残言片语Disabled Talks

本期节目文字稿

【聊了什么 The What】

本期节目围绕科技与残障展开讨论，从电子导盲犬、电子盲杖、手语翻译手套，到助听器和高科技假肢，我们一起聊了一个看似简单、其实非常复杂的问题：什么才是真正好的“科技助残”？ 科技并不天然意味着进步。有些产品看起来充满未来感，却可能忽视残障者真实的生活经验和需求，甚至试图用技术去“解决”本不需要被解决的问题。我们讨论了为什么一些备受关注的科技产品会遭到残障社群的反对，也分享了真正能够改善残障者生活、具有生命力的技术应该具备什么特点。同时，我们也从助听器和假肢出发，聊到不同残障群体对于“治疗”“康复”和科技的不同态度，以及昂贵的高科技产品是否可能再次强化“残障是个人身体问题”这一陈旧观念。 这不仅是一期关于科技的讨论，也是一次从残障者视角重新思考：我们究竟需要什么样的创新，以及谁应该参与定义“进步”。

In this episode, we explore the relationship between technology and disability. From electronic guide dogs, smart canes, and sign-language-translating gloves to hearing aids and high-tech prosthetics, we ask a seemingly simple but surprisingly complex question: What does genuinely good assistive technology look like? Technology does not automatically mean progress. Some products may appear innovative and futuristic while overlooking disabled people’s actual experiences and needs—or even trying to “solve” things that disabled people do not see as problems in the first place. We discuss why certain highly publicized technologies have faced criticism from disability communities and what makes technology genuinely useful and sustainable. Through examples such as hearing aids and prosthetics, we also explore how attitudes toward technology, treatment, and rehabilitation vary across disability communities, and whether expensive high-tech solutions can reinforce the outdated idea that disability is primarily an individual problem.

【本期嘉宾 Episode Guests】

孔铭：盲人，导盲犬使用者，音乐家

仁慈：假肢使用者，残障研究者，过气网红

八如：INFJ听人，艺术家，美国聋校教师

Kong Ming: Blind musician, guide dog handler, and Ph.D. student.

Mercy: Prosthetic user, disability studies researcher, and "former internet influencer."

Baru: INFJ, hearing ally, artist, and Teacher of the Deaf and Hard of Hearing

【时间轴 The When】

01:11 电子导盲犬与电子盲杖的风险与局限

07:24 为什么可以翻译手语的手套遭到了反对？

13:40 真正好的科技是如何改善残障者生活的？

19:00 具有生命力的科技产品应该是什么样的？

28:00 离谱的“科技助残”是什么样的？

32:00 助听器并不能解决“聋”，后续治疗至关重要

39:00 不同残障类别的人对“治疗”和科技的态度大不相同

46:35 高科技的假肢如何为肢体障碍者赋能

50:35 昂贵的科技是否会增强陈旧的残障是个人问题观念呢？

01:11 Risks and Limitations of Electronic Guide Dogs and Smart Canes

07:24 Why Have Sign-Language-Translating Gloves Faced Backlash?

13:40 How Can Good Technology Truly Improve the Lives of Disabled People?

19:00 What Makes an Assistive Technology Product Truly Sustainable and Enduring?

28:00 What Does Absurd “Tech for Disability” Look Like?

32:00 Hearing Aids Cannot “Fix” Deafness: Why Follow-Up Care Is Crucial

39:00 How Attitudes Toward “Treatment” and Technology Differ Across Disability Groups

46:35 How High-Tech Prosthetics Can Empower People with Limb Disabilities

50:35 Does Expensive Technology Reinforce the Outdated Idea That Disability Is an Individual Problem?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

七月是“残障骄傲月”（Disability Pride Month）。在这个源于西方的概念里，有人找到了破除羞耻感的解药，也有人看到了它的阶层局限与视觉中心主义的盲区。本期节目，仁慈和八如邀请到了听众们超级喜欢的大程子和孔铭，从中文语境下的“骄傲与自豪”辨析，聊到公共游行的包容性反思，再到个人努力与系统变革的拉扯。如果生活已经很难了，我们到底在"骄傲"什么？“骄傲”是一种特权，还是一种重新定义自我的力量？我们欢迎你加入这场关于身体、身份认同与社会系统的坦诚对话。

July is Disability Pride Month. Born out of a Western context, this concept has become, for some, an antidote to internalized shame — while for others, it exposes real blind spots around class privilege and visually centric culture. In this episode, Renci and Baru are joined by two guests our listeners love — Da Cheng Zi and Kong Ming — for a conversation that moves from unpacking "pride" versus "self respect" in the Chinese language, to reflections on how inclusive (or not) public parades really are, to the tension between individual effort and systemic change. If life is already hard enough, what exactly are we being "proud" of? Is pride a privilege, or a way of redefining ourselves on our own terms? Join us for this honest conversation about the body, identity, and the systems we live within.

【本期嘉宾 This episode's guests】

大程子：轮椅使用者，UBC硕士在读，自媒体创作者。

孔铭：盲人，导盲犬使用者，音乐家

仁慈：假肢使用者，残障研究者，过气网红

八如：INFJ听人，艺术家，美国聋校教师

Da Cheng Zi: Wheelchair user, M.A. student at the University of British Columbia, and disability content creator.

Kong Ming: Blind musician, guide dog handler, and Ph.D. student.

Mercy: Prosthetic user, disability studies researcher, and "former internet influencer."

Baru: INFJ, hearing ally, artist, and Teacher of the Deaf and Hard of Hearing

【时间轴 The When】

00:00:00 我们到底在为什么而骄傲？ 00:06:35 "残障骄傲"是不是美国人的概念？ 00:11:20 从羞耻到坦然：环境真的会改变一个人 00:18:20 连残障游行，也可能排斥残障者？ 00:24:45 为什么轮椅花车让大程子哭了？ 00:29:45 Pride，到底该翻译成"骄傲"还是"自豪"？ 00:34:50 我不是为残障骄傲，而是为活下来骄傲。 00:46:00 "残障骄傲"会不会也是一种特权？ 00:53:30 一个老师的一句话，可能改变孩子的一生。 01:03:30 当我们谈个人努力时，别忘了系统责任。 00:00:00 What are we actually proud of? 00:06:35 Is "Disability Pride" an American concept? 00:11:20 From shame to self-acceptance: Can environment change a person? 00:18:20 Can a Disability Pride parade exclude disabled people? 00:24:45 Why did a wheelchair parade make Dachengzi cry? 00:29:45 Should Pride be translated as pride or self-respect in Chinese? 00:34:50 I'm not proud of my disability. I'm proud that I survived. 00:46:00 Is "Disability Pride" also a form of privilege? 00:53:30 How one teacher's words can change a child's life. 01:03:30 When we celebrate personal resilience, let's not forget systemic responsibility.

【一起来读书吧 Bookclub】

《残言片语》的姐妹播客《疲惫娇娃》最近会举办一个在纽约的读书会活动，感兴趣的朋友欢迎报名参加！

《台湾漫游录》线下读书会： 8月9日，我们会在纽约中文独立书店Accent Sisters举办《台湾漫游录》线下读书会。故事讲述了1938年日本统治台湾时期，一位年轻的日本女性小说家来到岛上，希望能一路吃穿台湾，在这个过程中她爱上了自己的女性翻译，但却苦于难以克服殖民者与被殖民者之间的鸿沟。这本书今年斩获了国际布克奖，是首部获得这部奖项的华语原著作品。

读书会链接：https://luma.com/yayseynm

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

你可能看过手语，但未必看过真正的手语剧场。很多人以为，手语只是给聋人"翻译"用的。但事实上，它也可以是一种完整的艺术语言。甚至，一部经典戏剧，因为加入手语，能够拥有完全不同的生命力。这一期《残言片语》，八如邀请长期研究聋人文化与表演艺术的静静，一起聊聊一个很少被讨论，却足以颠覆我们对戏剧和语言想象的话题: 手语剧场。我们从纽约实地探访美国聋人剧团聊起，走进美国国家聋人剧院的发展历程，也走进美国西部聋人剧院（Deaf West Theatre）的创新实践；从百老汇手语音乐剧，到国内《纸鹤》《鸟的故事》等作品，一起看看手语如何成为一种真正的艺术表达，而不仅仅是无障碍。

如果你对手语、戏剧、残障文化、教育、无障碍设计感兴趣，或者只是想看看这个世界还有哪些不同的表达方式，希望这一期能带给你一些新的启发。因为有时候，真正改变我们的，并不是一种新的语言，而是一种新的观看方式。

You may have seen sign language before, but you probably haven't seen true sign language theatre. Many people assume sign language is only used to "interpret" for Deaf people. In fact, it can be a complete artistic language. Once sign language is woven into the classic play, it can take on an entirely different life. In this episode of Disabled Talks (残言片语), Baru invites Jingjing, a long-time researcher of Deaf culture and performing arts, to discuss a topic rarely talked about yet capable of overturning our assumptions about theatre and language: sign language theatre. We start with a visit to a Deaf theatre company in New York, trace the rise and development of the National Theatre of the Deaf, and look at the innovative practices of Deaf West Theatre. From Broadway sign language musicals to domestic works like Paper Crane and The Story of the Bird, we explore how sign language can become a genuine form of artistic expression, not just a matter of accessibility.

