Empty Nose Syndrome (ENS) – Turbinate Reduction & Nasal Surgery Risks

This episode tells the story of Stéphane Spinhirny and the devastating consequences of nasal surgery and Empty Nose Syndrome (ENS).

It explores his severe breathing difficulties, his struggle to obtain recognition and appropriate help, and why his experience remains important to discussions about turbinate surgery, informed consent and patient safety.

Read Stéphane Spinhirny’s full story and view the supporting material:

https://empty-nose-syndrome-info.blogspot.com/2024/11/the-story-of-stephane-spinhirny.html

This podcast is intended to raise awareness and provide information about Empty Nose Syndrome.

This episode tells the story of Sam Treffry, a 34-year-old man from Australia who was diagnosed with Empty Nose Syndrome after undergoing several nasal procedures earlier in life.

Told through the public account shared by his brother, Beau Treffry, the episode follows Sam’s struggle with severe sleep and breathing problems, his withdrawal from university and work, and the suffering his family only fully understood after Sam ended his own life in October 2024.

The episode also explores what Empty Nose Syndrome can do to breathing: how the turbinates help regulate nasal resistance and airflow, condition inhaled air, and provide sensory feedback to the nervous system — and why a physically open nasal airway does not necessarily mean normal breathing.

Sam’s brother also shared a treasured memory from 2013, when the two rowed through Wolli Creek, navigated the mangroves, played chess and explored an island together.

Read Sam Treffry’s story and more information here:

https://empty-nose-syndrome-info.blogspot.com/2024/10/empty-nose-syndrome-sam-treffry-fifth.html

John Malamos was active, deeply valued by his family and friends, passionate about motorcycles and respected as an assistant manager at Costco. Then a revision rhinoplasty changed everything.

During the operation, his inferior turbinates were also reduced. According to his family, John believed he had agreed only to a correction of the earlier cosmetic surgery and had not been properly informed about the risks of altering the turbinates.

Afterward, he developed severe dryness, pain, sleeplessness and a relentless sensation of suffocation—despite having an airway that appeared open.

This documentary explores the central paradox of Empty Nose Syndrome: why breathing depends on far more than having enough physical space inside the nose. The turbinates are dynamic, vascular and densely innervated respiratory organs that help regulate airflow, resistance and the sensory feedback the brain needs to register each breath.

John travelled hundreds of miles seeking help and was eventually diagnosed with Empty Nose Syndrome. But no effective treatment was offered. In 2010, at the age of 43, after prolonged physical suffering and complete despair, John ended his own life.

His story is not an isolated case.

Learn more and read John’s full story and other documented patient accounts at Empty Nose Syndrome Information & Research:

https://empty-nose-syndrome-info.blogspot.com/

This episode tells the story of Yaniv Oz, a young Israeli man whose health deteriorated after nasal surgery involving turbinate reduction.

Through the account of his mother, Toni Carroll, we follow Yaniv’s life before surgery, the gradual development of severe symptoms, his repeated search for medical answers, and his eventual discovery of the Empty Nose Syndrome community.

The episode also explains the physiology behind ENS — including altered nasal resistance, loss of airflow sensation, air hunger, disturbed breathing regulation, sleep disruption, autonomic stress, hyperventilation, hypocapnia, and the paradox of feeling unable to breathe despite having an excessively open nasal airway.

Yaniv died by suicide in 2018 at the age of 26, on the day he was due to meet a doctor familiar with Empty Nose Syndrome.

This episode is shared in his memory, and to increase awareness of the potentially devastating consequences of excessive turbinate reduction.

Content warning: This episode discusses severe illness, psychological suffering.

More information about Empty Nose Syndrome:
empty-nose-syndrome-info.blogspot.com

Find more information about https://empty-nose-syndrome-info.blogspot.com/2024/11/yaneiv-and-empty-nose-syndrome-yet.html

What is Empty Nose Syndrome (ENS), and how can a nose that appears open still feel obstructed or unable to provide a satisfying breath?

In this episode, we introduce Empty Nose Syndrome — a complex condition that can develop after nasal surgery, particularly when the nasal turbinates have been reduced or altered.

We explain how changes in nasal anatomy, airflow, resistance, humidification and sensory feedback can contribute to symptoms such as paradoxical nasal obstruction, air hunger, dryness, burning, disturbed breathing and severe sleep problems.

The episode also explores why ENS is more than simply having “too much space” inside the nose, and why normal nasal airflow and sensation are essential for comfortable breathing.

🎧 A concise introduction to Empty Nose Syndrome for patients, relatives, clinicians and anyone who wants to better understand the condition.

Duration: approximately 9 minutes.

Educational content only. This podcast does not replace individual medical evaluation or treatment.

Learn more about ENS here:

https://empty-nose-syndrome-info.blogspot.com/

A septoplasty and turbinate reduction was followed by a devastating and unexpected sequence of events.

In this episode, we examine a widow’s account of her husband’s experience after nasal surgery. According to her account, he developed severe symptoms immediately after the procedure, including profound sleep deprivation and abnormal nasal sensation. After seeking another medical opinion, he was diagnosed with Empty Nose Syndrome (ENS).

The episode explores what Empty Nose Syndrome is, the symptoms associated with it, the impact severe postoperative symptoms can have on a person’s life, and the questions this case raises about turbinate surgery, informed consent, postoperative care, and patient awareness.

Tragically, the woman reported that her husband later died by suicide, leaving behind his wife and their one-year-old daughter.

This episode is based on a personal account originally shared on Reddit. The circumstances described in that post have not been independently verified, and the episode does not make a legal determination regarding negligence or medical malpractice.

The purpose of this episode is to raise awareness of Empty Nose Syndrome and the potentially profound effects experienced by some patients following nasal surgery.

If you are struggling with suicidal thoughts or feel that you may be in immediate danger, please contact emergency services or a crisis service in your country.

Read more about this case here:

A critical update on Empty Nose Syndrome.

For the first time, a major European research team is working toward a regenerative treatment.

This episode explains why patient participation is urgent, what is at stake, and how this research could change everything.

