The Parkinson's Podcast

Learn more about Parkinson's and find support: https://dpf.org

In part two of this conversation from our Live Well Today webinar series, Davis Phinney Foundation's Chris Krueger and Richelle Flanagan, a registered dietitian living with young onset Parkinson's, cover gut motility, including constipation, an under-recognized pelvic floor problem, and gastroparesis, address the dairy question, and explain why the Mediterranean diet has the strongest research support for people with Parkinson's. The conversation also covers sugar and insulin resistance, probiotics, alcohol, and how to eat well without guilt when things don't go to plan.

Richelle Flanagan is a registered dietitian with over 20 years' experience. She was diagnosed with Parkinson's in 2017, when she was 46, after noticing symptoms while 3 months pregnant with her daughter. In addition to her interest in diet and nutrition, she is passionate about the unmet needs of women with Parkinson's. She is a co-founder of the Women's Parkinson's Project and My Moves Matter, a digital health app to meet the specific needs of women living with Parkinson's.

Learn more about Richelle's work at https://www.mymovesmatter.com

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about Parkinson's and find support: https://dpf.org

In part one of this two-part conversation from our Live Well Today webinar series, Davis Phinney Foundation's Chris Krueger sits down with Richelle Flanagan, a registered dietitian living with young onset Parkinson's, to discuss how protein interacts with levodopa and why meal timing affects how well your medication works, which key nutrients people with Parkinson's are most commonly deficient in, and why getting your levels checked matters. The conversation also covers iron and magnesium timing, protein redistribution, intermittent fasting, and fueling for exercise and fatigue.

Richelle Flanagan is a registered dietitian with over 20 years' experience. She was diagnosed with Parkinson's in 2017, when she was 46, after noticing symptoms while 3 months pregnant with her daughter. In addition to her interest in diet and nutrition, she is passionate about the unmet needs of women with Parkinson's. She is a co-founder of the Women's Parkinson's Project and My Moves Matter, a digital health app to meet the specific needs of women living with Parkinson's.

Learn more about Richelle's work at https://www.mymovesmatter.com

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about Parkinson's and find support: https://dpf.org

Although a tremor is the most well-known symptom of Parkinson's, a tremor may not be the earliest symptom. Symptoms like loss of smell, constipation, acting out dreams, anxiety, and changes in handwriting can show up years before a diagnosis. Cognitive neurologist Dr. Jeffrey Maneval joins Chris Krueger to walk through the most common early signs, why Parkinson's is so often confused with conditions that mimic it, and the tests that can bring clarity, from sleep studies and DaTscans to skin biopsy and genetic testing.

You don't have to wait for a formal diagnosis to start treating symptoms. Dr. Maneval discusses how early interventions, including physical therapy, Parkinson's boxing, voice therapy, and mental health support, can help you live well today, even before you have a diagnosis.

Dr. Jeffrey Maneval is a board-certified neurologist at MaineHealth specializing in cognitive disorders, including dementia, Alzheimer's disease, and Parkinson's disease. As Director of Cognitive and Behavioral Neurology, he is dedicated to advancing patient care, education, and research to improve the lives of people living with neurological conditions.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

This episode is sponsored by CND Life Sciences, the developer and provider of the Syn-One skin biopsy test.

Learn more about Parkinson's and find support: https://dpf.org

In this episode of the Parkinson's Podcast, we welcome Dr. Abhi Mahajan and two retired physicians living with Parkinson's, Doug Redosh and Stan Livingston, for a discussion about what's missing in current Parkinson's treatments, how the next generation of treatments may help, and how people with Parkinson's might approach emerging treatments as they become available.

This episode is sponsored by AskBio.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about Parkinson's and find support: https://dpf.org

Intimacy, in all its forms, doesn't disappear with a Parkinson's diagnosis, but it does change. In this episode, Dr. Kelly Rees joins Chris Krueger for a candid conversation about staying close when Parkinson's changes your body, your self-image, and your relationship. They talk through what to do when touch becomes unpleasant, how to navigate mismatched desire without pressuring each other, impulse control changes related to dopamine agonists, and how couples stay connected when symptoms mean sleeping in separate beds. Whether you live with Parkinson's or care for someone who does, Dr. Rees's closing advice holds the whole conversation: don't give up on yourself.

Kelly Rees, PhD is a board-certified therapist who specializes in intimacy, relationships, and sexual wellbeing in the context of Parkinson's. Dr. Rees has 15 years of clinical experience working with adults and couples, and she co-developed a program offering free intimacy and relationship classes to the Parkinson's community. Her work focuses on how Parkinson's symptoms, medications, body changes, and shifting roles can affect desire, connection, and communication, and on helping individuals and care partners adapt in ways that support quality of life and emotional closeness.

This conversation comes from the Davis Phinney Foundation's June 2026 Live Well Today webinar. Watch the full webinar video here: https://youtu.be/G6c7SQnHrLs

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter

Learn more about Parkinson's and find support: https://dpf.org

For many people with Parkinson's, speech and swallowing issues are among the more difficult symptoms of Parkinson's. Having speech and swallowing challenges can be isolating and lead to complications like aspiration.

In this episode of The Parkinson's Podcast, listen in as Kevin Lockette, Neal Tomita, and Cheryl Lippman describe their experience with the Harmonica Parkinson's Project and how playing the harmonica can help people with Parkinson's improve their speech and swallowing while also connecting with their community.

For more about the Harmonica Parkinson's Project visit https://www.harmonicaparkinsonsproject.com/

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about Parkinson's and find support: https://dpf.org

In this episode of the Parkinson's Podcast, Chris Krueger talks with Linda English, David Dietz, and Rachel Ritter about cycling on gravel roads while living with Parkinson's.