If you're interested in sign language, theatre, disability culture, education, or accessible design — or simply curious about other ways of expressing the world- we hope this episode offers some new inspiration. Because sometimes, what truly changes us isn't a new language, but a new way of seeing.

【本期嘉宾 This episode's guests】

静静：表演研究学者，长期关注聋人文化、手语剧场与公共艺术教育。

八如：INFJ聋校老师，无障碍艺术倡导

Jingjing: Performance studies scholar with a long-standing focus on Deaf culture, sign language theatre, and public arts education.

Baru: an INFJ Teacher of the Deaf; Advocate for accessible art.

【时间轴 The When】

00:10 节目开场｜为什么想聊手语剧场？

03:05 什么是手语剧场？它和聋人剧场有什么区别？

08:42 美国国家聋人剧院的兴衰：我们在纽约看到的最新现状

12:31 Deaf West Theatre：一种更灵活、更可持续的聋人剧团模式

16:20 中国的手语剧场发展：《纸鹤》《鸟的故事》等实践

20:54 聋人剧场、身份认同与手语作为艺术语言

24:15 百老汇手语音乐剧：无障碍如何成为艺术的一部分

30:29 城乡教育差距、资源不平等与聋人文化传播

36:12 为什么一定要去加劳德特大学（Gallaudet University）？

46:17 艺术、无障碍与商业化：聋人创作如何才能真正持续？

00:10 Opening | Why talk about sign language theatre?

03:05 What is sign language theatre? How does it differ from Deaf theatre?

08:42 The rise and fall of the National Theatre of the Deaf: the latest state of things, as we saw it in New York

12:31 Deaf West Theatre: a more flexible, more sustainable model for Deaf theatre companies

16:20 The development of sign language theatre in China: works like Paper Crane and The Story of the Bird

20:54 Deaf theatre, identity, and sign language as an artistic language

24:15 Broadway sign language musicals: how accessibility becomes part of the art

30:29 The urban-rural education gap, unequal resources, and the spread of Deaf culture

36:12 Why go to Gallaudet University?

46:17 Art, accessibility, and commercialization: how can Deaf creative work truly be sustained?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

5月17日全国助残日前夕，一则“百万粉丝盲人博主在盲道被电动车撞倒”的视频冲上热搜。随后，北京警方通报该事件系摆拍，涉事人员被采取刑事强制措施。舆论迅速反转。这一期，我们邀请了视障朋友孔铭，小提琴手和预备博士，一起聊聊“盲兔事件”背后的残障网红经济、公众对残障者的想象，以及互联网时代真实表达的困境。为什么公众总在怀疑盲人是不是“真盲”？当残障者成为流量商品后，真实还重要吗？而真正的问题，究竟是摆拍，还是大众从未真正理解残障者的生活？

On the eve of National Disability Day, a video exploded across Chinese social media: a blind influencer with millions of followers appeared to be knocked down by an e-scooter while walking on a tactile paving path. Soon after, Beijing police announced the incident had been staged. The people involved were criminally charged. Public opinion flipped almost overnight. In this episode, we’re joined by Kong Ming, a visually impaired violinist and soon-to-be PhD student, to unpack the deeper issues underneath the controversy: the rise of disability influencers, the public’s imagination of what disability is supposed to look like, and the impossible tension of trying to present an “authentic” disabled life online. Why are disabled people constantly asked to prove they’re “disabled enough”? When disability becomes a commodity, can authenticity still exist? And is the real issue the staged video itself, or the fact that so many people still don’t understand what it actually means to live with a disability?

【时间轴 The When】

00:00:00｜盲兔事件始末：从热搜到“摆拍”反转

00:05:27｜“一颗老鼠屎坏了一锅粥”：残障群体的愤怒与失望

00:10:23｜真实存在的危险：视障者在城市中的出行困境

00:20:43｜当平台开始怀疑残障者：限流、封杀与“真实性”

00:29:47｜MCN、流量与残障网红工业化

00:34:33｜盲人并不只有一种：关于视力障碍的重要科普

00:44:00｜摆拍为什么会引发如此巨大的舆论反噬

00:53:17｜金钱、理想与“残障身份”：我们到底想成为谁？

00:00:00 | The controversy: From Viral Sensation to “Staged” Scandal

00:05:27 | Anger and Disappointment Within the Disability Community

00:10:23 | The Danger Is Real: Challenges Faced by Blind and Visually Impaired People in Cities

00:20:43 | When Platforms Start Distrusting Disabled Creators: Shadowbanning, Deplatforming, and the Question of “Authenticity.”

00:29:47 | MCNs, Algorithms, and the Industrialization of Disability Influencers

00:34:33 | Blindness Is Not One Thing: Essential Context on Visual Impairment

00:44:00 | Why the Staged Video Triggered Such an Intense Public Backlash

00:53:17 | Money, Ideals, and Disability Identity: Who Are We Actually Trying to Become?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

仁慈：假肢使用者，残障研究者，过气网红。

八如：INFJ听人，艺术家兼美国聋校教师。

孔铭：盲人，导盲犬使用者，音乐家。

Renci: Prosthetic user, disability studies researcher, former influencer

Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality.

Kong Ming: Blind, guide dog user, musician

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

我们如何看待那些“不完美”的身体？在这场对话中，主播仁慈与好友孔铭、彦林一起，剥开非残障者面对残障群体时复杂且微妙的情感外壳。从“宁愿死也不愿残障”的极端恐惧，到带有优越感的怜悯，这些情绪背后隐藏着我们对生命不确定性的深层焦虑，以及对人生失控的本能抵制。我们探讨了这些情感的根源，并试图寻找一种更理想的连接方式：跨越种族、阶级、性别与身体状态的“共情”，在现实中是否真的可能？

How do we perceive "imperfect" bodies? In this episode, host Renci joins friends Kong Ming and Yan Lin to peel back the complex and subtle layers of emotion that non-disabled people feel toward the disability community. From the extreme fear of "rather being dead than disabled" to the subtle condescension of pity, these emotions mask a deep-seated anxiety about life’s uncertainty and an instinctive resistance to losing control. We explore the roots of these feelings and ask: is a more ideal form of connection—an empathy that transcends race, class, gender, and physical ability—actually possible in reality?

【时间轴 The When】

00:02:00｜残障是如何流动到每个人身边的？

00:05:00｜“如果我变成了残障者，我就不想活了”

00:09:55｜对残障者的打量为什么会不礼貌？

00:13:15｜为什么有人残障这个状态会恐惧？

00:19:00｜拒绝残障的身体是在拒绝存在的不确定性

00:21:00｜对医学与康复的迷信让我们难以与残障的身体共存

00:23:00｜对残障者的怜悯/可怜是一件好事吗？

00:28:50｜可怜与恐惧都反映了我们的价值观

00:32:18｜与残障者共情才能真正尊重残障者的存在？

00:36:36｜跨越种族、性别、身体状态的共情是否可能？

00:41:07｜基于刻板印象的贴标签符合生物本能，但那是正确的吗？

00:43:11｜如果残障状态无法避免，我们想生活在什么样的社会？

00:48:44｜残障在社会中的可见度决定了对残障的情感

00:02:00 | How disability flows into everyone’s life

00:05:00 | "If I became disabled, I wouldn't want to live anymore"

00:09:55 | Why is staring at people with disabilities considered impolite?

00:13:15 | Why are some people afraid of the state of being disabled?

00:19:00 | Rejecting a disabled body is a rejection of the uncertainty of existence

00:21:00 | How a fixation on medicine and "recovery" makes it hard to coexist with disabled bodies

00:23:00 | Is pitying or feeling sorry for people with disabilities a good thing?

00:28:50 | Both pity and fear reflect our core values

00:32:18 | Can we only truly respect the existence of disabled people through empathy?

00:36:36 | Is empathy that transcends race, gender, and physical ability even possible?

00:41:07 | Labeling based on stereotypes aligns with biological instinct—but is it right?

00:43:11 | If disability is inevitable, what kind of society do we want to live in?