More info on YouTubehttps://youtu.be/uk3fDqoD_EA

Modena Questionnaire:
https://redcap.unimore.it/redcap/surveys/?s=ATYLYMC3DLXFXMAL

More information about the Modena project:

https://www.cmr.unimore.it/progetti-in-corso/the-empty-nose-syndrome-investigations-propaedeutic-to-in-vivo-studies-progetti-di-ricerca-di-rilevante-interesse-nazionale-prin-2022/

Contact email (CT scans / questions):

ensquestionnaire@gmail.com

A critical look at why Empty Nose Syndrome remains unrecognized. This episode explores surgical errors, medical denial, the neurophysiology behind ENS, and the human cost — including people who tragically “zeroed themselves” following turbinate-reduction complications.

More information: https://shorturl.at/3gb7B

A full, science-based explanation of why Empty Nose Syndrome triggers severe stress, persistent air-hunger, sleep fragmentation and autonomic collapse. This episode walks through every mechanism — nasal sensory loss, CO₂ instability, baroreflex failure, lung receptor imbalance and brainstem alarm activation — to show why ENS can overwhelm even a healthy nervous system.

THE SILENT SUFFOCATION: LIVING WITH EMPTY NOSE SYNDROME.

Watch the video version here

https://youtu.be/YtlXRQwsG-Q?is=5eXGt7nWtDZEj8a6

What if every breath you took felt like drowning? "After a routine nasal surgery, life takes a devastating turn. What was meant to improve breathing instead leads to an invisible yet relentless struggle for survival. This gripping documentary follows the haunting reality of Empty Nose Syndrome (ENS)—a condition where the nose, despite being open, fails to function, leaving sufferers trapped in a cycle of suffocation, anxiety, and declining health.Through personal footage, scientific research, and expert interviews, we uncover the hidden consequences of nasal surgery, from the destruction of airflow regulation to oxygen deprivation, vascular constriction, and nervous system dysfunction. The film explores how low carbon dioxide levels, disrupted nitric oxide production, and chronic hyperventilation create a cascade of life-altering symptoms—heart problems, nerve dysfunction, and an unbearable sense of breathlessness.With raw, firsthand accounts and medical insights, The Silent Suffocation exposes the overlooked dangers of ENS and the desperate search for solutions. Is there a way to restore what has been lost? Or is this a lifelong fight against an invisible enemy?A shocking, eye-opening journey into a condition few understand—but many suffer from.

Bente Van de Veerdonk was a vibrant and compassionate young woman from Oss, the Netherlands, whose life was filled with promise and determination. Born on December 28, 1997, she balanced her aspirations in childcare and marketing with her love for helping others. Her journey, however, took a tragic turn in early 2024, when she underwent nasal surgery to correct a deviated septum and reduce her turbinates. What was meant to be a routine procedure led to devastating complications, resulting in a condition known as Empty Nose Syndrome (ENS).

ENS left Bente grappling with severe nasal pain, chronic dryness, and a constant feeling of suffocation, disrupting her ability to breathe and sleep. Her condition deteriorated further as she faced unrelenting symptoms, including burning sensations, systemic pain, and sleep deprivation that often left her awake for days. Despite her efforts to find relief through consultations with specialists, alternative therapies, and the support of ENS forums, her symptoms only worsened.

Alongside ENS, Bente faced the compounded challenges of Crohn’s disease and thyroid imbalances, which added to her physical and emotional burden. In November 2024, just weeks before her 27th birthday, Bente’s battle ended tragically when she took her own life. She became the sixth known individual that year to lose their life to ENS, a condition that has left countless others suffering in silence.

Bente’s story is not just a tragedy; it is a call to action. It urges us to question the safety of invasive nasal procedures, hold the medical community accountable, and bring awareness to the suffering caused by ENS. Her memory serves as a reminder of the importance of understanding and advocating for those in pain, ensuring that her struggle inspires change and prevents further loss.

https://ensmemorial.blogspot.com/2024/11/bente-van-de-veerdonk-november-2024.html

This video raises awareness about Empty Nose Syndrome (ENS), a condition that can occur as a result of nasal surgeries like turbinate reduction and septoplasty. ENS is a devastating complication that impacts the body’s ability to sense airflow, leading to symptoms like constant suffocation, dryness, and feelings of despair. Many people undergo nasal surgeries each year, unaware of the possible risks and life-altering consequences associated with removing or reducing nasal structures, which are essential for proper breathing and air regulation. The video presents firsthand accounts from ENS sufferers, medical explanations, and expert insights to shed light on why this syndrome often goes unrecognized and dismissed by doctors. It emphasizes the importance of informed consent and the need for healthcare providers to discuss ENS as a potential risk with their patients before surgery. Through this presentation, viewers are encouraged to understand the severity of ENS and the need for caution when considering nasal surgery. Additional resources and documented cases can be found at ensmemorial.blogspot.com. For those seeking support or more information, a QR code is provided to access the memorial website directly. Links: Explanation of Empty Nose Syndrome: https://ensmemorial.blogspot.com/2024/08/empty-nose-syndrome-overview_30.html?m=1 Further Explanation of Empty Nose Syndrome focusing on lung problems: https://ensmemorial.blogspot.com/2024/09/empty-nose-syndrome-effects-on.html?m=1 ENS related tragic outcomes (ENS MEMORIAL BLOG) https://ensmemorial.blogspot.com/2024/07/empty-nose-syndrome-self-destruction.html?m=1 Empty Nose Syndrome Testimonies short: https://ensmemorial.blogspot.com/2024/09/victims-voices-on-empty-nose-syndrome.html Empty Nose Syndrome Testimonies Long: https://ensmemorial.blogspot.com/2024/09/testimonials-from-individuals-with.html Facebook group for support: Empty Nose Syndrome / Iatrogenic nasal dysfunction.... https://www.facebook.com/groups/798149274095716/ Folder from ENSIA: Empty Nose Syndrome - A Guide to Diagnosis and Management for Medical Professionals https://www.schlafmedizin-praxis.de/media/downloads/infothek/ENSGuidetoDiagnosisManagementv_09.2016.pdf?m=1474896826