This podcast was produced in Partnership with Dirty Free Hub, a non-profit organization that provides information about gravel cycling routes in 10 states, British Columbia, and Tasmania. Learn more about Dirty Free Hub at https://dirtyfreehub.org/.

The following is a list of equipment our guests recommended:

Dropper post for ease of stopping and starting

Rearview bike radar for safety when sharing roads with cars

A rearview bicycle mirror can be placed on the handlebars or helmet

Flat handlebars can help riders stay more upright

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about Parkinson's and find support: https://dpf.org

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Soccer and Parkinson's may not seem like an obvious connection—but for a growing number of people around the world, the beautiful game offers far more than exercise.

In this episode of the Parkinson's Podcast, Chris Krueger talks with Keith Sides about his experience participating in a Walking Soccer for Parkinson's program. Together, they discuss balance, coordination, confidence, community, and the value of trying something new after a Parkinson's diagnosis.

Whether you're a lifelong soccer fan or have never kicked a ball before, this conversation explores how finding enjoyable ways to move can support living well with Parkinson's.

Read the blog post about the Walking Soccer for Parkinson's program and find links to other resources about walking soccer: https://dpf.org/soccer-and-parkinsons

Learn more about Parkinson's and find support: https://dpf.org

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org In part three of this three-part series on Parkinson's and the senses, the panel covers vision changes like difficulty driving at night, light sensitivity, depth perception, and how DBS adjustments can affect focus. They also discuss vertigo, dizziness, and the urinary urgency that many people with Parkinson's experience but rarely talk about, including practical strategies like pre-boarding flights and planning bathroom access.

Sign up for updates on webinars, events, and resources for the Parkinson's community:

https://dpf.org/newsletter-signup

Season 7 Episode 8

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org In part two of this three-part series on Parkinson's and the senses, the panel discusses how Parkinson's affects hearing, touch, and the ability to handle busy environments. They cover brain processing sound slower, overstimulation in noisy and crowded places, proprioception and not knowing where your body is in space, the challenge of touchscreens and keypads, and how loss of dexterity has directly impacted their careers.

Sign up for updates on webinars, events, and resources for the Parkinson's community:

https://dpf.org/newsletter-signup

Season 7 Episode 7

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org In part one of this three part series on Parkinson's and the senses, Amber, Chris, Sree, Kat, Stan, Larry, and Kristi talk about how Parkinson's affects the senses we don't always think about. The panel digs into smell and taste, from olfactory hallucinations and not knowing if you smell to craving stronger flavors, safety concerns around spoiled food and gas leaks, and digestive changes that come along for the ride.

Sign up for updates on webinars, events, and resources for the Parkinson's community:

https://dpf.org/newsletter-signup

Season 7 Episode 6

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org

In the series finale of the Parkinson's Podcast Unfiltered, hosts Heather Kennedy, Kat Hill, and Chris Krueger answer audience questions, including how to handle well-meaning strangers who grab you when you're frozen or struggling to walk. The conversation turns to what they're each grateful for after years of living with Parkinson's, from the people they've met to the deeper lessons in patience, self-compassion, and acceptance. They also open up about why the podcast has become harder to sustain as their own symptoms progress. It's an honest, heartfelt farewell that captures everything this show has been about.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Season 7 Episode 5

Davis Phinney Foundation, Copyright 2026

Learn more about Parkinson's and find support: https://dpf.org

In this episode, Kat's husband Ken joins the panel to talk through the realities of planning ahead, from living trusts and hard family conversations to knowing when your plan needs to change. The conversation also takes on the language of "fighting" Parkinson's, and why both Kat and Ken have moved toward something more like partnership with the disease than battle. Along the way, the panel gets into the tension between independence and asking for help, and what honest communication actually looks like in a relationship shaped by chronic illness.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

Season 7 Episode 4

Learn more about Parkinson's and find support: https://dpf.org

In part two, Dr. Bas Bloem and Polly Dawkins tackle some of the most pressing topics in the Parkinson's community. They address sexual health, levodopa phobia head-on, share breakthrough research on intermittent hypoxia, and discuss the overlooked connection between gut health and medication effectiveness. This episode offers both cutting-edge science and practical guidance for living well with Parkinson's.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Podcast Produced by Sia Urroz, Davis Phinney Foundation

Learn more about Parkinson's and find support: https://dpf.org

In this first part of our two-part conversation, Dr. Bas Bloem and Polly Dawkins discuss why a holistic approach to Parkinson's care matters. They explore the latest evidence on exercise as a disease-modifying treatment, the critical role of supplements and nutrition, and how optimizing every aspect of your life—from sleep to stress management—can transform your quality of life. Whether you're newly diagnosed or living with Parkinson's for years, this conversation offers practical, evidence-based strategies for taking control of your care.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Podcast Produced by Sia Urroz, Davis Phinney Foundation

In this episode of the Parkinson's Podcast Unfiltered, the group is joined by a special guest to respond to a listener's question about how their relationship with Parkinson's has changed over time. Together, they talk through the different ways they have named and understood Parkinson's since diagnosis, including ideas of fighting, endurance, acceptance, and daily negotiation.

The conversation moves between personal stories, practical coping strategies, and reflections on how identity, energy, and priorities shift as symptoms progress. Rather than settling on one way of framing Parkinson's, the episode explores how those frames evolve. Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

In this episode of the Parkinson's Podcast, Chris Krueger talks with a clinical research team from University of Toronto about how the clinical trial process works, how participants can have the best experience in a trial, and why a team approach to trials is necessary and good.