00:48:44 | The visibility of disability in society determines our emotional response toward it

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

仁慈：假肢使用者，残障研究者，过气网红。

孔铭：盲人，导盲犬使用者，音乐家。

彦林，杜克大学哲学博士生，在慢性病中做田野的哲学家

Renci: Prosthetic user, disability studies researcher, former influencer

Kong Ming: Blind, guide dog user, musician

Yan Lin: Duke University philosophy PhD student, philosopher doing fieldwork through chronic illness

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

四月是孤独症接纳月，从提升意识到真正接纳，我们还要走多少弯路？本期节目，主播八如邀请到Jayne与5岁半神经多样性男孩"小熊"的妈妈Anqi，围绕孤独症谱系展开了一场真实而温柔的对话。当我们说一个孩子"有问题"时，我们到底是在描述他，还是在描述我们无法理解他的方式？重复动作、情绪崩溃、社交困难、对环境过度敏感……它们不一定是"问题行为"，而可能是孩子在用自己的方式调节世界、表达压力，甚至求救。对神经多样性保持包容，不只是为了这些孩子，更是在帮我们每一个人，与那个从未被好好对待过的内心小孩重新和解。孤独症谱系广阔而多元，本期嘉宾们的经历与视角只是其中一隅，无法代表所有人的生命体验，但在残言片语，每一个故事，都值得被认真倾听。

April is National Autism Acceptance Month. From raising awareness to genuine acceptance, how many detours still lie ahead? In this episode, host Baru sits down with Jayne and Anqi—mother of Xiǎo Xióng, a 5-and-a-half-year-old neurodivergent boy—for a candid, tender conversation about the autism spectrum. When we say a child "has a problem," are we really describing them, or are we describing our own inability to understand them? Repetitive movements, emotional meltdowns, social difficulties, sensory overwhelm—these aren't necessarily "problem behaviors." They may be a child's own way of regulating their world, expressing stress, or even reaching out for help.Holding space for neurodiversity isn't just for these children. It helps each of us make peace with the inner child who was never quite met with the care they needed. The autism spectrum is vast and varied. The experiences and perspectives our guests share are only one small corner of it, and can't speak for every life lived on the spectrum. But in these fragments of conversation, every story deserves to be heard with care.

【时间轴 The When】

00:00:00 开场介绍

00:01:23 什么是孤独症谱系？

00:01:57 安琪的"发现时刻"①：睡眠挑战

00:06:41 安琪的"发现时刻"②：旅行中的感官世界

00:10:27 作为成年ASD女性的成长经历

00:17:16 为什么选择不给小熊确诊？

00:25:28 社交与语言：来有往的对话很难

00:42:24 大众刻板印象 vs. 真实谱系

00:49:36 作为家长，我希望获得什么支持？

01:05:12 对非神经多样性人士说的话

00:00:00 Intro & Guest Introductions

00:01:23 What Is Autism Spectrum Disorder

00:01:57 Moment of Recognition ①: Sleep Struggles

00:06:41 Moment of Recognition ②: Sensory Sensitivities While Traveling

00:10:27 Growing Up Undiagnosed as an Autistic Woman

00:17:16 Why No Formal Diagnosis for Xiǎo Xióng?

00:25:28 Social & Language Challenges: The Art of Back-and-Forth

00:42:24 Stereotypes vs. the Real Spectrum

00:49:36 What Support Do Neurodivergent Families Need?

01:05:12 A Message to Neurotypical People

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

八如：INFJ听人，艺术家兼美国聋校教师。

Jayne：与前庭型偏头痛和单侧听损生活共存二十年，工程师/life coach/女性主义社群主理人。

Anqi: 五岁神经多元男孩的妈妈。

Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality.

Jayne: Co-existing vestibular migraine and unilateral hearing loss for twenty years; engineer, life coach, and founder of a feminist community.

Anqi: Mother of a five year old neuron divergent child.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

这一期播客，主播仁慈与嘉宾 Jayne 一起聊了聊 ADHD（注意缺陷多动障碍）是如何逐渐被一些人视为一种社交“时髦病”甚至“聪明病”的。她们从小红书上流行的 ADHD 自测表是否科学谈起，讨论了 ADHD 究竟是不是一种疾病，以及确诊 ADHD 背后可能存在的性别视角。Jayne 随后分享了成年人确诊 ADHD 的困难与挑战，并介绍了常见的 ADHD 治疗药物。仁慈也聊到，有 ADHD 的人可能更适合哪些类型的工作，以及当越来越多人把 ADHD 写进个人简介时，它是否正在变成一种“时尚标签”。最后，两人讨论了作为朋友、伴侣和家人，我们可以如何更好地支持身边有 ADHD 的人，同时也谈到为什么 ADHD 不应该成为不负责任的借口。这一期播客，希望能带你更立体地了解 ADHD。

In this episode, host Mercy and guest Jayne talk about how ADHD (Attention Deficit Hyperactivity Disorder) has increasingly been portrayed as a social “fancy illness” or even a “smart person’s condition.” Starting with the popular ADHD self-tests circulating on Xiaohongshu (Rednote), they discuss whether these tests are scientifically reliable and ask a deeper question: is ADHD truly a disorder? They also explore the gender dynamics behind ADHD diagnoses. Jayne then shares how difficult it can be for adults to receive an ADHD diagnosis and explains common medications used in ADHD treatment. Renci follows by discussing what types of work environments may better suit people with ADHD, and whether putting “ADHD” in one’s bio has become a kind of social badge or identity marker. Finally, they talk about how friends, partners, and family members can better support people with ADHD—and why ADHD should not be used as an excuse for irresponsibility. This episode offers a thoughtful and accessible conversation to help you better understand ADHD.

【时间轴 The When】

00:01:20 网络上流行的 ADHD 自测表真的可靠吗？

00:11:53 ADHD 真的是一种“病”吗，还是别的什么？

00:17:30 为什么女孩在童年更少被诊断出 ADHD？

00:28:28 成年后才去确诊 ADHD，到底有多难？

00:37:51 ADHD 的治疗药物有哪些？真的有效吗？

00:44:00 哪些名人被诊断为 ADHD？（有些可能会让你很意外！）

00:45:45 有 ADHD 的人更适合什么样的职业？

00:46:35 为什么很多人在网上自测觉得自己有 ADHD，却反而更痛苦？

00:53:38 总是无法集中注意力？也许这真的不是你的错

00:59:40 把 ADHD 写进社交媒体个人简介：是自我认同还是一种潮流？

01:06:00 如何成为更支持 ADHD 人群的朋友、伴侣或家人？

01:14:19 ADHD 不是不负责任的借口

01:20:10 ADHD 可以被“治愈”吗？

00:01:20 Are viral ADHD self-tests online actually reliable?

00:11:53 Is ADHD really a disorder—or something else?

00:17:30 Why are girls less likely to be diagnosed with ADHD in childhood?

00:28:28 Getting diagnosed as an adult: why is it so hard?

00:37:51 ADHD medications: what are they and do they really work?

00:44:00 Famous people with ADHD (some will surprise you!)

00:45:45 What kinds of careers might suit people with ADHD better?

00:46:35 Why self-diagnosing ADHD online can sometimes make people feel worse

00:53:38 Can’t focus? It may not actually be your fault

00:59:40 Putting “ADHD” in your social media bio: empowerment or trend?

01:06:00 How to better support friends, partners, and family members with ADHD

01:14:19 ADHD is not an excuse for irresponsibility

01:20:10 Can ADHD ever be “cured”?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

仁慈：残障者，残障研究者，残障法博士。《残言片语》播客主播。

Jayne：与前庭型偏头痛和单侧听损生活共存二十年，工程师/life coach/女性主义社群主理人。

Mercy: A person with disabilities, disability studies researcher, PhD in disability law. Host of Disabled Voices.

Jayne: Co-existing vestibular migraine and unilateral hearing loss for twenty years; engineer, life coach, and founder of a feminist community.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

这一期节目，八如和疲惫娇娃CyberPink的主播小蓝和小杨一起聊了两部关于残障与照护的电影：刘玉玲主演的《罗丝密》(Rosemead) 与圣丹斯今年新出的口碑佳作《带我回家》(Take Me Home)。

讲述残障者的故事，很难绕过照护者的故事，也很容易陷入苦大仇深的叙事漩涡；毕竟社会给残障者的资源那么少，而在资源的匮乏中能讲出的故事常常是《罗丝密》中描绘出的毁灭性的绝路。而《带我回家》则通过一种模糊虚构与真实的即兴手段，让残障演员在故事中展现全新的创作方式。或许这种匮乏并不是必须的，或许优绩主义的亚裔家庭不一定要把残障视为绝路，或许电影人能给出的激进的想象能够推动我们重塑现实，毕竟生而为人我们终将是脆弱的。

In this episode we are joined our friends at 疲惫娇娃CyberPink to discuss two films about disability and caregiving: Rosemead, starring Lucy Liu, and Take Me Home, a critically acclaimed new Sundance film. When telling stories about disabled people, it is hard to avoid telling the stories of caregivers as well. It is also easy to fall into a heavy, tragic narrative spiral. After all, society offers so few resources to disabled people, and from within that scarcity, the kinds of stories that emerge often look like the devastating dead end portrayed in Rosemead. Take Me Home, by contrast, uses an improvisational approach that blurs fiction and reality, allowing disabled actors to reveal a wholly different creative mode within the film itself. Perhaps this scarcity is not inevitable. Perhaps, in high-achieving Asian families, disability does not have to be treated as a dead end. Perhaps the radical imagination offered by filmmakers can help us reshape reality—because as human beings, we are all ultimately fragile.

