Nach Genre filtern
My name is Frankie Caputo and I was born with congenital nystagmus. There were times in my life where I allowed my nystagmus to define me. It wasn’t until I turned around 20 years old that I realized how much more there is to life than my eye condition and the anxiety that it was causing me. I began a journey of self discovery focusing on my mind, body and soul. In the course of this discovery, The Dancing Eyes Podcast was born. I had never met anyone else who had nystagmus, and really began to question the statistics that say that 1 in 1000 people have the condition. The first episode of The Dancing Eyes Podcast aired on July 28, 2021. New episodes are released on the first and third Monday of each month. In each episode, my guests and I go deep on how living with nystagmus affects us on a day to day basis. We discuss topics such as doctors and surgeries, school and bullying, driving and tips for parents. If you have nystagmus or love someone who does, come be uplifted by our incredible guests telling their personal stories. Please hit the subscribe button and join our community. All links - https://linktr.ee/dancingeyespodcast
- 25 - How Can Vision Therapy Help Nystagmus? Dancing Eyes Podcast #25 - Dr Julie Steinhauer
Vision therapy and syntonics can be used to improve vision and lessen the movements of people with nystagmus. In episode 25 of the Dancing Eyes Podcast, Dr. Julie Steinhaur joins me to discuss her practice and the benefits of vision therapy and syntonics. Have a consultation with Dr. Julie - https://visiont.krtra.com/t/LSW6qNgzcP9c Vision Therapy Youtube Channel - https://www.youtube.com/@visontherapy/videos TIMESTAMPS 0:00 Intro 1:05 What is vision therapy? 1:55 What is syntonics? 3:30 Are the syntonics always used when you practice vision therapy? 4:20 All of Dr. Julie’s patients have experienced at least a 2 line increase in their vision acuity. 8:20 What is the youngest age that Dr. Julie would have a patient do syntonics? 12:00 Do you see a decrease in the eye movements of your nystagmus patients? 16:35 Breathing technique demonstrations to slow down eyes 21:00 Does the new and improved vision remain once therapy is complete? 23:50 Vision therapy is available both in person and virtually. 30:20 How does someone know whether they should go for vision therapy or for a surgical procedure? 34:40 Do you see an increase in balance in your nystagmus patients? 37:40 Can you tell me some of your favorite success stories? 39:30 What are some common misconceptions about syntonics and why do some people choose to not practice vision therapy with them? 43:40 How much would vision therapy cost? 48:45 Closing words Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputocomedy/ Want to be a guest? https://form.jotform.com/222415937902154 All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com Thank you for watching. I hope everyone enjoys!
Tue, 22 Nov 2022 - 49min - 24 - Finding Love With Nystagmus | Becky’s Blurred Perspective | Dancing Eyes Podcast #24 - Becky
In episode 24 of the Dancing Eyes Podcast, Becky, a university student in England and creator of Becky's Blurred Perspective, joins me to chat about her life with nystagmus as well as answer some questions that listeners have sent in. Some questions include "Is it hard to find love with nystagmus"? and "How were your eye movements when you were younger compared to now"? Becky's Blurred Perspective - https://beckysblurredperspective.co.uk/ Instagram - https://www.instagram.com/beckys.blurred.perspective/ TIMESTAMPS 0:00 Intro/ American Nystagmus Network 1:20 Episode begins/ Becky’s blog: Becky’s Blurred Perspective 4:40 Being hyper aware of our eyes 6:00 How did Becky become less insecure about her eyes? 7:55 The impact that influencers with nystagmus have on us 9:54 Becky’s friend who has nystagmus 12:15 Becky’s vision acuity 13:55 A nystagmus pet peeve 16:30 Not wanting to disclose our nystagmus during a job search 17:45 The stereotype that people with unordinary eyes lack intelligence 20:20 Becky’s thoughts on not being able to drive 23:50 Where does Becky find fulfillment? 25:00 Listener question #1 How are your eye movements now compared to when you were younger? 29:45 Listener question #2 Is it hard to find love? 40:10 Listener question #3 How do I discuss my child’s eyes in front of them? 45:15 Becky’s advice for people who are struggling with nystagmus Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ Want to be a guest? https://form.jotform.com/222415937902154 All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Wed, 19 Oct 2022 - 46min - 23 - How Nystagmus Affects Personality | Psychologist With Nystagmus | Dancing Eyes Podcast #23 - Cameron