In this episode, you'll hear from Dr. Alfonso Fasano, Dr. Arturo Abundes Corona, Sara Naghdlou, a clinical research coordinator with a background in biomedical engineering; and Yu-Yan Poon, a registered nurse who supports trials at the University of Toronto. This episode is sponsored by BlueRock Therapeutics.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

Occupational therapist and aging-in-place expert Carol Chiang joins us to discuss her new book, Age in Place or Find a New Space. Carol explains why meaningful interactions—not just safety—belong at the center of planning for life with Parkinson's, and how "the choices you make today become the consequences you live with tomorrow."

In this podcast episode, Carol discusses the importance of early-stage steps like decluttering and fall-prevention basics, practical visual cueing for freezing, how to break home updates into manageable pieces, and honest caregiver conversations. Carol also shares how to think about modifying a home versus considering a move, and why planning early protects both independence and connection. A grounded, hopeful conversation about creating a home that supports who you are and how you want to live.

Learn more about Carol and her work, and find her book at: https://www.EvolvingHomes.com

Explore the OT-curated home-modification resource she mentioned: Ask Samie: https://www.asksamie.com/

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

Learn more about the Davis Phinney Foundation for Parkinsons's: https://dpf.org

GUEST BIO

Carol Chiang is an Occupational Therapist and founder of Evolving Homes®, specializing in aging-in-place, age tech, and smart home solutions. With 25 years of experience, she helps individuals and families decide whether to "Age in Place" or "Find a New Space®," and supports them through the home changes required at each stage of Parkinson's.

A Certified Parkinson's Wellness Recovery therapist and former Olympic-caliber athlete, Carol teaches the importance of planning ahead, using exercise as medicine, and building habits that protect long-term independence. She consults with organizations, startups, and universities worldwide, and has contributed to AARP, the Davis Phinney Foundation, the National Kitchen & Bath Association, and international aging conferences.

In this episode of the Parkinson's Podcast Unfiltered, hosts Heather Kennedy and Kat Hill, along with Chris Krueger, honor their late friend Wayne Gilbert and explore the challenging distinction between fatigue and apathy. They offer practical advice for managing energy levels, including the counterintuitive insight that more movement can actually reduce tiredness, and share tips for grandparents navigating visits with multiple grandchildren. The conversation also tackles personal grooming struggles, with candid solutions like wash-and-go haircuts, dry shampoo, and simplified self-care routines that make daily life more manageable.

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

In this episode of the Parkinson's Podcast, learn about gene therapy for Parkinson's, including common misunderstandings and ongoing research about it.

This episode contains some technical terms and abbreviations. For your convenience, here is a short list of definitions that might be helpful.

AADC – Aromatic L-Amino Acid Decarboxylase: An enzyme that helps make dopamine (not a rock and roll band)

AAV – Adeno-Associated Virus: A harmless virus used to deliver gene therapy

CDNF – Cerebral Dopamine Neurotrophic Factor: A protein that helps keep dopamine-producing cells healthy

DBS – Deep Brain Stimulation: A surgical treatment that uses electrical signals to help control symptoms

GAD – Glutamic Acid Decarboxylase: An enzyme that helps rebalance brain circuits.

GBA – A gene linked to Parkinson's risk

GCH1 – GTP Cyclohydrolase 1: An enzyme that supports dopamine production.

GDNF – Glial Cell Line-Derived Neurotrophic Factor: A protein that helps protect brain cells

LRRK2 – A gene linked to Parkinson's risk

PARK2 – A gene linked to Parkinson's risk

PET – Positron Emission Tomography: A brain scan that shows chemical activity

PINK1 – A gene linked to Parkinson's risk

SNCA – A gene linked to Parkinson's risk

More information about Gene Therapy for Parkinson's is available here:

https://davisphinneyfoundation.org/blog/gene-therapy-parkinsons/

https://youtu.be/n2KNtRK3SIk

https://youtu.be/v9mJiO4EEag

Sign up for updates on webinars, events, and resources for the Parkinson's community: https://dpf.org/newsletter-signup

In this episode of The Parkinson's Podcast, Foundation Program Manager Beau Boughamer talks with neurologist Vanessa Hinson and Helen Power, a person living with Parkinson's, about the sport that's sweeping the country—and transforming life with Parkinson's.

Dr. Hinson, a movement disorder specialist at the Medical University of South Carolina, shares how pickleball supports balance, coordination, confidence, and connection through her eight-week program for people with Parkinson's. Helen describes how the game brought her movement, joy, and community, proving that staying active can also mean having fun. Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup

In this episode, we talk with Dr. Aaron Haug about what the terms ON and OFF mean in the context of Parkinson's, what ON-OFF fluctuations are, and how to work with your doctor to help manage them. Dr. Haug is a movement disorder specialist based in Englewood, Colorado.

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup

Watch Aaron Haug's video about Tremors and Dyskinesias here: https://youtube.com/shorts/jcjNOnaA0as?feature=share

This episode is sponsored by BlueRock Therapeutics. Learn more here: https://www.bluerocktx.com

Aaron Haug, MD, is a neurologist and movement disorder specialist in Colorado. He earned his bachelor's degree at Creighton University and his medical degree at the University of Kansas. He completed a neurology residency and a fellowship in movement disorders at the University of Colorado, including a year as chief resident.

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup

In the final episode of this three-part series, Connie Carpenter Phinney and Dr. Mark Mapstone explore the emotional and cognitive changes that can occur as Parkinson's progresses. They talk openly about issues like apathy, anxiety, executive function decline, and how these changes can affect relationships, communication, safety, and daily life—including decisions around driving and independence. While the conversation acknowledges grief, frustration, and loss, it also offers insight, practical advice, and strategies for living well through change. This episode is for anyone facing or seeking to understand the emotional and cognitive realities of Parkinson's—people diagnosed, care partners, and clinicians alike.

Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband's care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation's Care Partner Meetup, a monthly virtual meetup for Parkinson's care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/

Dr. Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense.

This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson's, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate.

Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup

**This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson's, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate.** Connie Carpenter Phinney

Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband's care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation's Care Partner Meetup, a monthly virtual meetup for Parkinson's care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/

Dr. Mark Mapstone

Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense.

Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup

In the first episode of our three-part series about neuropsychology and Parkinson's, Connie Carpenter Phinney and Dr. Mark Mapstone explore how brain chemistry, especially dopamine, relates to thinking, movement, and mood in Parkinson's. They break down key terms like cognition and executive function and offer insights into how Parkinson's affects brain systems beyond motor symptoms.

This episode lays the groundwork for understanding how the brain works—and what happens when it changes.

**This content is possible thanks to the generosity of our listeners. Every day more people are diagnosed with Parkinson's, and this means our work is more important than ever. Please support our work by visiting https://dpf.org/donate.**

Interested in our Living with Parkinson's Meetup, Care Partner Meetup, or Live Well Today Webinars? Learn how to join. https://dpf.org/webinars

Visit https://dpf.org to learn more about the Davis Phinney Foundation for Parkinson's.

Speaker Bios: Connie Carpenter Phinney Connie Carpenter Phinney is a co-founder of the Davis Phinney Foundation and has been her husband's care partner for over 25 years. Her background in science combined with her lived experience and curiosity helped shape this conversation with neuropsychologist Dr. Mark Mapstone. Connie is the host of the Foundation's Care Partner Meetup, a monthly virtual meetup for Parkinson's care partners held the first Tuesday of each month. To attend the meetup, sign up here: https://davisphinneyfoundation.org/events/parkinsons-care-partner-meetup/

Dr. Mark Mapstone

Mark Mapstone is Professor of Neurology at the University of California, Irvine School of Medicine. He is a member of the UCI Institute for Memory Impairments and Neurological Disorders and a Fellow of the UCI Center for Neurobiology of Learning and Memory. His research focuses on pre-clinical detection of neurological disease using cognitive tests and biomarkers obtained from blood. He has a special interest in developing strategies to maintain successful cognitive aging. In the clinic, he specializes in cognitive assessment of older adults with suspected brain disease. Dr. Mapstone earned a PhD in Clinical Psychology at Northwestern University and completed fellowship training in Neuropsychology and Experimental Therapeutics at the University of Rochester. He received a Career Development Award from the National Institute on Aging and his research has been funded by the National Institutes of Health, the Michael J. Fox Foundation, and the Department of Defense.

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter

In this episode of the Parkinson's Podcast Unfiltered, hosts Heather, Kat, and Chris tackle one of the toughest questions of this season of Unfiltered: how to manage apathy and depression in advanced Parkinson's while also navigating a healthcare desert.

This episode also includes discussion of strategies for sleep, including how to turn over and get comfortable when you feel "velcroed to the bed," as well as some ideas about exercise options for people with limited mobility, from chair yoga to simple seated movements that anyone can do.

Finally, your Unfiltered hosts explore creative outlets like the Haiku for Parkinson's program and other artistic practices that can provide new opportunities for emotional expression and therapeutic benefits for people living with Parkinson's.

Have a question or comment for the hosts of the Parkinson's Podcast: Unfiltered? Send it here. https://dpf.org/unfiltered

Interested in our Living with Parkinson's, Care Partner, or Live Well Today webinars? Learn how to join. https://dpf.org/webinars

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

More people with Parkinson's are impacted by the LRRK2 (often pronounced "Lark two") gene than you might expect.

The NEULARK study is a phase II clinical trial designed to investigate whether a new treatment being researched, NEU-411, can slow disease progression and improve quality of life for people with Parkinson's disease. NEU-411 is an oral medication designed to inhibit overactivity of the LRRK2 gene.

In this episode of The Parkinson's Podcast, we talk with Dr. Fatta Nahab about the NEULARK study. This episode is sponsored by Neuron23, who is also sponsoring the NEULARK study. Our guest, Dr. Nahab, is Vice President of Clinical and Digital Development for Neuron23.

For more information about the NEULARK trial please visit: https://parkinsonsresearchlrrk2.com/ or https://clinicaltrials.gov/study/NCT06680830

Season: 6 Episode: 19

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

Heather, Kat, and Chris share their experiences with accessibility and travel challenges while living with Parkinson's. They dive into attention and focus, including what it's like to live with both Parkinson's and ADD. The conversation also covers the realities of freezing of gait—from how it starts to how they manage it day to day. Real, personal, and full of lived insight. Visit https://dpf.org to learn more about the Davis Phinney Foundation for Parkinson's.

Season: 6 Episode: 18

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode of The Parkinson's Podcast, we feature excerpts from our July 2025 Care Partner Meetup. In this meetup, Kristin Gustashaw, a registered dietician at Rush University Medical Center, shares real-world advice about food, meds, digestion, and supplements to help care partners and people with Parkinson's make more informed choices.

Much of this conversation focuses on the interaction between protein and levodopa. People with Parkinson's and their care partners are often advised not to eat protein near the time when they take their levodopa. Listen in as Kristin shares her perspective on this--as well as other dietary advice--informed by her 25 years as dietician in a movement disorder clinic.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

This episode of the Parkinson's Podcast features the full, unedited audio from a Live Well Today Webinar.

In this episode, Dr. Greg Pontone discusses the effects that Parkinson's can have on mental health, including why mental health related symptoms occur, how they impact daily life, and what you can do to manage them.