In a world where breathing is effortless, imagine a reality where each breath becomes a struggle. Welcome to Episode 1 of our documentary series on Empty Nose Syndrome (ENS)—a condition that transforms the simple act of inhaling into an ordeal of pain and air hunger. Through intimate interviews and in-depth research, this series uncovers the heartbreaking realities faced by ENS sufferers. These individuals endure relentless nasal pain, dryness, and suffocation, waking every night gasping for air. Beyond the physical, their lives are upended as careers, relationships, and mental health spiral, with many feeling betrayed by surgeries intended to help but instead leading to lifelong suffering. But there’s an even darker side: many were never informed of the risks, the irreversible damage, or the life-altering impact of these "routine" surgeries. Join us as we expose the hidden truths behind medical negligence in ENT clinics. Meet courageous individuals sharing personal accounts of loss, endurance, and the devastating consequences of misguided nasal procedures. This series serves as a voice for those silenced by the suffering of ENS. If you, or someone you know, is considering nasal surgery, this story is crucial for understanding the risks that the ENT professionals refuse to discuss. This is just the beginning—Episode 1 of a journey to reveal lives forever altered by ENS. Once Episode two is uploaded you will fint the link here: Other Links: Explanation of Empty Nose Syndrome: https://ensmemorial.blogspot.com/2024/08/empty-nose-syndrome-overview_30.html?m=1 Further Explanation of Empty Nose Syndrome focusing on lung problems: https://ensmemorial.blogspot.com/2024/09/empty-nose-syndrome-effects-on.html?m=1 ENS related tragic outcomes (ENS MEMORIAL BLOG) https://ensmemorial.blogspot.com/2024/07/empty-nose-syndrome-self-destruction.html?m=1 Empty Nose Syndrome Testimonies short: https://ensmemorial.blogspot.com/2024/09/victims-voices-on-empty-nose-syndrome.html Empty Nose Syndrome Testimonies Long: https://ensmemorial.blogspot.com/2024/09/testimonials-from-individuals-with.html Facebook group for support: Empty Nose Syndrome / Iatrogenic nasal dysfunction.... https://www.facebook.com/groups/798149274095716/ Folder from ENSIA: Empty Nose Syndrome - A Guide to Diagnosis and Management for Medical Professionals https://www.schlafmedizin-praxis.de/media/downloads/infothek/ENSGuidetoDiagnosisManagementv_09.2016.pdf?m=1474896826

This is the story of Mark Bidaux, a 42-year-old father of two from Finistère, who tragically suffered from Empty Nose Syndrome. Mark initially sought relief from severe nasal obstruction through sprays and eventually surgeries, including a minimal turbinectomy. Despite his concerns and consultations with multiple ENT specialists, he underwent the surgeries, which led to worsening symptoms and a diagnosis of Empty Nose Syndrome. Mark faced daily pain, breathing difficulties, and intense fatigue. On January 22, 2021, unable to bear the suffering, he took his own life. His story highlights the devastating impact of these procedures on many lives. Marks testimony:

https://www.syndromedunezvide.com/2019/09/temoignage-de-marc-b.france.html

This podcast explores the increasing prevalence of Empty Nose Syndrome (ENS), a condition first identified by Dr. Eugene Kern over three decades ago. Despite advances in nasal surgery and the development of various instruments for turbinate reduction, such as Coblation, Radiofrequency, and Laser Ablation, the incidence of ENS continues to rise following procedures like septoplasty, sinus surgery, turbinate reduction, rhinoplasty, and spreader graft surgery.

The podcast begins with insights from Dr. Eugene Kern on ENS, highlighting the detrimental impact of these surgical procedures. It emphasizes how modern technology has made nasal surgeries for congestion routine, often disregarding the essential functions of the nasal turbinates. The destruction of nerves, receptors, blood vessels, cilia, and goblet cells leads to a loss of airflow sensation, causing constant fight-or-flight responses, severe dryness, and atrophic rhinitis. This can result in hyperventilation and serious lung issues due to abnormal air resistance.

The narrative addresses the reluctance of the medical community to confront the adverse outcomes of these surgeries, attributing complications to poor healing or psychological issues. It also touches on the alarming trend of suicides linked to ENS, underscoring the need for a reevaluation of nasal surgeries.

The podcast features the testimony of Priscilla Robert, who died on August 6, 2015, due to ENS. Her story details her suffering post-surgery, including persistent pain, anxiety attacks, and severe discomfort, leading to a life of isolation and depression. Despite multiple consultations and treatments, her condition only worsened, illustrating the devastating impact of ENS on patients' lives.

Chris Supalla was a vibrant, active young man from Portland, Oregon. Born on November 4, 1988, he lived in Tigard, raised in Beaverton, and was an accomplished tax analyst, musician, and outdoor enthusiast. Known for his humor, kindness, and zest for life, Chris graduated Cum Laude from Oregon State University in 2012 with a Bachelor of Science in Accounting & Finance. He worked for Precision Castparts from 2012 to 2021. Chris's talent for music started with piano in elementary school and later as a self-taught guitarist. He loved outdoor adventures, from BMX biking to downhill mountain biking, and 4-Wheelin’ in his Jeep Wrangler. His passion extended to rock climbing with his girlfriend and sister in the Pacific Northwest. However, Chris's life took a tragic turn after a nasal surgery intended to relieve a stuffy nose. This surgery led to Empty Nose Syndrome (ENS), causing severe symptoms like constant air hunger and breathing difficulties. Despite trusting medical advice, Chris's condition deteriorated rapidly, and he couldn't find relief. Three months post-surgery, Chris's unbearable symptoms pushed him to the brink. On a quiet May morning, he walked into the woods behind his home, leaving a note for his family. Chris's death certificate states the cause of death as asphyxia due to ligature hanging, with Empty Nose Syndrome listed as a contributing factor. Chris's story is a tragic example of the severe consequences of ENS, a condition many in the medical community fail to acknowledge. His parents urged Oregon Health & Science University (OHSU) to inform patients about the risks, but their plea was dismissed. This film highlights Chris's story, the devastating impact of ENS, and the need for greater awareness and accountability in the medical community. Watch Chris's story to understand the human cost of this overlooked condition and join the call for change to prevent further tragedies.