In episode 23 of the Dancing Eyes Podcast, Cameron joins me to talk about his work as a provisional psychologist and how nystagmus affects his job. We also discuss how living with nystagmus has an affect on our personalities and what we would do if we were given the option to to longer have the condition. TIMESTAMPS 0:00 Intro/ American Nystagmus Network 1:44 Episode begins/ Cameron talks about being able to relate to previous guests 2:50 The nystagmus related content available online is not satisfying 6:27 How do you mention your nystagmus to others/ Cameron’s organic way of bringing it up in conversation 11:25 It is a relief when you meet someone who already knows what nystagmus is 13:10 How does your nystagmus affect sessions with your therapy patients? 15:42 What led Cameron to working in psychology? 17:30 Has Cameron’s knowledge of psychology helped him cope with his eyes? 18:55 When did nystagmus start playing a role in your life? 22:00 Cameron’s experience with his inability to drive. 26:50 Is the 20/20 system a bad way to measure our vision? 31:35 If you could get rid of your nystagmus right now, would you? 35:30 I love when I am in an environment in which sunglasses are necessary. 37:00 People have thanked me for mentioning my nystagmus to them. 39:10 How has nystagmus affected Cameron’s relationships with women? 42:20 Making jokes about our eyes/ coping mechanisms when passing by people who we can’t see/ comedy talk 54:40 Fun podcast idea 56:50 Cameron’s supportive friend/ awkward visually impaired scenarios 1:02:15 What is some advice for people living with nystagmus? What is some advice for parents of children with nystagmus? 1:04:20 Closing words Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ Want to be a guest? https://form.jotform.com/222415937902154 All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 03 Oct 2022 - 1h 05min - 22 - Vision Therapy, Changing the Color of Our Environment, Philosophy | Dancing Eyes Podcast #22 - Chris
In episode 22 of the Dancing Eyes Podcast, Chris introduces me to a lot of interesting ideas including new philosophies, how changing the color of our environment can affect our eyes, and how nystagmus affects the way he thinks. He also explains to me some of the things that he has learned from vision therapy including how breathing can affect the movement of our eyes, the usage of prisms, and eye exercises. TIMESTAMPS 0:00 Intro/ American Nystagmus Network 1:40 Episode begins. 3:35 What gravitated you towards a degree in philosophy? Why do people treat us differently because of our eyes? 5:15 How has nystagmus made you more of a thinker? 7:35 Painting and mindful breathing helps Chris calm his eyes. 9:00 Vision therapy as a way to treat nystagmus. Looking hard vs looking soft. 13:45 Helping our eyes by adjusting the lighting in our environment. 17:50 How can we get less self conscious about our eyes? 20:55 Antifragility 23:25 How is nystagmus an “Invisible disorder”? Getting a job with nystagmus. 29:20 My experience with having lawyers on the podcast 32:00 Nystagmus in comparison to other disorders. 33:30 The benefit of laughing at ourselves. 37:50 PARENTS listen to this. 41:10 Chris was a Ukrainian dancer for 15 years. What kind of effects does dancing have on our eyes? 44:50 Using prisms to treat double vision and nystagmus. More vision therapy talk. 53:40 Syntonic light therapy 57:50 Closing words Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 19 Sep 2022 - 1h 03min - 21 - Walking the Length of New Zealand and Raising Money For Nystagmus | Dancing Eyes Podcast #21 - Mikey
Through documenting his journeys walking the full length of New Zealand and cycling the border of Tasmania, Mikey has raised thousands of dollars for nystagmus research. In episode 21 of the Dancing Eyes Podcast, Mikey, the creator of Walk for Wiggly Eyes joins me to talk all about it. Walk For Wiggly Eyes Links Instagram - https://www.instagram.com/walk_for_wiggly_eyes/ Youtube - https://www.youtube.com/channel/UC1SMD02-pbkHDUAtSrIzw4w/videos Facebook - https://www.facebook.com/watch/WalkforWigglyEyes/ Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 05 Sep 2022 - 1h 18min - 20 - Skateboarding With Nystagmus, Stand Up Comedy and Tattoos | Dancing Eyes Podcast #20 - Chad