You can view our library of past webinars and register to attend our next webinar at our website: https://davisphinneyfoundation.org/event/live-well-today-webinars/

--- Speaker Bio:

Greg Pontone, MD, MHS is Division Chief and Professor Of Aging, Behavioral, and Cognitive Neurology at the University of Florida and Co-Director of Neuropsychiatry Program at The Norman Fixel institute for Neurological Diseases. Dr. Pontone earned his medical degree from the University of South Florida in Tampa. After medical school he completed a medical internship at Johns Hopkins Bayview followed by a residency in psychiatry and a fellowship in geriatric psychiatry and movement disorders research at The Johns Hopkins Hospital in Baltimore, Maryland.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

This episode of the Parkinon's Podcast features the full, unedited audio from a Live Well Today Webinar.

During this live webinar, Dr. Corcos, Professor of Physical Therapy and Human Movement Sciences, shared insights from decades of research focused on the benefits of exercise for people with Parkinson's. Listen in as Dr. Corcos discusses the latest findings in Parkinson's exercise science and offers practical takeaways for incorporating effective movement strategies into everyday life.

Some links discussed in this webinar:

SPARX Phase 2 Trial--https://jamanetwork.com/journals/jamaneurology/fullarticle/2664948

Dr. Corcos' Exercise Advice Article--https://journals.sagepub.com/doi/10.3233/JPD-230277

Cardio Pulmonary Exercise Test Article-https://journals.sagepub.com/doi/10.1177/1877718X251330814

Industrial Chemicals and Parkinson's Blog-- https://davisphinneyfoundation.org/industrial-chemicals-pesticides-and-parkinsons/

Climbing and Parkinson's Blog-- https://davisphinneyfoundation.org/stay-moving-with-parkinsons-tai-chi-ping-pong-and-rock-climbing/

---- Speaker Bio Daniel Corcos, PhD Professor of Physical Therapy & Human Movement Sciences

Daniel Corcos obtained his PhD in Motor Control from the University of Oregon after obtaining his Master's Degree in Psychology. The primary research interests of Dr. Corcos are aimed at helping people with Parkinson's disease improve their quality of life, improve their mobility and cognition, and slow down the rate at which their disease progresses. Integrating neuroscience and expertise in conducting clinical trials, the research of Dr. Corcos focuses on interventions (such as resistance exercise, endurance exercise, stretching and balance training) that aim to reduce the symptoms of the disease and delay the rate at which the disease progresses. Within this context, Dr. Corcos uses exercise interventions whose dose (frequency, intensity, time and type) can be precisely controlled to achieve these goals and thereby develops and integrates laboratory-based interventions that people with Parkinson's disease can employ in their local community. His current research, published in JAMA Neurology suggests that high intensity endurance slows down the rate at which Parkinson's disease progresses. These findings have been covered in the New York Times and the general press world-wide. Dr. Corcos lectures nationally and internationally to physicians, neuroscientists, and people with the disease on the benefits of exercise for those with Parkinson's disease.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, we share an excerpt from the Q&A portion of one of our Living with Parkinson's Meetups, where guest speakers answer community questions about intense exercise, freezing episodes, and sleepiness in Parkinson's.

Visit https://DPF.ORG for more information and resources for people living with Parkinson's.

Season 6 Episode 14

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Join Heather, Kat, and Chris for another episode of The Parkinson's Podcast Unfiltered. Questions addressed in this episode include navigating apathy--which is one of the most difficult non-motor symptoms of Parkinson's for many people--and how to evaluate your own disability, changes in ability, and quality of life. Ask Heather, Kat and Chris a question here: https://dpf.org/unfiltered

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 13

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In this Q&A episode of The Parkinson's Podcast, recorded during the May 2025 Living with Parkinson's Meetup, they answer questions from the community about what to do when Parkinson's affects your ability to work and how to navigate Power of Attorney. They also discuss orthostatic blood pressure hypertension and adaptive deep brain stimulation (DBS).

To learn more about our Living With Parkinson's Webinar series visit: https://davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 12

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In their first episode back after a break for Parkinson's Awareness Month and some time to tend to personal needs, Heather and Kat dive into a candid conversation about loneliness. Prompted by a listener's question, they explore how Parkinson's can impact friendships and what it means to navigate shifting social dynamics. Stay tuned: more episodes of Unfiltered are on the way!

Ask Heather and Kat a question here: https://dpf.org/unfiltered

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 11

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode of the Parkinson's Podcast, Executive Director Polly Dawkins speaks with Dr. Ray Dorsey and Dr. Michael Okun about their forthcoming book, "The Parkinson's Plan: A New Path to Prevention and Treatment," set for release on August 19, 2025. Framed around the acronym PLAN—Prevent, Learn, Amplify, Navigate—the book shares compelling stories from the Parkinson's community and outlines a bold roadmap toward prevention and proactive care. Listen in as the authors discuss what inspired them to write the book and the actions we can take now to help create a world without Parkinson's.

Learn more about "The Parkinson's Plan: A New Path to Prevention and Treatment" here: https://pdplan.org

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 10

In this episode, Dr. Gregory Pontone discusses:

and more! We hope you enjoy!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Visit http://davisphinneyfoundation.org/podcast-recording-managing-depression-and-anxiety-with-greg-pontone

In this episode, David Leventhal, a program director and founding teacher of Dance for PD, a dance program for people with Parkinson's, talks to us about how the elements of dance translate to living well with Parkinson's.

Contact us anytime at blog@dpf.org

Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-think-like-a-dancer

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Jori Fleisher discusses a very prevalent but rarely talked about symptom of Parkinson's, pain. Dr. Fleisher discusses how pain is detected in the body, the types of pain experienced by the body, and how you can manage pain in Parkinson's.