Life After Laser Turbinate Reduction: The Story of Sherri Cutrona." Today, we delve into the moving story of Sherri Ann Cutrona, a remarkable woman whose life was deeply affected by Empty Nose Syndrome (ENS) following a laser turbinate reduction surgery.

Sherri Ann Cutrona was born between 1962 and 1963 and spent her final years in Manchester Township, New Jersey. A dedicated engineer, Sherri worked for Heyco Products in Toms River before retiring. Beyond her professional life, she was an active member of the Tracheobronchomalacia Support Group and the Empty Nose Syndrome Awareness community. Sherri Ann loved dancing, cooking, sewing, and going on cruises, finding joy in these hobbies despite her ongoing health challenges.

Sherri's battle with ENS was long and difficult. Her condition went undiagnosed for many years, and even when identified, finding effective treatment proved elusive. Despite consultations with numerous specialists, including Dr. Oren Friedman and Dr. Das, Sherri's symptoms persisted, leaving her feeling dry, frustrated, and often dismissed by the medical community.

Through this podcast, we will explore Sherri Ann's relentless quest for relief. She tried various treatments, including nasal implants and even considered stem cell injections, yet continued to face severe symptoms and chronic health issues. Her story highlights the severe impact of ENS, a condition that is often misunderstood and under-researched.

Join us as we honor Sherri Ann's memory and raise awareness about the struggles faced by those with ENS. Her story is a testament to her resilience and the need for greater understanding and support for those affected by this debilitating condition.

More info about Sherri Cutrona here:

⁠https://fonderingar.blogspot.com/2024/06/sherri-ann-cutronas-experience-perils.html

In this powerful and emotional video, we delve into the poignant testimony of Ludovic Sery (1980-2011). Hear the heart-rending account from his mother and others who loved him, as they recount the devastating impact of his surgery and the relentless struggle he endured. Ludovic's life was filled with joy and vitality until a medical procedure shattered his world. Learn about his battle with Empty Nose Syndrome, a condition that emerged after a bilateral turbinectomy meant to treat his nasal congestion. Despite his courageous attempts to adapt and recover, the debilitating symptoms of constant suffocation, dryness, and sleep problems led him down a dark path. In July 2011, Ludovic tragically took his own life, unable to bear the ongoing suffering. This film is not just a tribute to Ludovic but a call to action. It reveals the dangers of certain ENT surgeries and the often-overlooked complications they can bring. Ludovic's wish was for the world to know his story, to prevent others from experiencing the same fate. More info about Ludovic Sery can be found here:

https://fonderingar.blogspot.com/2024/02/turbinectomy-testimony-of-ludovic-sery.html

Marcio Goulart, a vibrant English teacher in Brazil, passed away on April 21, 2020, after enduring immense suffering from Empty Nose Syndrome (ENS). This debilitating condition followed a nearly total bilateral lower turbinectomy in 2018, which removed 90% of his inferior turbinates. Before the surgery, Marcio led a fulfilling life. However, post-surgery, he faced daily sensations of suffocation, panic attacks, and extreme difficulty breathing. Despite seeking help from numerous doctors, including a failed attempt to get implants, his condition continued to worsen. Marcio's heartbreaking story highlights the severe risks of turbinate surgery and the devastating impact of ENS. Watch to learn more about his struggle and the urgent need for awareness and accountability in ENT surgeries. Watch now to understand Marcio's story and the broader implications of ENS. Name of Marcio's surgeon: Andre Luiz Gomes de Araujo More info here about Marcio: https://fonderingar.blogspot.com/2024/06/turbinate-surgery-caused-ens-and-death.html

A radio interview in French with English subtitles where Laura talks about her brother Charliy's struggle with Empty Nose Syndrome after nasal turbinate surgery. She describes how this operation impacted his life to the extent that he later took his own life. This is the 43rd case of suicide following nasal turbinate surgery. How long will doctors continue to cause this suffering? How long will they be allowed to destroy these individuals to the point that they can no longer bear to live? Link to Europe1 and the interview can be found here: https://www.europe1.fr/emissions/La-libre-antenne/libre-antenne-une-banale-operation-du-nez-a-pousse-le-frere-de-laura-au-suicide-4249554 To get English subtitles, you need to select this option on the YouTube page. The entire interview is translated here from French to English: https://fonderingar.blogspot.com/2024/06/complications-of-turbinate-reduction.html More info about Charly here: https://fonderingar.blogspot.com/2024/02/empty-nose-syndrome-my-situation-by.html

Imagine losing the ability to breathe naturally, all because of a seemingly harmless surgery meant to alleviate allergies. That's the nightmare faced by many patients who undergo septoplasty or turbinate reduction. These procedures, aimed at improving nasal airflow, have left countless lives in ruins. Take Brett Helling, for example. What started as routine sinus surgery turned his life upside down. After his operation, Brett struggled with a constant feeling of suffocation and an inability to breathe properly. His symptoms were dismissed by doctors, who claimed his nose looked fine and suggested his issues were psychological. Brett's story is not unique. Many patients sign up for nasal surgery only to discover later that their turbinates were removed without their knowledge. The risks of these procedures—bleeding and infection—are downplayed, leaving patients unprepared for the devastating consequences. When these patients seek justice, they're met with resistance. Doctors and hospitals deny responsibility, leaving them without recourse. Unable to work due to their condition, they lose their careers, friends, and relationships. This injustice is a global issue affecting thousands of lives. Many have paid a severe price for trusting in medical expertise, facing a lifetime of suffering after losing their ability to breathe freely. This is the harsh reality for those affected by empty nose syndrome and similar conditions worldwide. More info here about Brett Helling: https://fonderingar.blogspot.com/2024/02/this-strange-so-called-empty-nose.html