【时间轴 The When】

00:00 - 两部电影的初观感

08:11 - 《柔似蜜》：真实的悲剧还是缺乏想象力的“绝路”

19:01 - 《待我回家》中的姐姐角色：拒绝牺牲自我，寻找更长久的方案

31:01 - 《待我回家》的激进结局

36:39 - 导演 Liz Sargent 谈“激进的想象力”(Radical Imagination)

45:53 - 电影工业能够多大程度上支持残障演员

55:31 - 心理健康与精神健康在政策支持上的滞后性

59:11 - 亚裔社区的“家丑”观与优绩主义

71:14 - 人类本来就是脆弱的

00:00 – First impressions of the two films

08:11 – Rosemead: a true tragedy, or a “dead end” shaped by a failure of imagination

19:01 – The sister character in Take Me Home: refusing self-sacrifice and searching for a more sustainable path

31:01 – The radical ending of Take Me Home

36:39 – Director Liz Sargent on “radical imagination”

45:53 – To what extent the film industry can support disabled actors

55:31 – The lag in policy support for mental and psychological health

59:11 – The Asian community’s view of “family shame” and meritocracy

71:14 – Human beings are fragile to begin with

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

这一期《残言片语》，我们从Alex Honnold徒手攀登台北101大楼谈起。八如采访仁慈分享了作为假肢使用者的攀岩历程——从室内岩馆到Joshua Tree国家公园首次挑战30米户外岩壁的经历。我们探讨了岩馆中的无障碍挑战、残障者攀岩的分级制度，以及攀岩如何成为一项相对包容但仍有改进空间的运动。在攀岩中,每个人都能在风险与专注之间找到属于自己的自由与平静，而这正是运动本身所带来的纯粹幸福。

In this episode of "Fragments of Words," we begin with Alex Honnold's free solo climb of Taipei 101. Baru interviews Renci, who shares their climbing journey as a prosthetic user—from indoor gyms to their first outdoor climb on a 30-meter rock wall at Joshua Tree National Park. We discuss accessibility challenges at climbing gyms, the classification system for adaptive climbing, and how climbing has become a relatively inclusive sport that still has room for improvement. In climbing, everyone can find their own freedom and peace between risk and focus—this is the pure joy that sports themselves bring.

【时间轴 The When】

00:00 - 开场与新年问候

00:42 - 感谢听众与2025播客大赏

02:06 - Alex Honnold攀登台北101的启发

04:32 - 仁慈的攀岩初体验：从清华到Joshua Tree

08:03 - 第一次户外攀岩：30米大岩石的挑战

13:09 - 攀岩作为「生与死的运动」

17:46 - 攀岩中的包容性与个人化体验

25:36 - 美国残障者攀岩比赛经验分享

29:01 - 使用假肢攀岩的挑战与适应

47:28 - 给攀岩新手的建议：第一次就是要爬上去

00:00 - Opening and New Year Greetings

00:42 - Gratitude to Listeners & 2025 Podcast Awards

02:06 - Inspiration from Alex Honnold's Taipei 101 Climb

04:32 - Renci's First Climbing Experience: From Tsinghua to Joshua Tree

08:03 - First Outdoor Climb: The 30-Meter Rock Challenge

13:09 - Climbing as a "Sport of Life and Death"

17:46 - Inclusivity and Personalization in Climbing

25:36 - Sharing Experience from U.S. Adaptive Climbing Competition

29:01 - Challenges and Adaptations of Climbing with a Prosthetic

47:28 - Advice for New Climbers: Just Get to the Top on Your First Try

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

本期《残言片语》，主播仁慈和八如邀请的嘉宾，从听众席走到了麦克风前。Jayne目前在加州工作，同时还是一名长期与前庭性偏头痛共处的人。她没有典型的剧烈头痛，却会在某些时刻突然眩晕、脑雾、失去行动与工作的能力。从11岁被反复误诊，到成年后在学校、职场和美国医疗体系里不断自证，本期节目顺着她的故事，聊到了女性的痛为什么总是不被相信，慢性病如何悄悄改变人生选择，以及当制度跟不上身体时，人类只能如何硬撑。也希望听众可以与我们一起思考，当痛苦隐形的时候，我们还能不能够，又该如何继续彼此相信，彼此支持?

In this episode of Disabled Talks, Hosts Merci and Baru invite a guest who steps out of the audience and up to the microphone. Jayne, who currently works in California, is also someone who has been living with vestibular migraine. She doesn’t experience the stereotypical intense head pain, but instead faces sudden vertigo, brain fog, and moments of losing the ability to move or work. From repeated misdiagnoses at age eleven to constantly having to prove herself in school, the workplace, and the U.S. healthcare system as an adult, her story opens up a larger conversation about why women’s pain is so often doubted, how chronic illness quietly reshapes life choices, and what it means to keep pushing forward when systems fail to meet our bodies. We also invite listeners to think with us: when suffering is invisible, can we still learn how to believe in one another and support each other?

【时间轴 The When】

00:00:00｜偏头痛，不只是“头痛那么简单”

00:01:55｜没有头痛，却彻底失能：前庭性偏头痛是什么？

00:03:12｜被误解的偏头痛症状全谱：脑雾、视觉雪花、失语

00:05:37｜吃了药也不一定好：偏头痛的真实用药困境

00:09:29｜误诊、耳聋与被当作“励志榜样”

00:14:17｜留学与职场：慢性病如何悄悄重塑你的一生选择

00:19:39｜开车时突然“雪花屏”：隐形残障的危险瞬间

00:21:54｜为什么确诊这么难？美国医疗系统的推皮球

00:32:18｜为什么女性的痛总是不被相信？

00:47:51｜如果学校和职场真的理解慢性病，会长什么样？

01:00:59｜互助、命名与不孤独：我们为什么要关注隐形残障

00:00:00｜Migraine Is More Than “Just a Headache”

00:01:55｜No Headache, Yet Completely Disabled: What Is Vestibular Migraine?

00:03:12｜The Full, Misunderstood Spectrum of Migraine Symptoms: Brain Fog, Visual Snow, Aphasia

00:05:37｜Medication Doesn’t Always Work: The Real Treatment Dilemma of Migraine

00:09:29｜Misdiagnosis, Hearing Loss, and Being Turned into an “Inspirational Example”

00:14:17｜Study Abroad and the Workplace: How Chronic Illness Quietly Reshapes Life Choices

00:19:39｜“Visual Snow” While Driving: A Dangerous Moment of Invisible Disability

00:21:54｜Why Is Diagnosis So Hard? Being Passed Around in the U.S. Healthcare System

00:32:18｜Why Is Women’s Pain So Often Disbelieved?

00:47:51｜What Would Schools and Workplaces Look Like If They Truly Understood Chronic Illness?

01:00:59｜Mutual Aid, Naming, and Not Being Alone: Why Invisible Disability Matters

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

仁慈：假肢使用者，残障研究者，过气网红。

八如：INFJ听人，艺术家兼美国聋校教师。

Jayne：与前庭偏头痛和单侧听损共存二十年，工程师/Life Coach/女性主义社群主理人。

Renci: Prosthetic user, disability studies researcher, former influencer

Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality.

Jayne：20 years of co-existing with vestibular migraine and unilateral hearing loss; engineer, life coach, and feminist community organizer.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

本期《残言片语》特别活动开启啦！我们将送出《破形记：童话内外，那些残障之身》一书，共 6 本，两种方式参与： 第一种：在小宇宙节目下方留言，分享你听完本期后的感受或思考——也许是一段让你深受触动的内容，一个让你重新理解“正常”与“完美”的瞬间，或是一则你想重新讲述的童话。五天后，我们会选出点赞数最高的 3 条评论送书。 第二种：微博关注主播 @谢仁慈Mercy，评论并转发活动微博，我们会随机抽出 3 位朋友赠书。

这是一本带我们重新进入童话深处的书：为什么童话中的残障角色，不是被塑造成反派，就是等待拯救的对象？为何这些经典故事会深刻影响我们现代人对“健全”“美”“善恶”的理解？本期节目中，主播仁慈与八如邀请到《破形记》译者张书嘉老师，一起讨论那些被忽视的残障元素与隐喻。当残障者讲述自己的童话，故事会如何改变？让我们一起想象一种属于新世纪、能够容纳多元身体与多样结局的童话世界。

**This episode of Disabled Talks comes with a special giveaway! **

We’re giving away six copies of "Disfigured: On Fairy Tales, Disability, and Making Space". You can enter in two ways:

XiaoYuzhou (Podcast App) Giveaway: Leave a comment under this episode sharing your reflections—maybe a moment in the show that moved you, a passage that made you rethink “normalcy” and “perfection,” or a fairy tale you wish to retell. In five days, we’ll send a copy to the three comments with the most likes.