Contact us anytime at blog@dpf.org

Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-pain-in-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Lucy Norcliffe-Kaufmann, an expert in autonomic dysfunction in Parkinson's speaks to the numerous aspects of Parkinson's symptoms of the autonomic system, including an inability to sweat, dry eyes, constipation, sexual dysfunction, issues in blood pressure, drooling, and more. She explains why these symptoms occur and what you can do to manage them to live better with Parkinson's.

Contact us anytime at blog@dpf.org

Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-autonomic-dysfunction

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, we talk to Dr. Benzi Kluger about many of the myths you may have read regarding Parkinson's, the proliferation of medical bullsh*t (BS) that's growing by the minute, and important clues to look out for when it's time to evaluate the merits of a Parkinson's article, product, treatment, or cure.

For related resources for this episode visit: http://davisphinneyfoundation/podcast-recording-myths-and-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Allan Cole, Danny Bega, Michael S. Fitts, Arun Mather, and Kent Toland discuss:

and more! We hope you enjoy!

For related resources visit: http://davisphinneyfoundation.org/podcast-recording-men-and-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Kat Hill, Karen Jaffe, Soania Mathur, and Nabila Dahodwala discuss:

For related resources go to: http://davisphinneyfoundation.org/podcast-recording-women-and-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, we sat down with Mike Studer to talk about neuroplasticity, exercise, sleep, and how important they are to living well with Parkinson's.

Find related resources here: http://davisphinneyfoundation.org/podcast-recording-neuroplasticity-exercise-and-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In the following episode, Kat Hill and Kevin Kwok discuss how the symptoms of Parkinson's can be embarrassing, especially the ones that others can't see, and how they have handled feelings of shame or embarrassment surrounding these symptoms.

For related resources mentioned in this episode and for more information on living well, visit: http://davisphinneyfoundation/podcast-recording-the-embarrassing-side-of-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In the following interview, we have a conversation with Dr. Bloem about the book, Ending Parkinson's, about living well with Parkinson's today, about the hopes for Parkinson's in the future and much more.

For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-ending-parkinsons-living-well-today

Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Michael Okun shares the latest in 2022 for new and emerging therapies for Parkinson's.

For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-new-treatments-and-therapies-parkinson's

Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, panelists Pete Huley, Christa Ingle, Pat Donahoo, and Cidney Donahoo talk about how important effective communication has been in their journey with Parkinson's and the wisdom they've learned.

For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-building-stronger-relationships-through-communication

Visit dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter 16, "Living Well Today," and the Appendix, "Detecting Medical Bullshit" of the newest edition of our Every Victory Counts® manual. Living well with Parkinson's is a choice and a constant effort, but as many people in our community would say, the effort is worth the result. And an important part of living well with Parkinson's is being able to decipher fact from fiction in the Parkinson's world. While there are many emerging therapies and treatments for Parkinson's, there are also, unfortunately, many unsupported claims and "false" treatments out there as well. In these last two sections of the Every Victory Counts Manual, you'll get advice on steps you can take right away to begin living well with Parkinson's, and you'll learn how to vet the Parkinson's research and stories you hear.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-sixteen-and-appendix-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter 15, "Long-Term Care and Financial Planning," of the newest edition of our Every Victory Counts® manual. This chapter will break down the what, how, and when of long-term care and financial planning and provide you with resources so you feel confident planning for the future.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-fifteen-every-victory-counts-manualfor related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter 14, "General Health and Wellness," of the newest edition of our Every Victory Counts® manual. In this chapter you will learn general health and wellness information to remember as you navigate your Parkinson's, such as the importance of regular dental, vision, and skin screenings. It also explains how Parkinson's may impact your vision, oral health, and skin, and how to ensure you stay on top of your preventative care routines.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-fourteen-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter 13, "Social Connections, Relationships, and Community," of the newest edition of our Every Victory Counts® manual. In this chapter you will discover how social connections, relationships, and community can be just as important as the medications you take, as well as how to nurture those relationships while managing the complexities of Parkinson's.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-thirteen-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter 12, "Emotional Health," of the newest edition of our Every Victory Counts® manual. This chapter discusses the mind-body connection, how to improve your emotional health through volunteerism, mindfulness, and connection, and other strategies to manage your emotional health and overall well-being.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-twelve-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter 11, "Nutrition," of the newest edition of our Every Victory Counts® manual. This chapter will teach you what you need to know about nutrition and Parkinson's, as well as provide you tools to decide which nutritional choices are best for you.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-eleven-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter 10, "Complementary Therapies," of the newest edition of our Every Victory Counts® manual. Living well with Parkinson's requires a multi-dimensional approach, and while conventional medicine for the symptoms of Parkinson's has come a long way, there are now more options than ever to live well with Parkinson's. In this chapter, learn about many of the complementary therapies available and how they can help you live well with Parkinson's.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-ten-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter nine, "Exercise," of the newest edition of our Every Victory Counts® manual. This chapter will review the importance of exercise in Parkinson's, the type and intensity of exercise that might work for you, and how to create and stick to an exercise routine.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-nine-every-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter eight, "Surgical Therapies," of the newest edition of our Every Victory Counts® manual. As Parkinson's symptoms progress, surgical therapies may be considered to help manage symptoms and improve quality of life. This chapter gives an overview of the current surgical therapies available, when an appropriate time may be to receive such therapies, and other important information to consider.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-eight-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter seven, "Medication," of the newest edition of our Every Victory Counts® manual. Medications for managing your Parkinson's should always be discussed with your neurologist or movement disorder specialist, but this chapter will give you an in-depth look at the many medication options available to you for various symptoms, as well medication side effects and interactions to be aware of.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-seven-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter six, "Autonomic Non-Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter looks at the symptoms of Parkinson's that relate to autonomic systems of the body, as well as strategies to manage them. These symptoms include things like drooling, constipation, pain, sweating, and fatigue, along with others. Remember that symptoms show up differently for every person with Parkinson's, and the symptoms that will be discussed may or may not be present for you.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-six-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter five, "Cognitive Non-Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter explores the cognitive symptoms that might be associated with Parkinson's, such as difficulties in speech, comprehension, and memory. It also includes in-depth information about Parkinson's disease psychosis (hallucinations and delusions) and impulse control disorders. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-five-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to chapter four, "Non-Motor Symptoms (Emotional)," of the newest edition of our Every Victory Counts® manual. This chapter dives into the emotional symptoms you might experience with Parkinson's, such as depression, anxiety, or apathy, as well as strategies and treatments to manage them.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-four-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to the third chapter, "Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter explains the common motor symptoms of Parkinson's as well as strategies to manage them. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-three-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.