Chad was born with Congenital Nystagmus and also happens to be a great skateboarder. In episode 20 of the Dancing Eyes Podcast, we discuss stand up comedy, tattoos, having a twin with nystagmus, Chad's experience with skateboarding and a lot more! Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Chad's Instagram: https://www.instagram.com/chaddisfaction/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 15 Aug 2022 - 58min - 19 - Null Point Corrective Surgery, Contact Lenses and High School | Dancing Eyes Podcast #19 - Maki
In episode 19 of the Dancing Eyes Podcast, Maki joins me to discuss their experience living with nystagmus. This episode includes topics such as Maki's experience with their null point corrective surgery, music, school, contact lenses and a lot more! Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 01 Aug 2022 - 36min - 18 - 1 Year Anniversary! Dancing Eyes Podcast #18
Today we celebrate the 1 year anniversary of the Dancing Eyes Podcast! Thank you to everyone who has joined me on the show and thank you to anyone who has ever listened to an episode! This episode is a compilation of some of my favorite moments in the podcast. (I have somehow lost the footage from episode #3 and unfortunately couldn't use anything from there). Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/
Mon, 01 Aug 2022 - 13min - 17 - Sports Broadcasting With Nystagmus | Dancing Eyes Podcast #17 - Chris
Chris is a sports broadcaster, a professor and a father. In episode 17 of The Dancing Eyes Podcast, we discuss his career in broadcasting and a lot more! Timestamps for conversations are available below. TIMESTAMPS 0:00 Intro/ American Nystagmus Network 1:08 Chris’s career in sports broadcasting 15:00 Sports talk 30:30 How does your nystagmus affect your career/ transportation? 37:00 How did nystagmus affect your childhood/ how did you find out about it? 46:15 Chris played football in high school without glasses/ other sports he played. 49:30 Calming down our eyes/ advice on dealing with nystagmus Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 04 Jul 2022 - 52min - 16 - How Does Nystagmus Affect Fatherhood? | Dancing Eyes Podcast #16 - Nate
In episode 16 of The Dancing Eyes Podcast, Nate joins me to discuss how having nystagmus affects fatherhood. We also talk about finding meaning in life, as well as coping with our nystagmus and many other topics. Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 20 Jun 2022 - 1h 14min - 15 - Bullies Who Apologized, The Beatles, and Elephants Who Can Paint | Dancing Eyes Podcast #15 - Sam
In episode 15 of The Dancing Eyes Podcast, Sam joins me to have a laid back conversation about a wide variety of things including our eyes, music preferences, and elephants that can paint. Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 06 Jun 2022 - 59min - 14 - Raising a Child With Nystagmus, Parent Round Table | Dancing Eyes Podcast #14
In episode 14 of The Dancing Eyes Podcast, I have 6 parents joining me to talk about their experience raising children with Nystagmus. Greg, Michele, Domenica, Tonya, Jen and Shari (my mom) share stories and tips about parenting a child with Nystagmus. Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 16 May 2022 - 1h 33min - 13 - 3d Printing and Finishing a Half Marathon With Cerebral Palsy | Dancing Eyes Podcast #13 - Alessio
Alessio talks to me about his experience living with Nystagmus and Cerebral Palsy. We discuss his experience playing on multiple soccer teams, his 3d printed designs, his recently completed half marathon, and a lot more! Alessio's Instagram: https://www.instagram.com/the_disabled_designer/ Alessio's Half marathon footage: https://www.instagram.com/p/CaxQj9sot4cBhYmLaWKtOeGg37q-t5xFkm3rUo0/ Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Mon, 02 May 2022 - 51min - 12 - Music Education Major Living With Congenital Nystagmus | Dancing Eyes Podcast #12 - Alyssa
Alyssa is a freshman in college and was born with congenital nystagmus. She is currently in school for music education and she enjoys opera and musical theater. Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!
Tue, 19 Apr 2022 - 53min - 11 - Importance of Laughing at Ourselves and a Facebook Altercation | Dancing Eyes Podcast #11 - Ellie
Ellie is a senior in high school and was born with congenital nystagmus. In this episode we discuss some tips on living with nystagmus and we also discuss a controversial post in the American Nystagmus Network's facebook group from about a month ago. We discuss a lot more as well. Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo/ All Links https://linktr.ee/dancingeyespodcast Email: frankiecaputo@gmail.com NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for listening. I hope everyone enjoys!