In the world of modern medicine, there are still conditions that remain largely unrecognized, causing untold suffering to those afflicted. Mélisa Champion’s story is one such tragic example. Her battle with Empty Nose Syndrome (ENS) is not just a tale of personal suffering but also a poignant reminder of the importance of informed consent and the dire need for medical communities to recognize and address rare conditions. Mélisa was a vibrant and sociable young woman, full of dreams and aspirations. Her love for travel and different cultures led her to pursue a career in tourism, with hopes of becoming a flight attendant. Unfortunately, her life took a devastating turn following a seemingly routine medical procedure in 2007. Initially diagnosed with a deviated nasal septum, Mélisa was advised to undergo septoplasty to improve airflow. What she was not told was that the procedure would also involve a complete septorhinoplasty and the bilateral reduction of her inferior turbinates. Had she been fully informed, Mélisa would have never consented to this life-altering surgery. The aftermath of the surgery was catastrophic. Mélisa developed ENS, a condition characterized by the inability to sense airflow in the nasal passages despite them being physically open. She experienced extreme nasal dryness, facial pain, and recurring infections. Her condition progressively worsened, leading to severe asthma attacks, debilitating pain, and a significant decline in her quality of life. Her daily existence became a battle for survival, reliant on a humidifier to breathe and constant medical treatments to manage her symptoms. Despite her struggle, Mélisa found strength in small moments of happiness with her loved ones. She sought solace in reading, music, and staying informed about the world. In her final days, she found peace in her faith, expressing a desire to be free from suffering. Mélisa passed away on May 23, 2015, at the age of 33, leaving behind a legacy of resilience and a call for greater awareness of ENS.

Her parents, Marcelle and Jean-Yves Champion, have shared her story to honor her memory and advocate for the recognition of ENS by the medical community. They hope that Mélisa's story will prevent others from enduring similar suffering and emphasize the critical need for transparency and thorough communication between doctors and patients. Read more here about Mélisa Champion: https://fonderingar.blogspot.com/2024/06/melisa-champions-tragic-struggle-with.html

Sylvain's journey began innocently enough with a surgery to correct a deviated nasal septum in July 2005. Seeking relief from chronic nasal obstruction, he underwent a septoplasty, unaware that it also included a turbinate reduction. Post-surgery, Sylvain's health rapidly deteriorated. He suffered severe headaches, anxiety, ENT pain, frequent sinusitis, and sleep disturbances. His behavior changed drastically—he became aggressive, anxious, and fell into depression.

In 2006, hoping for a solution, Sylvain underwent a second surgery. This procedure, which left him without lower and middle turbinates, exacerbated his condition. He endured constant sinus infections, debilitating pain, and a significant decline in mental health. Despite extensive opioid treatment, his suffering persisted.

On March 22, 2007, Sylvain shared his intention to end his life. Despite efforts to intervene and admit him to specialized care, his condition worsened. On April 11, 2007, Sylvain tragically took his own life, leaving behind two young children.

Sylvain's story sheds light on the profound impact of medical decisions and the devastating reality of Empty Nose Syndrome. This episode aims to raise awareness about the risks associated with turbinate reduction and septoplasty and advocate for improved medical practices.

more info about Sylvain Barthelemy here

⁠https://fonderingar.blogspot.com/2024/02/empty-nose-syndrome-related-suicide.html

In the serene town of Chaumont-Gistoux, nestled in the Brussels region of Belgium, Raphaël's life took a harrowing turn after a seemingly routine nasal surgery. Born on January 25th, 1987, in Bruxelles (Ixelles), Raphaël's journey from an ordinary man to a tragic figure underscores a chilling medical mystery and a relentless quest for relief. Following a septoplasty and turbinate reduction, Raphaël was diagnosed with Empty Nose Syndrome (ENS), a rare and devastating condition. His path led him to the renowned Doctor Gilles Ayoun, known for treating ENS with nasal implants. However, the decision to use acrylic implants instead of safer materials marked the beginning of an agonizing downfall. Raphaël's body rejected the implants, plunging him deeper into a world of suffocation, insomnia, and relentless pain. ENS, often resulting from common nasal surgeries like septoplasty and turbinate reduction, affects not just the nose but the entire body and mind. Patients struggle with sensations of suffocation, nasal dryness, infections, and a cascade of psychological torment. Despite its severity, many ENT surgeons neglect to warn patients about this debilitating condition, leaving countless individuals in a state of despair and hopelessness. Raphaël's story reveals the dark side of medical procedures that are supposed to heal but instead shatter lives. It delves into the systemic issues within the medical community, where patients are often left unheard and surgeons remain unaccountable. Raphaël's tragic end at the age of 26, on March 7th, 2013, is a stark reminder of the urgent need for change. This film exposes the silent epidemic of ENS-related deaths. Raphaël is one of more than 50 cases in recent years—individuals who took their own lives due to the unbearable suffering caused by nasal surgeries. It questions the ethics of medical practices, the lack of informed consent, and the societal indifference towards those affected. More info can be found here about Raphaël https://fonderingar.blogspot.com/2024/06/empty-nose-syndrome-fatal-outcome-for.html

Empty Nose Syndrome occurs when surgeons are too aggressive and remove too much tissue in the nose during surgery. It often arises as a result of Turbinate surgery, but it can also develop following septoplasty or if the wall between the nose and the sinus is removed. Some patients experience Empty Nose Syndrome immediately after surgery, while in other cases, it develops gradually over time as the mucous membrane degenerates due to dryness or infection. After surgery, the mucous membrane is less effective at keeping bacteria and viruses at bay and can be easily damaged if infected. The condition is extremely serious, perhaps the worst one can experience. It can break even the strongest person. For those who want to fully understand the condition, I recommend watching my film "Shattered Trust," which can be found on my Facebook page with this link. https://fb.watch/sk4ZgO5mPl/ or link directly to the Chanel: https://www.facebook.com/Empty.Nose.Syndrome.Iatrogenic.Nasal.Dysfunction I have also written a text that explains the condition, and I include a link here. https://fonderingar.blogspot.com/2024/05/septoplasty-and-turbinate-reduction.html at this page, you can also read comments from over 125 people with ENS to see what they experience. Their experience is most likely very similar to Robers one. In short, ENS is a condition where many people feel a sense of drowning or suffocating 24/7. There is a constant feeling of air hunger, which is extremely stressful for the individual. Often, sleep is affected, with many getting only a few hours of sleep per night. The condition leads to hyperventilation, and many feel dizzy. It is also often associated with severe pain and dryness in the nose. Some experience nerve pain in the nose that radiates to the eyes or face, and many become extremely sensitive to smells, smoke, cooking odors, and particles in the air, all of which cause significant pain in the nose. Much more can be said about the condition, but I refer you to the following blog post for a comprehensive understanding. https://fonderingar.blogspot.com/2024/05/turbinate-reduction-septoplasty-victims.html

Luke Botsis, born on July 2, 1987, in Albany, New York, underwent a turbinate reduction surgery that led to the development of Empty Nose Syndrome (ENS). This debilitating condition caused him severe pain, a sensation of suffocation, and chronic dryness in his nose. Despite multiple surgeries and treatments, Luke continued to suffer intensely. His story highlights the devastating impact of ENS and the challenges patients face. Tragically, unable to endure the suffering any longer, Luke ended his life on December 9, 2021. His experience serves as a poignant reminder of the need for greater awareness and support for ENS sufferers.