Email blog@dpf.org with any questions, comments, or concerns and to participate in the competition related to this series.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to the second chapter, "Parkinson's 101" of the newest edition of our Every Victory Counts® Manual, 6th Edition. This chapter gives a brief overview of the most common questions of Parkinson's such as... What is Parkinson's? Who gets Parkinson's? What are the treatment options for Parkinson's? And many many more. Email blog@dpf.org to participate in the competition related to this series.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-2-parkinsons-101-from-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

This is chapter one of the Every Victory Counts® Manual, 6th edition entitled "You Have Parkinson's, Now What?" Receiving a Parkinson's diagnosis can be overwhelming and an emotional roller coaster. This chapter begins to address the top things you need to know about your Parkinson's diagnosis to begin to move from shock, awe, and fear, to having the confidence in knowing you can live well with this diagnosis.

Email blog@dpf.org to participate in the competition related to this series.

Go to https://davisphinneyfoundation.org/podcast-recording-chapter-one-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to the introduction of the Every Victory Counts manual 6th edition, featuring a foreword by Bas Bloem, an explanation of how to use this manual and inspiration to live well today with Parkinson's.

Go to https://davisphinneyfoundation.org/podcast-recording-introduction-the-every-victory-counts-manual-6th-edition for the show notes and additional resources for today's episode.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to hear what's coming next for the Podcast in 2022!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Linda Olson, a triple amputee, person with Parkinson's, author, and motivational speaker shares her story of the challenges she's overcome and how she continues to live well each and every day through optimism, hope, and perseverance.

For additional information and resources go to:

https://davisphinneyfoundation.org/podcast-recording-story-inspiration-hope

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

The non-motor symptoms of Parkinson's are vast and vary greatly from person to person, which means that treatment options are expansive as well.

In this episode, Dr. Aaron Hang gives a short overview of the most common non-motor symptoms and the primary medical and non-pharmacological options to treat them.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, The YOPD Council discusses depression, anxiety, and how to cope with "dark" days as a follow up to a conversation they had last month on Non-Motor Symptoms.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

When a drug is added or removed from a formulary list, your insurance's coverage of the medication may change. In this interview with Derek Arnold, he explains what formularies are, how they work, and what you can do when your medication is no longer covered.

For more information about formularies and resources related to this episode, go to: https://davisphinneyfoundation.org/podcast-recording-what-you-need-to-know-about-formularies

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, The YOPD Council discusses their experience with the unseen non-motor symptoms of Parkinson's.

For show notes, resources, and to sign up for the YOPD Council live, go to: https://davisphinneyfoundation.org/podcast-recording-yopd-council-non-motor-symptoms

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Deep brain stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson's; however, it's also frequently misunderstood. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many to want to get the treatment as soon as possible. Others think it sounds scary and shy away from it. During this webinar, Dr. Joohi Jimenez-Shahed broke down the what, why, and how of DBS and its latest advancements.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

There is ample evidence that shows that including exercise, good nutrition, socialization, and more can help people with Parkinson's manage their symptoms, improve mood, and live well for many years. Yet exercise, eating, and social habits look vastly different for different people, and without addressing this cultural context, accessibility barriers can keep people from integrating these practices to improve their quality of life.

Dr. Indu Subramanian and Dr. Greg Pontone dig into what it means to apply a cultural context and how the Parkinson's sector can implement changes to support more people in their pursuit of living well.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Movement disorder specialist Cherian Karunapuzha, MD, (better known as "Dr. K") discusses definitions relating to constipation, causes of constipation, treatments for constipation, how constipation can impact your medication absorption, constipation's connection to other symptoms, and more.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this session, our YOPD Council leaders discuss regaining confidence after losing it in personal, professional, and social settings with the onset of symptoms in young onset Parkinson's.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Neurologist and Georgetown University Educator Yasar Torres-Yaghi explains OFF times in Parkinson's and how to manage them in easy to understand, relatable, and actionable terms.

To learn more about this podcast, go to https://davisphinneyfoundation.org/podcast-recording-off/

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation ‎

Parkinson's disease dementia (PDD) is a term used for dementia that develops after several or many years of living with Parkinson's. In nearly all cases of Parkinson's, people experience motor symptoms in the early stages; some may also have mild changes in cognition at diagnosis. Over time, though, non-motor symptoms of Parkinson's may get so problematic that they are much more debilitating than motor symptoms ever are. Not all people with Parkinson's will develop dementia, but for those who do, it can be a very difficult symptom to live with.