Weibo Giveaway: Follow the host on Weibo @谢仁慈Mercy and repost the giveaway post. We’ll randomly select three followers to receive a copy. This episode dives into the hidden worlds inside fairy tales. Why are disabled characters so often portrayed as villains, objects of pity, or people waiting to be saved? How have these stories quietly shaped our modern ideas of “wholeness,” “beauty,” and “good versus evil”?

Hosts Mercy and Baru speak with Shujia Zhang, translator of Disfigured: On Fairy Tales, Disability, and Making Space, to explore the overlooked disability metaphors embedded in classic tales. What happens when disabled storytellers reclaim and rewrite these narratives? Together, let’s journey into the depths of fairy tales and imagine a new century of stories—ones that embrace diverse bodies and many possible endings.

【时间轴 The When】

00:00:00 主播分享与残障童话翻译的感悟

00:05:49 翻译残障题材小说的洞见与冲击

00:10:52 童话故事与现实生活中的刻板印象

00:17:15 从《小美人鱼》看残障角色的社会隐喻

00:21:18 童话的道德训诫与迪士尼改编的影响

00:26:57 童话故事中他者形象的塑造与现实反应

00:31:35 童话故事中残障人物的象征意义

00:35:25 提升残障研究与语言标准的重视

00:42:08 为非健全个体争取叙事与表达空间

00:45:12 童话故事与残障视角下的个人叙事

00:00:00 – Reflections on Translating Fairy Tales and Disability

00:05:49 – Insights from Translating Disability Narratives

00:10:52 – Stereotypes in Fairy Tales and Real Life

00:17:15 – Disability and Social Metaphors in The Little Mermaid

00:21:18 – Moral Lessons and Disney’s Influence

00:26:57 – The Creation of the “Other”

00:31:35 – The Symbolism of Disabled Characters

00:35:25 – The Importance of Disability Language and Research

00:42:08 – Claiming Space for Disabled Narratives

00:45:12 – Personal Stories and Reimagining the Fairy Tale

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

几天前，台湾歌手郑智化在社交平台发文，称在深圳宝安机场因无障碍服务缺失，导致自己“连滚带爬”地登机，引发网友热议。初期大家纷纷声援，但随着一则剪辑过的视频曝光，舆论风向却急转直下。这期播客中，仁慈邀请了轮椅使用者大程子和盲人音乐家孔铭，三位残障者从自己的真实出行经验出发，讨论了“轮椅进不了机舱”“盲人被强制坐轮椅”“导盲犬过安检”“机场安检缺乏尊严”等多个极具现实张力的议题。节目的对话不只是关于愤怒，更在于揭示制度背后的冷漠与困境，以及在日常出行中如何争取更体面、更普惠的无障碍服务。

为什么国内机场轮椅上不了飞机的现象仍然普遍存在？当残障服务变成“形式主义”，谁来决定残障者的行动方式？为什么一个坡道的缺失，能够成为登机过程中的“生死鸿沟”？网友对“措辞”的敏感是否掩盖了对“权利”的漠视？

A few days ago, Taiwanese singer Zheng Zhihua posted on Weibo criticizing Shenzhen Bao’an Airport for failing to provide accessible boarding for disabled passengers. He described having to “crawl and roll” onto the plane—an account that first gained public sympathy but quickly turned controversial after an edited video surfaced online.

In this episode, host Renci is joined by Da Chengzi, a wheelchair user and video creator, and Kong Ming, a blind musician with a guide dog. Together, they unpack the deeper issues behind the viral incident, sharing personal stories and sharp observations about disability, dignity, and public infrastructure. From wheelchair inaccessibility to forced assistance for blind travelers, the conversation goes far beyond this single case—it's about the everyday friction faced by disabled individuals in supposedly public spaces.

Why is wheelchair inaccessibility still so common in Chinese airports? When accessibility services become rigid protocols, who gets to decide how disabled people move? How can the absence of something as simple as a metal ramp become a critical barrier? Is the online obsession with language and tone a way to avoid confronting structural inequality?

【时间轴 The When】

00:00:18 郑智化批评深圳机服务没做好，为何网友评价两极反转？

00:03:20 在国内机场，轮椅进不去机舱的事情很常见吗？是的！

00:09:00 郑智化无法顺畅进入机舱，其实就缺一块铁板斜坡！

00:12:20 盲人独立出行坐飞机，居然要被强迫坐轮椅？

00:17:25 加速的机场视频，掩盖事件真相

00:19:20 残障者并非不愿安检，只是安检的过程如何更有尊严？

00:32:40 导盲犬是警犬来安检吗？

00:35:00 对大程子来说，安检其实是登机最简单的一步

00:41:10 为什么说“连滚带爬”是个恰当形容词？

00:43:40 如果不是一个台湾歌手、老年人，郑智化事件会变得不一样吗？

00:50:30 专注于措辞而不是无障碍设施是一场非残障者对残障者的霸凌

00:55:10 看到网友对郑智化的霸凌，嘉宾们还会感到愤怒吗？

01:06:20 为什么大程子还要坚守在短视频平台讨论残障问题

00:00:18 – Zheng Zhihua criticizes poor disability services at Shenzhen Airport—why are online reactions so polarized?

00:03:20 – Is it common for wheelchair users to be unable to board planes at domestic airports? Yes!

00:09:00 – Zheng Zhihua couldn’t board smoothly—what was missing was just a simple metal ramp!

00:12:20 – Blind people traveling alone by plane—why are they forced to sit in a wheelchair?

00:17:25 – Time-lapse airport footage hides the truth of the incident

00:19:20 – Disabled people aren’t refusing security checks—they just want to be treated with dignity

00:32:40 – Are guide dogs checked by police dogs?

00:35:00 – For Da Chengzi, security check is actually the easiest part of boarding

00:41:10 – Why is the phrase “crawling and rolling” an accurate description?

00:43:40 – If Zheng Zhihua weren’t an elderly Taiwanese singer, would this incident be treated differently?

00:50:30 – Focusing on wording instead of accessibility is able-bodied bullying of disabled people

00:55:10 – Do the guests still feel angry seeing the online bullying of Zheng Zhihua?

01:06:20 – Why does Da Chengzi insist on staying on short video platforms to talk about disability issues?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

仁慈：假肢使用者，残障研究者，过气网红。

大程子：轮椅使用者，视频博主。

孔铭：盲人，导盲犬使用者，音乐家。

Renci: Prosthetic user, disability studies researcher, former influencer

Da Chengzi: Wheelchair user, video blogger

Kong Ming: Blind, guide dog user, musician

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

这一期，主播仁慈邀请了三位有导盲犬经验的视力障碍朋友，一起聊聊关于导盲犬的那些真实与误解。节目一开始，嘉宾就澄清了一个常见误区——盲人会用手机导航，而导盲犬的主要功能是带领盲人避开障碍，而不是导航。基于视障者的生活经验，他们讨论了为什么各种“高科技助残产品”都无法真正取代导盲犬的作用，也谈到在中国、美国和德国，培养导盲犬为什么都如此昂贵。节目还探讨了一个重要的问题——为什么在任何情况下把导盲犬和主人分开都是不人道的。最后，他们从“带导盲犬爬泰山”这一事件出发，反思导盲犬的权利究竟由谁来保障。如果你想了解导盲犬背后的真实世界，这一期节目就够了！

In this episode, host Mercy invites three visually impaired guests who have experience working with guide dogs to talk about the realities and misconceptions surrounding them. The conversation begins by clarifying a common misunderstanding—blind people can use smartphones for navigation, while the main function of a guide dog is to help its handler avoid obstacles, not to navigate. Drawing from their lived experiences, the guests discuss why various “high-tech assistive devices” can never truly replace guide dogs, and why training guide dogs is so costly in China, the United States, and Germany alike. They also explore an important question—why separating a guide dog from its handler under any circumstances is considered inhumane. Finally, starting from the incident of a person climbing Mount Tai with a guide dog, they reflect on who should be responsible for protecting guide dogs’ rights. If you want to understand the real world behind guide dogs, this episode is all you need.

【时间轴 The When】

00:04:00 盲人会用手机，导盲犬主要功能是“避障”而不是“导航”！

00:11:00 为什么“高科技”导盲设备不能替代导盲犬？

00:21:00 为什么培养导盲犬在世界范围内都那么昂贵？

00:32:00 德国和美国居然可以自己培训导盲犬？？

00:33:34 为什么国内反对导盲犬的声音比较大？

00:40:00 在任何情况下把导盲犬和主人分开为什么是不人道的？

00:49:45 为什么怕狗无法成为拒绝导盲犬的借口

00:53:40 带导盲犬爬泰山为什么会被批评？

01:00:00 导盲犬什么时候退休？导盲犬权利谁来保障？

01:07:00 导盲犬工作时会摸鱼但也有成就感

00:04:00 Blind people use smartphones too—guide dogs help avoid obstacles, not navigate.

00:11:00 Why can’t “high-tech” guiding devices replace guide dogs?

