnwilliamsyoga.co.uk/

PIP claim line (UK) - 0800 917 2222

Parkinson’s UK PIP

University College of London Cost of Parkinson’s study

Parkinsons UK Cost of Living with Parkinson’s

Fox foundation - Study Finds Parkinson’s $52 Billion Economic Burden

Parkinson’s Better Sleep

People with Parkinson's often find it hard to sleep. In this episode Kuhan and Dave discuss their own sleep problems from restless nights, to dreams about being chased by acid throwing robots! With some top tips on how to improve the number of hours you spend in the land of nod.

This week the boys are joined by Emma Stubbs and Joe Gregory, who reveal their own sleep struggles and Emma Lawton is sleepless in Seattle with a neuro sleep specialist Nate Watson.

A new episode segment ‘People with Parkinson’s Do Amazing Things’ highlights amazing achievements from the Parkinson’s community, including one from DJ legend David ‘the kid’ Jensen

Plus - find out how one of the boys ended up buying a massive bed from comedy legend Kenny Everett..

Show links

@DaveClarkTV

@morethanatremor (Kuhan)

@JoeGregory100

@dopaminetheft (WhoStoleMyDopamine - Emma Stubbs)

@ems_lawton (Emma Lawton)

@SleepDocWaston (Nate Watson, Prof of Neurology Uni of Washington School of Medicine)

@davidkidjensen

Parkinsons UK Sleep Tips

How the right exercise and diet can improve your Parkinson’s wellbeing 

Regular physical activity is the only thing that’s been proven to slow the progression of Parkinson’s. In this episode Kuhan and Dave get advice from a Parkinson’s physiotherapist, a specialist yoga teacher, a dietician who has Parkinson’s, and a man whose life has been transformed by walking football…. Enjoy

Useful Bits

@DaveClarkTV 

@morethanatremor (Kuhan)

Joanna Eastough Parkinson’s Physio @JCPDPhysio 

Paul Nicholls @BoyParki

Dawn Williams Parkinson's Yoga Teacher 

Richelle Flanagan Dietitian @RichelleFlan 

Parkinson's UK Exercise Framework

The great Spanish artist Salvador Dalí produced some of his finest work after being diagnosed with Parkinson’s, how? This week we look at the link between Parkinson's and Creativity. Is it the medication, the condition itself or perhaps it’s the new perspective a Parkinson's diagnosis gives us..  We hear from wildlife photographer and filmmaker David Plummer, who reveals how this phenomena has benefited his work and from Martin who tells us how Parkinson’s has helped him discover poetry. Following his recent Glastonbury experience, Barrie also gives us his top tips for attending music festivals. The boys also tell us how Parkinson's has heightened their passion for music and photography

Useful Bits 

@DaveClarkTV 

@morethanatremor (Kuhan)

@DavidPlummerimages

@AlexEcho1 

@ShakeyBloke (Barrie)

@TheShakenWord (Martin)

www.parkinsons.art

www.epda.eu.com/get-involved/parkinson-s-creativity

www.parkinsons.org.uk/information-and-support/your-magazine/stories/creativity-and-me

www.lisahinds.com

This week the boys are talking about Parkinson’s medication. Do you know your agonist from your elbow ? Were you handed a packet of pills and told to get on with it?

We try to debunk the myths and sort out your dilemmas about the pills and potions that keep you going on a daily basis.

There’s an all star cast of people with Parkinson’s , talking about their dedication to medication.

@DaveClarkTV

@morethanatremor (Kuhan)

@HMellorMac (Helga)

@Dr_SF_Hussain (Shafaq)

@GfBoyle1 (Gary)

@MattEagles

For more information on medication you can visit the Parkinson's UK website:

https://www.parkinsons.org.uk/information-and-support/parkinsons-drugs

💊 💊 💊

In this episode Kuhan and Dave take part in the ‘Parkinson’s Unlucky Dip’ of symptoms and demonstrate how, from more than 40 different symptoms, some are more obvious than others. From loss of smell and anxiety, to fatigue and even losing the ability to whistle! This week they’re joined on the show by fellow Parkie’s Annie, Mark and Simon

show links

@morethanatremor (Kuhan)

@DaveClarkTV

@scg1010 (Simon)

@annieconmonkey

Annie’s blog https://link.medium.com/oGzsvC9i2ob

If you want to know more about Parkinson's, or how to cope with chronic illness, then this is the Podcast for you. Between them Clarky and Kuhan have been living with Parkinson’s for more than 20 years. They chat openly and honestly about the challenges and even the benefits of living with the condition. In this first episode, they're joined by others living with Parkinson’s. A doctor, a nurse, and a businessman and founder of Sport’s Parkinson’s, who all give their top tips on living a good life after diagnosis.

SHOW LINKS

parkinsons.org.uk

cureparkinsons.org.uk

@Sportparkinsons (Charlie)

@morethanatremor (Kuhan)

@DaveClarkTV

@Jonny_Acheson

@AddisonClare