In this episode, Dr. Rodolfo Savica from the Mayo Clinic shares his expertise from over two decades of experience working with people with dementia.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Approximately 50-60% of people living with Parkinson's experience varying levels of depression and anxiety. It's important to know the difference between these common mood disorders so you can accurately explain how you're feeling to your doctor and get the care you need. During this webinar, Roseanne Dobkin, PhD, discusses depression, anxiety, and apathy; the causes and treatments of them; and much more.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this session, our YOPD Council leaders answered YOUR questions. This month's YOPD Council discussed:

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Living well with Parkinson's takes support – from our families, communities, healthcare professionals, workplaces, government, and more. When those systems are compromised due to systemic oppression, bias, or lack of inclusion, health outcomes are compromised. In this webinar, Wissam Deeb, MD, and Nicole Rosendale, MD, help us understand how issues faced by the LGBTQ+ community show up in Parkinson's care and how we can increase awareness and create more inclusive spaces to address inequities.

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One of the most common questions we're asked is this: "What should I eat now that I've been diagnosed with Parkinson's?" The answer is that there is no one answer. Just as each person with Parkinson's experiences different symptoms, each person reacts differently to different types of diets. During this session, our panel members, along with registered dietician and Davis Phinney Foundation Ambassador, Marty Acevedo, will talk about food as medicine.

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If you've been living with Parkinson's for a while, chances are good that you've either heard about how beneficial boxing is for people with Parkinson's, or you've attended many boxing classes yourself. But how familiar are you with the latest and greatest research about boxing and Parkinson's? In this webinar, our panel members, John Dean, Josefa Domingos, and Sara Rigarre shared specifics about the research they've conducted and described the effects of Parkinson's severity and duration of boxing training on changes in balance, mobility, and quality of life for people living with mild or moderate to severe Parkinson's.

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In this genuine, inspiring, and relatable conversation, past professional athletes, Brian Grant and Davis Phinney talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day.

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Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges.

In this panel discussion, the YOPD Women's Council discusses sex, intimacy, love, dating, and all topics related to relationships.

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In Angela Duckworth's book Grit, she examines why some people succeed and others fail, and why talent is hardly a guarantor of success. During this episode, we will discuss whether human behavior is constant or circumstantial, how behavior change really happens, the mindsets that help people succeed regardless of challenges, and what Angela learned from having a father who lived with Parkinson's.

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Since 2020, the COVID-19 pandemic has exposed the myriad ways that structural racism and oppression affect healthcare and health outcomes, including wellbeing and quality of life. These same systemic issues plague the Parkinson's community and result in care inequities and disparities that disproportionately affect people of color, women, people with limited English proficiency, and more.

In this conversation, Nicte I. Mejia, MD, MPH, FAAN, and Aswita Tan-McGrory, MSPH, discussed how these systems of racism and oppression affect our community, and how we can take these learnings and create the change needed to ensure all people can live well with Parkinson's.

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The human body was built to work in partnership with the sun. Its light can transform our moods, focus, sleep, energy levels, immune systems, bone density, and mental health. As a result, spending time in the sun can be particularly beneficial to people living with Parkinson's who experience symptoms like depression, apathy, poor sleep, pain, and fatigue. During this session, our YOPD council members discuss all the ways sun and light help them live well with Parkinson's.

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Living alone while living with Parkinson's can be a blessing or a curse. Some people love their independence and love being able to direct their days all on their own. For some, not having a live-in care partner, family member, or roommate is lonely and a hardship.

During this webinar, we talked to five people, Michael Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson's, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson's.

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Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council talked about the added challenges women living with Parkinson's face as it relates to contraception and pregnancy.

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Did you know that dementia in people diagnosed with young onset Parkinson's disease (YOPD) looks different than dementia in those diagnosed with later-onset Parkinson's? In this webinar, Dr. Rodolfo Savica, MD, PhD, and YOPD Council Leader Tom Palizzi discussed dementia: what it is, how it develops, and its relationship to Parkinson's, as well as some distinct differences between YOPD and later-onset Parkinson's.

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Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council and special guest Dr. Karen Jaffe, MD, talked about the added challenges women living with Parkinson's face as it relates to menstruation, menopause, and hormones.

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Racial differences in Parkinson's treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. But what do we really mean when we talk about trust? In this conversation, Dr. Altaf Saadi and Dr. Consuelo H. Wilkins will examine the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities.

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In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson's.

During this webinar, Toni discussed what she's learned about living with chronic pain and illness and how to live well no matter what obstacles you are facing.

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Imagine if you had access to your doctor or movement disorder specialist via a computer was just a few clicks away. Or you could have an appointment via the phone in the comfort of your own living room.

Telemedicine makes that possible.

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Our YOPD Council leaders discussed:

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Our YOPD Women's Council and special guest Kathleen Reardon discussed:

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In this panel discussion, our YOPD Women's Council and special guests Dr. Jill Farmer and Vicki Dillon discuss everyone's unique journey with medications; the many types, classes, and possible side effects of Parkinson's medications; and the importance of trying a variety of medication combinations until you find the best fit for you.

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In this webinar, a panel of Parkinson's organization leaders serving people across the US discussed common issues that exist within urban communities and rural communities alike, shared assumptions and misunderstandings about rural and urban neighborhoods, what policymakers and other decision-makers miss most often when it comes to addressing the unique needs of our communities, and what leaders and Parkinson's advocates can do TODAY to help address health disparities like these that may exist in their communities.

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Speech and voice impairments are common among people living with Parkinson's. As many as 90% of people with Parkinson's experience difficulties such as "hypophonia" (soft speech) or a more monotone, raspy, or breathy voice. Speech can become less intelligible and can make communication difficult, especially if paired with facial masking (a decrease in facial expression). It will come as no surprise then that speech and voice impairments can impact quality of life.

Speech and Language Pathologist John Dean recently sat down with us to discuss the various speech challenges related to Parkinson's and actions you can take every day to train your voice, improve your speech, and communicate more fluidly and clearly.

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