00:21:00 Why is guide dog training so expensive worldwide?

00:32:00 In Germany and the U.S., some people can even train their own guide dogs!

00:33:34 Why is opposition to guide dogs stronger in China?

00:40:00 Why is separating a guide dog from its handler in any situation inhumane?

00:49:45 “Fear of dogs” is not a valid excuse to reject guide dogs.

00:53:40 Why was climbing Mount Tai with a guide dog criticized?

01:00:00 When do guide dogs retire—and who protects their rights?

01:07:00 Even guide dogs “slack off” sometimes, but they also take pride in their work.

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

拜托了同志们，残障叙事可不可以先倒掉鸡汤再谈影视美学？本期节目，仁慈和八如聚焦四字弟弟主演的《小小的我》以及迪士尼大电影《听见颜色的女孩》(Out of My Mind) 的观影体验，通过“理性”批判讨论两部电影对脑麻患者日常的不同呈现，火热探讨残障角色在大众电影中的形象和叙事。残障选角请优先残障演员！残障选角请优先残障演员！残障选角请优先残障演员！重要的事情说三遍。好故事不轻易，灵感不等于你可以随手贴个“残障标签”。欢迎粉丝听友来杠！

Please, comrades, can we dump the inspirational schmaltz before we discuss film aesthetics in disability narratives? In this episode, Renci and Baru focus on "Little Me" starring Four-Character Brother and Disney's "Out of My Mind," examining their viewing experiences and "rationally" critiquing how these two films present different portrayals of daily life for people with cerebral palsy. We hotly debate the image and narrative of disabled characters in mainstream cinema. Cast disabled actors for disabled roles! Cast disabled actors for disabled roles! Cast disabled actors for disabled roles! Important things bear repeating. Good stories aren't easy—inspiration doesn't mean you can just slap on a "disability label" at random.

Fans and listeners, bring on the debate!

【时间轴 The When】

00:00:00 — 先撂狠话：不真实你就别拍残障题材

00:02:00 — 《小小的我》，大大的无语

00:02:57 — 叫“脑麻”不是“脑瘫”：称呼用不对，尊重在哪里？

00:09:25 — 把吃饭拍成灾难片，感动还是尴尬？

00:14:48 — 手持＋慢镜≠共情

00:17:56 — 残障权益制度薄，故事只能靠鸡汤

00:20:35 — 《听见颜色的女孩》真香

00:27:07 — 情节撒胡椒面：打鼓开车全来了，创作者你想表达啥？

00:49:07 — 拒绝“圆满”，我们需要有力量的残障叙事

00:00:00 — Setting the record straight: Nothing about us without us

00:02:00 — "Little Me," big eye-roll

00:02:57 — It's "cerebral palsy," not "brain paralysis": Wrong terminology, where's the respect?

00:09:25 — Turning eating into a disaster film—touching or cringe?

00:14:48 — Handheld camera + slow-mo ≠ empathy

00:17:56 — Weak disability rights framework means stories can only rely on feel-good fluff

00:20:35 — "Out of My Mind" actually delivers

00:27:07 — Scattered plot points: drumming, driving, everything thrown in—creators, what are you trying to say?

00:49:07 — Rejecting "perfect endings"—we need powerful disability narratives

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

你看过蕾哈娜超级碗表演中那位“抢镜”的手语翻译吗？为什么一个韩国男团的MV里会出现美国手语？本期残言片语，我们聊聊流行文化中那些引人注目的手语时刻，以及它们背后的故事。主播从一次追星经历聊起：去演唱会，我们追求的究竟是完美的音准，还是那种共享的氛围和情感体验？以此为切入点，我们深入探讨了聋人群体如何通过视觉、震动和情感共鸣，享受一场场音乐盛宴。从聋人艺术家Justina Miles如何将Rap的“态度”融入表情和动作，到Cardi B《WAP》露骨歌词的手语演绎为何带来别样的“视觉震撼”，我们剖析音乐是如何超越听觉，成为一种立体的、充满张力的身体表演艺术。

Have you seen the viral sign language interpreter from Rihanna’s Super Bowl performance? And why would a K-pop boy band’s music video feature American Sign Language (ASL)? In this episode, we talk about those striking sign-language moments in pop culture and the stories behind them.

When we go to concerts, are we chasing flawless pitch—or that shared atmosphere and emotional experience? How do members of the Deaf community enjoy a musical feast through visuals, vibration, and emotional resonance? From how Deaf artist Justina Miles infuses rap “attitude” into facial expressions and movement, to why the ASL performance of Cardi B’s “WAP” turns its explicit lyrics into a different kind of “visual shock,” we examine how music transcends hearing to become a multidimensional, physically charged performing art.

【时间轴 The When】

02:03 - “聋人”与“音乐”这两个概念如何并存

05:47 - 哥大聋人音乐计划的SETs理论：空间(Space)、情感(Emotion)、时间(Time)、形态(Shape)

11:07 - 讨论韩国男团Big Ocean在音乐中使用美国手语(ASL)的现象

15:06 - 探讨聋人身份认同：将自身定义为“语言上的少数者”而非“残障者”

21:50 - Rihanna超级碗手语翻译Justina Miles的表演为何是艺术“演绎”，而非机械翻译

29:00 - 手语和SETs理论诠释动物声音的工作坊

34:44 - 教自己的学生用手语演绎Rosalía歌曲《A Palé》

02:03 – How the concepts of “Deaf” and “music” can coexist

05:47 – The SETs framework from Columbia University’s Deaf Music Program: Space, Emotion, Time, Shape

11:07 – Discussing the phenomenon of the Korean boy group Big Ocean using American Sign Language (ASL) in music

15:06 – Exploring Deaf identity: defining oneself as a “linguistic minority” rather than “disabled”

21:50 – Why Rihanna’s Super Bowl interpreter Justina Miles’s performance is an artistic interpretation, not a mechanical translation

29:00 – A workshop interpreting animal sounds through sign language and the SETs framework

34:44 – Teaching my students to perform Rosalía’s “A Palé” in sign language

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

这期节目里，仁慈和八如聊了聊最近美国一系列政治政策上的动荡，对她们生活带来了哪些影响。为什么同样一件事，每个人的解读和反应却那么不一样？仁慈分享了自己小时候不安全的成长环境，是怎么影响她处理情绪的。因为缺乏安全感，仁慈会习惯性地用极端或灾难性的想法来让自己觉得“掌控住了局面”。八如则谈到了童年时父母忽略她情感需求的经历，这让她长大后习惯用“拼命工作”来证明自己值得被爱。可这股“工作狂”劲，也在潜移默化中影响着她的亲密关系。从外界环境开始，仁慈和八如一起探讨那些每个人内心深处的爱与惧。

In this episode, hosts Mercy and Baru talk about how the recent wave of political and policy upheaval in the U.S. has impacted their personal lives. Why is it that the same event can be interpreted so differently by different people? Mercy shares how growing up in an unsafe environment shaped the way she processes emotions—she often turns to extreme or catastrophic thinking to feel a sense of control in uncertain situations. Baru opens up about how her emotional needs were overlooked by her parents during childhood, which led her to equate being loved with working hard. Over time, this “workaholic” tendency began to subtly affect her close relationships. Starting from the external world, Mercy and Baru dive deep into the inner worlds of fear and love that shape us all.

【时间轴 The When】

00:00:00 特朗普政府近期政策对八如和仁慈的影响

00:05:16 仁慈谈对美国法治和民主的幻灭

00:14:24 灾难化、极端化心理机制与童年创伤

00: 22:00 陷入虚无的日子该如何度过

00:25:00 被忽视的情感需求的童年与工作狂倾向

00: 29:57 特朗普的童年与自恋心理机制

00:33:37 想象死亡：一种缓解焦虑的方式？

00:35:00 如果有下辈子，你还想当人类吗？

00:00:00 — How Recent Trump Administration Policies Have Affected Baru and Renci

00:05:16 — Renci on Losing Faith in American Democracy and the Rule of Law

00:14:24 — Catastrophic Thinking, Extremism, and the Lasting Effects of Childhood Trauma

00:22:00 — How to Cope with Feelings of Nihilism

00:25:00 — Emotional Neglect in Childhood and the Drive to Become a Workaholic

00:29:57 — Trump's Childhood and the Psychology of Narcissism

00:33:37 — Can Thinking About Death Help Reduce Anxiety?

00:35:00 — If You Had Another Life, Would You Choose to Be Human Again?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

本期节目，仁慈和八如邀请了正在纽约念法学院的钟老师，共同解构最近一跃成为美国政客和媒体热词的DEIA政策（多元，平等，包容，无障碍）。为什么一提到DEIA就有人破防？残障者、跨性别者、移民到底在这场身份政治中扮演了什么角色？精英是怎么把DEIA政策搞成门面工程，而保守派又是如何靠“狗哨政治”忽悠选民？让我们从残障者的真实处境出发，重新打开对多元政策的理解。

In this episode, hosts Mercy and Baru are joined by Zhong, a current law student in New York, to unpack the DEIA policy—Diversity, Equity, Inclusion, and Accessibility—which has recently become a buzzword among U.S. politicians and media. Why does DEIA trigger such strong reactions? What roles do disabled people, transgender individuals, and immigrants play in this game of identity politics? How have elites turned DEIA into a performative showpiece, and how are conservatives using “dog-whistle politics” to manipulate public opinion?