Dive into the heartbreaking story of Rachel Jordan, a woman from the UK who battled severe nasal and breathing issues, ultimately leading to her tragic death. This podcast uncovers her daily struggles with atrophic rhinitis and Empty Nose Syndrome, revealing the relentless fight for relief and the devastating impact on her life. Join us as we explore Rachel's journey, the medical challenges she faced, and the broader implications for those suffering from similar conditions

The audio file delves into personal accounts of individuals suffering from Empty Nose Syndrome after Turbinate reduction, describing their struggles with breathing, mental health, and societal misunderstandings. Various medical perspectives are explored, including diagnoses, symptoms, and potential causes of the syndrome. Additionally, the audio file touches upon the intricate anatomy of the nasal cavity, specifically focusing on the role of turbinates in regulating airflow and maintaining nasal function. Throughout the article, there's a blend of personal anecdotes, medical insights, and scientific explanations, providing a comprehensive overview of Empty Nose Syndrome and its impact on individuals' lives. The Entire audio file has been converted into a text document. You can fint this document here:

https://fonderingar.blogspot.com/2024/06/the-pain-of-breathing-for-patients-with.html

Short 1,5 minute video from Paul Nassif

Den onda spiralen - En Fransk dokumentär om medicinsk felbehandling. I detta avsnittet får vi följa två fall där ett av fallen rör Eric som fått sitt liv förstört efter en standard operation av näsan och näsmusslorna. En operation som orsakade honom Empty Nose Syndrome.Filmen har fransk tal men har en Svensk text översättning! Bild och ljudkvaliteten är tyvärr lite sämre då den är filmad direkt på en tv skärm.

A turbinectomy is a surgical procedure where the turbinates, structures inside the nasal passages responsible for warming, humidifying, and filtering air, are partially or completely removed. This procedure is typically performed to alleviate chronic nasal congestion or obstruction. However, a potential complication associated with turbinectomy is Empty Nose Syndrome (ENS). ENS occurs when there is an excessive removal of turbinate tissue, leading to a sensation of a perpetually dry and open nasal cavity. Patients with ENS often experience difficulty breathing, dryness, and an inability to properly regulate airflow. This condition can significantly impact quality of life, as the nose loses its natural ability to humidify and warm incoming air, which can result in discomfort and breathing difficulties. Suicides after turbinectomy is not uncommon

Infernal Spiral - A French documentary about medical negligence & Empty Nose Syndrome. English text

Every day, individuals worldwide are enduring irreversible harm due to Septoplasty and Turbinate reduction procedures. These operations, ostensibly for alleviating nasal congestion, are often presented by surgeons as having minimal risks—typically just bleeding and infection. However, this narrative is far from the truth. These surgeries essentially involve the destruction of the respiratory organs, namely the turbinates. Despite the well-known negative effects, these vital organs are consistently resected and damaged. Unfortunately, financial interests have overridden the compassionate side of medicine, leading surgeons to dismiss patient complaints post-surgery. When individuals raise concerns about experiencing air hunger following the procedure, they are often dismissed as imagining it. The reality is that a surgery targeting the turbinates and nasal mucosa transcends the confines of a local procedure within the nasal passage. It extends its impact to the nervous system and the brain, affecting cognition, sleep, and even personality. Patients are left grappling with a compromised nasal mucosa, resulting in a range of distressing symptoms: air hunger, suffocation sensations, insomnia, emotional distress, nasal pain, nasal dryness, vasoconstriction, and Hypoxia. The ramifications can be dire—jobs, friendships, and tragically, lives, are often lost to suicide. Regrettably, the medical community's reluctance to acknowledge these damages, coupled with financial motives, keeps them from admitting the extent of the issue. The surgeons' pride often hinders them from addressing the problems, all while they continue to prioritize monetary gains. One can't help but wonder how many more individuals must suffer before regulatory authorities intervene to prevent these life-threatening outcomes. The notion of performing such surgeries without adequately disclosing the potential consequences simply can't be ethical. The injury and risks far outweigh any potential benefits, particularly when it's apparent that dietary changes can often effectively address nasal congestion. While the scientific evidence exists, financial interests often obstruct its dissemination. In this presentation, I'll unveil the iatrogenic injuries and complications that surgeons prefer to keep hidden prior to conducting Septoplasty or Turbinate reduction procedures. This lecture revolves around the topic of Iatrogenic Nasal Respiratory Dysfunction / Empty Nose Syndrome. INDEX OF THIS VIDEO 3.27 Natural reasons to a congested nose 9.19 Index of this video lecture 10.43 What is a Turbinate / Nasal Concha 11.57 Nose-Nervous system-Brain connection 17.52 Function of the Nose and the Turbinate’s 24.50 The Nasal cycle explained 26.13 Importance of air velocity in Nose 28.54 Delayed Empty Nose syndrome years after surgery 32.18 Methods for turbinate reduction & Septoplasty and its consequence’s 54.06 Common injury from Septoplasty and Turbinate reduction 1 h 12.48 How you are tricked to have an unnecessary surgery 1 h 16.30 The lie about the enlarged Turbinates’ 1 h 24.30 Vasoconstriction & and Hypoxia after mucosal damage 1 h 22.34 Restless legs syndrome & vasoconstriction due to nose surgery 1 h 26.45 The importance of Nitric Oxide production in the nasal mucosa 1 h 31.42 Patient stories: Statements from people who have been injured. LINK TO THE POWER POINT FILE USED IN THE VIDEO: https://1drv.ms/p/s!AjHYbLDDYBuygYscbRoyz50lA9sX0g?e=xPzZcp See also my longer youtube video about ENS: A sientific explanation behind ENS: https://youtu.be/U9bLXQwbkBM

Description

What really happens during nasal surgery?