Mon, 04 Apr 2022 - 46min - 10 - Competing in Deca, Eye Exercises, High School with Nystagmus | Dancing Eyes Podcast #10 - Alex
In episode 10 of The Dancing Eyes Podcast, Alex joins me to talk about his experience living with Nystagmus. He is a freshman in high school and just competed in his first Deca competition. Timestamps for conversation topics are listed below. TIMESTAMPS 0:00 Introduction 01:05 Episode begins 01:35 Alex backstory 03:35 Involvement with American Nystagmus Association 04:35 Doctor stories/ playing sports 07:35 Head tilt/ zoom calls 09:45 Avoiding head tilt while having conversations or pictures/ looking for Nystagmus sources as a teenager 14:30 Creation of the podcast/ logo design 16:25 Do you consider Nystagmus to be a disability? 18:30 What other conditions do you have? 19:05 Alex’s experience with his first Deca competition/ involvement of Nystagmus in the competition 31:35 Bringing up the Nystagmus when meeting new people/ difficulties making friends/ school experiences 37:45 Obtaining a driver's license 38:40 I demonstrate the eye exercises that I have been doing 42:30 Back to the driving talks/ technology and Nystagmus 48:15 504 plan/ school accommodations 50:45 Alex’s Nystagmus conference experience/ public speaking 58:20 Nystagmus in Alex’s family 59:55 My experience with procedures on my eyes (Kestenbaum and lasik) Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. Hope you guys enjoy :)
Mon, 21 Mar 2022 - 1h 07min - 9 - Audio Engineering, Philosophy and Metallica | Dancing Eyes Podcast #9 - John Paul
This has to be one of my favorite conversations so far in my journey of the Dancing Eyes Podcast. John Paul was born with Congenital Nystagmus and is currently an audio engineer. We discuss his profession as well as some philosophy. Our conversation for this episode may have been a little different from the usual, but I enjoyed it very much and I hope you guys do too!
Tue, 08 Mar 2022 - 1h 18min - 8 - How Can Meditation affect Nystagmus? Benefits of Acupuncture | Dancing Eyes Podcast #8 - Talene
Talene joins me today to discuss a lot of topics that I find interesting. We talk about how meditating affects the movement of her eyes. She also shares her experience with acupuncture for her Nystagmus and a lot more!
Tue, 08 Mar 2022 - 1h 01min - 7 - Being a Filmmaker with Congenital Nystagmus | Dancing Eyes Podcast #7 - Mitchell
Mitchell is a filmmaker from Scotland who was born with Congenital Nystagmus. In this episode we talk about how Nystagmus affects his ability to write and star in his own movies. We also talk about how Nystagmus affected his childhood and a lot more! Here is a link to his most recent film. https://www.youtube.com/watch?v=5rorfGDx5p4&t=15s
Tue, 08 Mar 2022 - 44min - 6 - Dancing Eyes Podcast #6 - Chloe
Chloe is a high school student who was born with Congenital Nystagmus. In the 6th episode of the Dancing Eyes Podcast she shares with me how the condition has affected her life. We talk about struggling to look people in the eyes, her high school experience, and I may have spoken about Shrek too much.
Thu, 03 Mar 2022 - 59min - 5 - Dancing Eyes Podcast #5 - Pip
Pip currently lives in The Netherlands and she was born with congenital Nystagmus. In this episode Pip shares with me her experience of growing up with parents who were not very tolerant of her Nystagmus. We go into what roles parents play in their child's ability to adapt to their Nystagmus and share a few tips.
Thu, 03 Mar 2022 - 48min - 4 - Dancing Eyes Podcast #4 - Brandon
Brandon was born with Congenital Nystagmus and is currently living in California. In this episode we talk a lot about becoming more comfortable with our eyes and with who we are as a person. Brandon and I share some advice on overcoming bullying ,as well as talk about our hobbies, and a lot more!
Tue, 22 Feb 2022 - 1h 11min - 3 - Dancing Eyes Podcast #3 - Lauryn
Lauryn is a college student who was born with Congenital Nystagmus. In this episode she shares her tips for driving, school and a lot more. We also share some of our stories and experiences from growing up with Nystagmus.
Tue, 22 Feb 2022 - 56min - 2 - Dancing Eyes Podcast #2 - Haley
Today Haley joins me to discuss her experience with Nystagmus. She was born with Congenital Nystagmus and is currently studying law in Philadelphia. Video format is also available on youtube. Podcast Instagram- https://www.instagram.com/dancingeyespodcast/ Personal Instagram- https://www.instagram.com/frankiecaputo22/ Thanks for listening!
Thu, 03 Feb 2022 - 41min - 1 - Dancing Eyes Podcast #1 - Erik
For episode 1 of The Dancing Podcast, Erik joins me to talk about his experience with Congenital Nystagmus. We talk about state troopers thinking he is high, wacky ideas that have been presented from doctors, and a lot more!
Tue, 25 Jan 2022 - 46min
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