【时间轴 The When】

00:00:00 开场就来个重锤：残障者常在多元化政策中被边缘，甚至背锅

00:05:13 钟老师写文章揭露保守派“Project 2025”，DEI攻防战早就悄悄开始了

00:09:10 特朗普甩锅“多元雇佣”政策下的残障者

00:12:24 “Accessibility”无障碍去哪了？政策里看似被提到，其实常常被忽略

00:19:12 什么是真正的“平等”？我们聊了“实质 vs. 形式”的差别

00:31:43 推荐书籍《当平权行动是为白人服务时》，你会懂现在的很多误解从哪来的

00:43:37 社交媒体是怎么一步步带歪大家对DEI的看法的？

01:24:10 504条款风波，跨性别者医疗权被纳入残障保护，竟然引发多州起诉

02:29:00 那些说“我反对DEI”的人，真的知道自己在反对什么吗？

00:00:00 Kicking things off with a bang: Disabled people are often sidelined—or even scapegoated—in diversity policies

00:05:13 Zhong reveals “Project 2025” in her article—conservatives have been quietly waging war on DEI for a while

00:09:10 Trump blames disabled people under “diversity hiring” after a helicopter crash

00:12:24 Where did “Accessibility” go? It’s mentioned in policy, but often ignored in practice

00:19:12 What does real equality mean? We unpack the difference between formal and substantive equality

00:31:43 Book rec: When Affirmative Action Was White—a must-read to understand where today’s backlash comes from

00:43:37 How social media slowly distorted public understanding of DEI

01:24:10 Section 504 controversy: Expanding disability protections to include trans healthcare sparked lawsuits across states

02:29:00 For those who say “I’m against DEI”—do you really know what you’re opposing?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

在这期新年碎碎碎碎念中，主播八如和仁慈从睡眠谣言聊到工作与生活的切割术，穿越冥想，最终汇报了各自的新年愿望。记得锁定下一期，继续感受一边残言片语，一边狠嚼硬核干货。

In this New Year's rambling episode, hosts Ba Ru and Mercy dive into everything from sleep myths to the art of work-life severance, take a detour through meditation, and finally share their New Year's resolutions. Stay tuned for the next episode—where casual banter meets hardcore insights!

【时间轴 The When】

00:01:41 希望自己变得更懒一点——这也能算新年目标？

00:02:50 八小时睡眠是骗人的，复习睡眠需求和周期理论

00:05:57 接受自己的低能量时刻，如何高效地工作和休息

00:08:51 讨论工作和生活的Severance，如何不被工作绑架

00:10:59 冥想是焦虑主播们的救星

00:23:45 主播们慢慢成长的新年愿望

00:30:16 仁慈主播计划夏季前往加州旅行，讨论旅行与个人成长的关系

00:39:42 终结碎碎碎碎碎念，下一期继续干货满满

00:01:41 Hoping to become lazier—Can this really be a New Year's resolution?

00:02:50 The "8-hour sleep rule" is a lie! Reviewing sleep needs and cycle theories.

00:05:57 Accepting low-energy moments—how to work and rest efficiently.

00:08:51 Discussing work-life "Severance"—how not to be enslaved by your job.

00:10:59 Meditation: The ultimate savior for anxious podcast hosts.

00:23:45 The hosts' slowly evolving New Year's resolutions.

00:30:16 The kind-hearted host plans a summer trip to California—discussing travel and personal growth.

00:39:42 Wrapping up the endless rambling—next episode will be packed with solid content!

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

当我们热烈讨论"有尊严地死去"的权利时，是否曾停下来思考，有多少人尚未获得"有尊严地活着"的条件？在当代政治与伦理的激辩场上，安乐死权利被包装为自由与选择的象征，但在一个对残障理解不足的社会里，这种自由选择是否真的如表面般简单？ 仁慈与林三土展开了一场关于安乐死的深度对话，试图穿透这个议题表面的浪漫色彩，直面其背后的复杂张力。从纳粹德国的T4计划到现代医疗系统的结构性缺陷，从残障者的日常挣扎到生命尊严的多元解读，这场对话展现了安乐死辩论中常被忽视的残障视角。

When we passionately debate the right to “die with dignity,” have we ever paused to ask how many people still lack the conditions to “live with dignity”? In the contemporary arena of political and ethical debates, the right to euthanasia is often presented as a symbol of freedom and personal choice. But in a society that lacks a thorough understanding of disability, is that freedom and choice really as straightforward as it seems? In this in-depth conversation, Mercy and Lin Santu discuss euthanasia and attempt to cut through its romanticized veneer, confronting the complex tensions beneath the surface. From Nazi Germany’s T4 program to the structural shortcomings of modern healthcare systems, from the daily struggles of people with disabilities to the multifaceted interpretations of dignity in life, their dialogue highlights the perspectives on euthanasia that are often overlooked by mainstream debates.

【时间轴 The When】

00:00:00 什么是高质量的生活?从残障视角重新思考生命的价值

00:05:38 安乐死的不同形式:主动与被动安乐死的区分

00:06:58 痛苦与自主选择:安乐死权益的基本诉求

00:25:31 早期安乐死运动中的偏见:对残障生活的误解

00:32:02 医患关系中的信息不对等:如何做出真正知情的选择?

00:37:48 现有安乐死法案中缺失的残障视角

00:47:53 家庭压力下的"自主"选择

00:52:22 照护责任应由社会承担而非个人

01:18:24 在追求"尊严死"之前,应先确保"尊严活"

00:00:00 So-called “life quality”: Rethinking the value of life from a disability perspective

00:05:38 Different forms of euthanasia: Distinguishing between active and passive euthanasia

00:06:58 Pain and autonomy: The fundamental demands of the right to euthanasia

00:25:31 Early euthanasia movements: Misunderstandings surrounding the lives of disabled people

00:32:02 Information asymmetry in doctor-patient relationships: How can we make truly informed choices?

00:37:48 The missing disability perspective in current euthanasia laws

00:47:53 “Autonomous” decisions under family pressure

00:52:22 Care responsibilities should be borne by society, not individuals

01:18:24 Before striving for a “dignified death,” we must first ensure a “dignified life”

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

【聊了什么 The What】 本期节目是与播客《城市罐头》的串台合作，同时也是其“无障碍系列”的第二期。本期聚焦听障社群，由主播八如与在上海出生，目前在美国从事建筑设计的聋人朋友 Tarry、建筑师 Yao 以及城市设计师小王，共同探讨听障空间的生活，语言，和社区体验。

点击这里查看本期节目的文字稿

This episode is a collaboration with the podcast “城市罐头”. Focusing on the Deaf and hard-of-hearing community, our host Baru is joined by Tarry—a deaf friend born in Shanghai who now works in architectural design in the U.S.—along with architect Yao and urban designer Xiao Wang. Together, they explore how people with hearing impairments experience space, language, and community.

Click here for this episode’s transcript

【时间轴 The When】

00:03:16 "聋人文化"解析：听障群体称谓的演变

00:07:11 空间与手语的关系:建筑设计师眼中的听障空间想象

00:13:18 特殊教育现状:口语教育vs手语教育的争议

00:23:32 城市信息获取:听障人士如何应对城市中的声音信息

00:40:22 公共空间设计:电影院等场所的无障碍设施现状

00:45:09 开放空间优势:双层中庭对听障人士社交的独特价值

00:51:02 文化空间改造:如何让艺术场所更包容听障群体

00:03:16 Explaining “Deaf culture”: How terminology for the hearing-impaired community has evolved

00:07:11 The relationship between space and sign language: Perspectives from an architectural designer on spaces for the hearing-impaired

00:13:18 The current state of special education: The debate between oral education vs. sign language education

00:23:32 Accessing city information: How hearing-impaired individuals navigate sound-based information in urban environments

00:40:22 Public space design: The current status of accessibility facilities in places like movie theaters

00:45:09 The benefits of open spaces: How a double-level atrium uniquely supports social interaction for the hearing-impaired

00:51:02 Transforming cultural venues: How to make art spaces more inclusive for the Deaf and hard-of-hearing community

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

嘉宾

伊如 纽约聋校老师兼瓶颈期艺术家 Tarry 建筑打工仔 Yao 建筑师 小王 城市设计师

BGM

September by Earth, Wind & Fire

【拓展链接 The Links】 https://experiments.withgoogle.com/seeing-music

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

本集播客录制于美国大选结果出来之前。

主播仁慈受邀参加“美轮美换”播客，与Lokin一起讨论美国政治中的残障问题。仁慈和Lokin讨论了为什么特朗普关于残障的种种言论都映射白人至上主义而让人感到不适，也聊到了美国著名的残障政治家有哪些。仁慈从残障视角讨论了及拜登退选风波中关于年龄和能力的争议。最后，仁慈和Lokin讨论了残障者在美国总统选举中的角色以及她们投票时遇到的挑战。

Mercy, the host, was invited to join the The American Roulette podcast to discuss disability issues in American politics with Lokin. Mercy and Lokin explored why Trump’s various comments on disability reflect white supremacy and make people uncomfortable, and they also discussed notable disability advocates in U.S. politics. Mercy shared her perspective on the controversies surrounding age and capability in the context of Biden’s decision not to run. Finally, Mercy and Lokin talked about the role of disabled individuals in U.S. presidential elections and the challenges they face when voting. This episode was recorded before the results of the U.S. election were announced.