This episode takes an in-depth look at the most commonly performed surgical techniques used to treat nasal congestion and explains how they may affect the nasal mucosa, airflow perception, and long-term nasal function.

We examine procedures including radiofrequency ablation, coblation, thermotherapy, submucosal resection with microdebriders, turbinate bone lateralization, and partial or total turbinectomy. Learn how these techniques may alter the structure and sensory function of the nose, and why some patients develop chronic dryness, breathing difficulties, paradoxical nasal obstruction, and Empty Nose Syndrome (ENS).

Whether you are considering nasal surgery or simply want to understand how these procedures work, this episode provides an evidence-based overview of their intended effects, potential complications, and the importance of preserving normal nasal physiology.

Learn More

📚 ENS Memorial – A comprehensive educational resource dedicated to Empty Nose Syndrome, nasal surgery complications, scientific research, patient stories, anatomy, and long-term outcomes following septoplasty and turbinate surgery.

https://ensmemorial.blogspot.com

The website contains extensive information about nasal anatomy, turbinate function, surgical techniques, medical literature, and documented complications to help patients make informed decisions before undergoing nasal surgery

Episode Description

What are the real risks of nasal surgery, and why are many patients never informed about them?

In this episode, we examine the hidden complications associated with septoplasty and turbinate surgery, including adhesions, septal perforation, nerve damage, valve collapse, chronic dryness, breathing problems, and Empty Nose Syndrome (ENS).

Using medical literature, anatomical illustrations, and documented patient cases, we explain how these complications can develop and why some patients are left with lifelong symptoms after surgery intended to improve nasal breathing.

Further reading and resources

📚 ENS Memorial – A comprehensive educational resource documenting the history of Empty Nose Syndrome, patient stories, medical research, and the long-term consequences of nasal surgery:
https://ensmemorial.blogspot.com

This website contains scientific articles, educational material, memorials for patients affected by ENS, and extensive information about complications following septoplasty and turbinate surgery.

Discover the shocking reality of unnecessary nasal surgeries performed by ENT clinics in this eye-opening video. Witness the silent abuse of patients who undergo devastating operations for nasal congestion that could have been resolved through simple dietary changes. Learn how these surgeries involve cutting or burning the turbinate, causing irreparable damage to the body's respiratory organs. Often combined with nasal septum surgery, these procedures lead to torn mucosa, severed nerves, and damaged blood vessels. The outcome? A mucous membrane devoid of sensory function, fragile, dry, and susceptible to infections. Explore the intricate network of sensory neurons in the nasal mucosa that signals nasal breathing to the brain, activating the parasympathetic nervous system and inducing calmness. When turbinate removal or burning eradicates these vital sensory cues, the sympathetic nervous system takes over, causing stress akin to a congested nose. Enter paradoxical obstruction, also known as empty nose syndrome. Witness how the loss of sensory function isn't the only consequence – the mucosa's ability to produce nitrogen dioxide, vital for oxygenation, is also obliterated. Dive deeper into the systemic effects of nasal surgery, uncovering the relationship between open nostrils, diminished air resistance, and shallow breathing. Discover the vital role of nitric oxide production in the nose and the dire repercussions of its reduction. Explore how vasoconstriction caused by fast, shallow breathing leads to decreased oxygenation and overall energy in the body. Learn about studies that reveal the impact of nasal breathing on oxygen levels, and delve into the complex connection between nasal surgery, nitric oxide, and vasoconstriction. Witness the staggering results from a study on nitric oxide's impact on pulmonary function, highlighting the gas's role as a vasodilator that enhances blood flow and oxygenation. If you found this video informative, don't forget to hit the like button and share it to raise awareness. Remember that the surgeon you see may have a vested interest in performing unnecessary surgeries. Discover more insights on my YouTube channel, where I delve into the often overlooked injuries caused by nasal surgery.

Episode Description

What do the nasal turbinates actually do, and why is their function so important?

Before considering turbinate reduction, coblation, radiofrequency treatment, cautery, or thermotherapy, it is essential to understand the critical role the turbinates play in healthy breathing.

In this episode, we explain how the turbinates regulate airflow, humidify and warm inhaled air, produce mucus, support the nasal cycle, and provide sensory feedback to the brain through thermoreceptors (TRPM8) and other sensory nerves.

We also examine how thermal reduction techniques can damage the nasal mucosa and its nerve endings. This may disrupt normal airflow perception and, in some patients, contribute to paradoxical nasal obstruction, autonomic nervous system dysfunction, chronic stress, sleep disturbances, and Empty Nose Syndrome (ENS).

Whether you are considering nasal surgery or simply want to better understand nasal physiology, this episode provides an evidence-based overview of why preserving turbinate function matters.

Learn more

📚 ENS Memorial – A comprehensive educational resource covering Empty Nose Syndrome, nasal surgery complications, patient stories, medical literature, and anatomical explanations:

https://ensmemorial.blogspot.com

The website contains extensive information about turbinate function, septoplasty, turbinate surgery, Empty Nose Syndrome, scientific research, and the long-term consequences reported by affected patients.