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【主播介绍 Hosts】

仁慈：残障者，残障研究者，过气网红。

Lokin：美国法学院学生，即将成为一名纽约诉讼律师。

Mercy: Person with disability, disability studies researcher, ex-influencer.

Lokin:A law student in the United States, soon to become a litigation attorney in New York.

【时间轴 The When】

00:04:14 什么是能力健全中心主义(ableism)？ 00:07:24 罗斯福时代的残障隐藏 00:25:45 残障身份的自我认同与社会认同 00:37:21 John Fetterman与心理健康议题 00:42:38 人类脆弱性的政治意义 00:56:29 能力与职位匹配的讨论 01:11:43 残障选民面临的投票障碍

00:04:14 - Understanding ableism: What is it? 00:07:24 - FDR era: Hiding disability in politics 00:25:45 - Disability identity: Personal vs. social recognition 00:37:21 - John Fetterman and mental health in politics 00:42:38 - The political significance of human vulnerability 00:56:29 - Debating ability-role fit in leadership 01:11:43 - Voting barriers for disabled citizens

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

主播仁慈和八如邀请到了积极服务残障社群的热心同志，大饺子和小汤圆，来一起探讨如何成为残障社群的好盟友。嘉宾们分享了和残障社群共处的点滴，并在其中觉察自身的交叉性，勉励各自在成为盟友的旅途中坚持学习和反思，包括知道何时"传递麦克风"给更受影响的社群。欢迎来观察我们的真心话和大冒险，一起来更好的支持彼此和残障社群。

Hosts Renci and Baru invite active community members Da Jiao Zi and Xiao Tang Yuan to discuss how to be good allies to people with disabilities. The guests share their experiences of interacting with the disability community, reflecting on their own intersectionality, and encouraging each other to continue learning and reflecting on their journey to becoming allies, including knowing when to "pass the microphone" to more affected communities. Join us for our truth-or-dare session as we explore ways to support each other as well as the disability community.

【嘉宾介绍 Guests】

大饺子：听人，名义上在做城市无障碍研究，实际上放弃梦想变成了大饺子

小汤圆：同行者，残健融合的培训专家，什么都在做的斜杠青年

Da Jiaozi: Claims to study urban accessibility, but gave up dreams and turned into a dumpling

Xiao Tangyuan: Disability inclusion trainer by day, career juggler by night

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【主播介绍 Hosts】

仁慈：残障者，残障研究者，过气网红。 八如：INFJ听人，艺术家兼美国聋校教师。

Mercy: Person with disability, disability studies researcher, ex-influencer. Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality.

【时间轴 The When】

00:00:00 残障盟友的多元身份:从非残障者到深度连接者的转变

00:13:20 盟友历程中的救世主情结:从施舍到平等对话的蜕变

00:22:49 从志愿者到深度参与者的转变

00:35:35 残障者的不配得感:社会建构的结果

00:41:09 何为真正的盟友:超越标签与身份的思考

00:48:58 无障碍概念的复杂性与模糊性

00:52:24 空降者与真诚盟友的区别:从消费到共情的转变

01:10:36 残障身份的流动性与普遍性思考

0:00 - Beyond allyship: From outsider to deep connector

13:20 - Overcoming the savior complex: Finding equal dialogue

22:49 - Evolution: From volunteer to active participant

35:35 - Imposter syndrome in disability: A social construct

41:09 - True allyship: Looking past labels

48:58 - Accessibility: It's complicated

52:24 - Drive-by allies vs. genuine supporters: From consumption to empathy

1:10:36 - Disability identity: Fluid and universal

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么 The What】

人工智能正以惊人的速度发展，并被视为塑造未来的关键力量。但这期播客的两位嘉宾从残障群体的视角出发，对AI技术提出了尖锐的质疑：技术进步真的能让所有人受益吗？当前的AI系统是在放大人类的偏见，还是在创造一个更加平等的世界？

从招聘算法对女性的歧视，到自动驾驶系统无法识别轮椅使用者，再到面向残障人士的"高科技"辅具背后的救世主心态……在技术浪潮席卷而来之际，我们如何确保每一个人的声音都能被倾听？

Artificial Intelligence is advancing at a remarkable pace and is widely seen as a transformative force shaping our future. However, in this podcast, two guests examine AI technology through the lens of disability rights, raising critical questions: Will technological progress truly benefit everyone? Are current AI systems amplifying human biases, or are they creating a more equitable world? From recruitment algorithms that discriminate against women to self-driving systems that fail to recognize wheelchair users, to the savior complex behind "high-tech" assistive devices for people with disabilities - as the wave of technology sweeps forward, how do we ensure that every voice is heard and considered?

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【主播介绍 Hosts】

仁慈：残障者，残障研究者，过气网红。 吴迪：MIT博士，研究兴趣医疗、科技、和残障。

Mercy: Person with disability, disability studies researcher, ex-influencer. Di Wu: MIT Phd, research focus on healthcare, tech, and disability.

【时间轴 The When】

00:03:14 日常生活中无处不在的AI算法，以YouTube推荐为例

00:19:39 招聘算法因样本有偏差而歧视女性

00:26:04 AI在识别残障者方面存在问题，以自动驾驶识别轮椅为例

00:38:44 AI监测学生上课情况，可能会对残障学生不利

00:42:43 一些辅助技术是为了让残障者"变正常"，而非帮助他们更好地参与社会

00:54:53 好的辅助技术需要将残障者视为专家，而非仅仅是用户

3:14 - AI is everywhere

19:39 - Recruitment AI bias against women

26:04 - Self-driving cars failing to detect wheelchairs

38:44 - AI classroom monitoring impacts on disabled students

42:43 - Assistive tech: normalizing vs. enabling participation

54:53 - Disabled people as experts, not just users

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com

本期节目文字稿

【聊了什么The What】

主播仁慈分享了她作为残障者的个人经历，以及在成长过程中面临的各种挑战和歧视。她讲述了如何拥抱愤怒来成为残障权利倡导者和学者。八如作为非残障者分享了她与残障社群产生联结的缘起，以及在电影和聋重人教育领域的工作经验。

这一期节目探讨了残障不仅仅是固定身份，也是每个人可能经历的流动瞬间。希望残言片语可以让更多人关注到残障议题，切换残障视角看世界，发现这个世界并非我们想象中那样理所当然，才能更好的身处社会，彼此关怀。

Host Mercy generously shared her personal experience as a person with a disability, recounting the various challenges and discrimination she faced growing up. She spoke about how she embraced her anger to become a disability rights advocate and scholar. As a non-disabled person, Baru shared how she first connected with the disability community, along with her experiences working in film and education for the deaf and hard of hearing.

This episode explored the idea that disability is not just a fixed identity but something anyone might experience at different moments in life. The hope is that these words can inspire more people to pay attention to disability issues, shift their perspectives, and see the world differently. Only by understanding that the world is not as straightforward as we often assume can we foster a more caring and inclusive society.

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

【主播介绍 Hosts】 仁慈：残障者，残障研究者，过气网红。 八如：INFJ听人，艺术家兼美国聋校教师。

Mercy: Person with disability, disability studies researcher, ex-influencer. Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality.

【时间轴 The When】

00:05:10 愤怒是创作的源泉

00:11:01 仁慈成为仁慈的故事：选择相信一种叙事

00:26:42 八如成为八如的故事：学习手语，与聋人社群的联结

00:45:36 人的脆弱性，身体记忆，与残障瞬间

00:51:53 残障群体内部的多元

00:54:29 无障碍设施造福所有人

00:05:10 Rage as a source of creativity

00:11:01 Mercy’s origin story

00:26:42 Baru’s origin story

00:45:36 Human vulnerability, body memory, and moments of disability

00:51:53 Highlighting the diversity within disabled community

00:54:29 Accessible facilities benefit everyone

【支持我们 Please Support Us】

如果喜欢这期节目并愿意支持我们：

海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：disabled.talks.pod@gmail.com

If you like our show and want to support us, please consider the following:

Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: disabled.talks.pod@gmail.com