In this revealing video, we expose the tactics often used by surgeons to persuade individuals into undergoing unnecessary nasal surgeries. Join us as we dissect the misleading claims behind two common techniques employed to push patients towards surgical procedures they may not truly require. 👉 Key Insights: Debunking Deviated Septum Claims: Discover the truth behind the first technique used by surgeons. We unravel the misconception that a deviated septum is the sole cause of nasal congestion, exposing how this claim can be misleading. Learn about the natural variations in septum structure and understand that not all cases necessitate septoplasty. Decoding Turbinate Enlargement: Delve into the second approach used to persuade individuals. Learn how surgeons manipulate the notion of hypertrophic turbinates to promote surgeries. Gain insights into the dynamic nature of turbinate size and how it fluctuates due to the nasal cycle. Uncover the hidden agenda behind highlighting isolated instances to advocate for turbinate reduction. 🔎 Why Watch This Video? Equipping yourself with knowledge is key to making informed decisions about your health. By watching this video, you'll be empowered to see through these misleading techniques and better comprehend the complexities of nasal health. Whether you're considering nasal surgery or want to be more informed about the practices in the field, this video is a must-watch. Don't let deceptive practices cloud your judgment. Watch now to gain the insights you need to navigate nasal surgery decisions with confidence. For more information, explore the blog post: https://fonderingar.blogspot.com/2020/05/operation-av-nasskiljevaggenseptum-risk.html

Beskrivning: 🚨 Innan du tar steget mot en näsoperation för nästäppa är det avgörande att du förstår verkligheten bakom påståendena om en sned nässkiljevägg eller sned septum. Många patienter dras idag in i onödiga operationer med felaktiga motiv. Faktum är att en sned Septum är normalt och långt från alltid är det den verkliga boven bakom nästäppa. Det är dags att avslöja sanningen som Öron Näsa hals läkarna inte vill att du skall få reda på. 👃 Nästäppa kan ofta ha rötter i allergier, inflammation, histaminintolerans, eller intolerans mot vissa livsmedel. Denna video avslöjar hur du kan undvika att hamna i en operation som kanske inte är nödvändig för dig och som med största säkerhet kommer förstöra näsans slemhinna. 🤔 Skador så som exempelvis kroniskt torr näs -slemhinna, återkommande infektioner slemhinnan och till och med något som kallas Empty Nose Syndrome. Ett tillstånd som ger omfattande sömnproblem och andningsproblem i form av Paradoxal Obstruktion. Detta till följd av nervskada och nervförlust i näsans slemhinna. Detta är alla potentiella risker som du bör vara medveten om. Många gånger är det dessutom en garanti att få dessa problem till följd av operationen. 🔍 Denna video belyser de skador och risker som sjukvården undanhåller för patienterna. Vi avslöjar den verkliga bilden av näsoperationer och ger dig insikter för att fatta ett informerat beslut. Din hälsa är viktig – låt inte missinformation eller bristfällig kommunikation sätta dig i onödig fara. 💡 Dela denna video med någon som överväger en näsoperation eller som helt enkelt vill förstå sanningen bakom Näsoperation för nästäppa. Tillsammans kan vi öka medvetenheten och minska risken för oönskade konsekvenser.

In this presentation, we delve into the science behind the damages that arise as a result of surgery on the nasal septum or turbinates. Damages that often occur, which doctors themselves may not want you to be aware of. An intervention involving the turbinates and septum goes beyond a mere localized procedure confined to the nasal region; it also extends its implications to the intricate network of the nervous system. This procedure carries the potential to trigger irreversible repercussions that disrupt sleep, evoke a constant feeling of air insufficiency, prompt nasal discomfort, parch the nasal passages, and cause degradation of the nasal mucosa. Throughout this presentation, you will amass comprehensive insights that are pivotal in arriving at a well-informed judgment regarding the consideration of surgical intervention for nasal congestion. We will delve into the complexities of Empty Nose Syndrome, unraveling the scientific foundations that tether the nerve endings of the nasal cavity to the limbic system – an interconnection that fundamentally embodies the origin of the condition's distress. LINK TO THE POWER POINT FILE USED IN THE VIDEO: https://1drv.ms/p/s!AjHYbLDDYBuygYscbRoyz50lA9sX0g?e=xPzZcp See also this youtube video for more infor on ENS: https://youtu.be/KFt9Wa20L2Y

I det här avsnittet går vi igenom skador och komplikationer från näsoperation som utförs i syfte att åtgärda nästäppa. Skador och komplikationer som döljs från pateinten och som leder till omfattande andningsproblem i form av Paradoxal obstruktion, andnöd och lufthunger. Något som leder till en aktivering av det sympatisk nervsystemet med stress och allvarliga sömnproblem som följd. När vi pratar om näsoperation och dess skador så avser vi skador som uppstår till följd av använda metoder så som Coblation, radiofrekvensbehandling eller submukös resektion av näsmusslorna, värmebehandling av näsmusslonra eller Konkotomi där hela eller delar av dina andningsorgan - Näsmusslora klipps och skärs bort. Vi tar också upp de skador som uppstår till följd av operation av sned nässkiljevägg, så kallad Septoplastik. Läkare och sjukvård unanhåller idag medvetet konsekvenser med perationen även om dessa skador är garanterade att få och i detta avsnitt kommer vi fokuser på de nervskador som ofta uppstår och som leder till Empty Nose syndrome och dessa kända efekter med andnöd. Faktum är att dessa typer av operationer förstör sensoriska neuroner i näsans slemhinna varvid personen i fråga alltid kommer uppleva nästäppa trotts att näsan nu efter oeratinen bevisligen är öppen. I filmen utlovan några läkar till mer info, här följer dessa: EMPTY NOSE SYNDROME. A Guide to Diagnosis and Management for Medical Professionals https://www.schlafmedizin-praxis.de/media/downloads/infothek/ENSGuidetoDiagnosisManagementv_09.2016.pdf?m=1474896826 TIDIGARE FILMER OM ENS Empty Nose syndrome: An illustrative lecture on risk & complication from Nose surgery https://youtu.be/KFt9Wa20L2Y Empty Nose Syndrome: a scientific explanation. (Lecture about complications from nose surgery) https://youtu.be/U9bLXQwbkBM TIDIGARE BLOGG-INLÄGG OM ENS Operation av Nässkiljeväggen / Septum - Dold Skada & Risk https://fonderingar.blogspot.com/2020/05/operation-av-nasskiljevaggenseptum-risk.html Radiofrekvensbehandling: Näsoperation Så förstör vården dig https://fonderingar.blogspot.com/2020/09/radiofrekvensbehandling-nasoperation-sa.html

Samanställning över uppföljning efter näsoperation

Sammanställningen gjord av Steven M Houser. Artikeln "The diagnosis and Management of Empty Nose Syndrome" https://www.researchgate.net/publication/24241407_The_Diagnosis_and_Management_of_Empty_Nose_Syndrome